Did insurance cover genetic testing for your kids?

[SandyCheeks]

We are currently trying to get my daughters genetic testing covered by our insurance. (I don't have cf). We are running into problems because the clinic did not put the diagnosis codes on the initial letter they sent. The diagnosis code helps the insurance company decide if the correct test is being done. I would be certian that they include this peice of information when requesting the test, it will help them decide much faster.

Good Luck!

 

[SandyCheeks]

We are currently trying to get my daughters genetic testing covered by our insurance. (I don't have cf). We are running into problems because the clinic did not put the diagnosis codes on the initial letter they sent. The diagnosis code helps the insurance company decide if the correct test is being done. I would be certian that they include this peice of information when requesting the test, it will help them decide much faster.

Good Luck!

 

[SandyCheeks]

We are currently trying to get my daughters genetic testing covered by our insurance. (I don't have cf). We are running into problems because the clinic did not put the diagnosis codes on the initial letter they sent. The diagnosis code helps the insurance company decide if the correct test is being done. I would be certian that they include this peice of information when requesting the test, it will help them decide much faster.

Good Luck!

 

[SandyCheeks]

We are currently trying to get my daughters genetic testing covered by our insurance. (I don't have cf). We are running into problems because the clinic did not put the diagnosis codes on the initial letter they sent. The diagnosis code helps the insurance company decide if the correct test is being done. I would be certian that they include this peice of information when requesting the test, it will help them decide much faster.

Good Luck!

 

[SandyCheeks]

We are currently trying to get my daughters genetic testing covered by our insurance. (I don't have cf). We are running into problems because the clinic did not put the diagnosis codes on the initial letter they sent. The diagnosis code helps the insurance company decide if the correct test is being done. I would be certian that they include this peice of information when requesting the test, it will help them decide much faster.
<br />
<br />Good Luck!

 

[hopesiris]

Juliet,

That's what I did, I wrote in my own results on Amelia's forms so they'd know to look up my records. Sounds like they'd have to do the full panel since your daughter can only have CF if your husband is a carrier, and he hasn't been tested. One copy of a CF mutation would have to come from each of you in order for your daughter to have CF. If your husband is not a carrier then there is zero chance she has CF. If your husband is a carrier then there is a 50% chance she has CF.

I'd not wait on your daughters testing. If she does have 2 mutations she needs treatment now even if she has no obvious symptoms yet. I'm sorry, I know that isn't what you want to hear.

Bonnie

 

[hopesiris]

Juliet,

That's what I did, I wrote in my own results on Amelia's forms so they'd know to look up my records. Sounds like they'd have to do the full panel since your daughter can only have CF if your husband is a carrier, and he hasn't been tested. One copy of a CF mutation would have to come from each of you in order for your daughter to have CF. If your husband is not a carrier then there is zero chance she has CF. If your husband is a carrier then there is a 50% chance she has CF.

I'd not wait on your daughters testing. If she does have 2 mutations she needs treatment now even if she has no obvious symptoms yet. I'm sorry, I know that isn't what you want to hear.

Bonnie

 

[hopesiris]

Juliet,

That's what I did, I wrote in my own results on Amelia's forms so they'd know to look up my records. Sounds like they'd have to do the full panel since your daughter can only have CF if your husband is a carrier, and he hasn't been tested. One copy of a CF mutation would have to come from each of you in order for your daughter to have CF. If your husband is not a carrier then there is zero chance she has CF. If your husband is a carrier then there is a 50% chance she has CF.

I'd not wait on your daughters testing. If she does have 2 mutations she needs treatment now even if she has no obvious symptoms yet. I'm sorry, I know that isn't what you want to hear.

Bonnie

 

[hopesiris]

Juliet,

That's what I did, I wrote in my own results on Amelia's forms so they'd know to look up my records. Sounds like they'd have to do the full panel since your daughter can only have CF if your husband is a carrier, and he hasn't been tested. One copy of a CF mutation would have to come from each of you in order for your daughter to have CF. If your husband is not a carrier then there is zero chance she has CF. If your husband is a carrier then there is a 50% chance she has CF.

I'd not wait on your daughters testing. If she does have 2 mutations she needs treatment now even if she has no obvious symptoms yet. I'm sorry, I know that isn't what you want to hear.

Bonnie

 

[hopesiris]

Juliet,
<br />
<br />That's what I did, I wrote in my own results on Amelia's forms so they'd know to look up my records. Sounds like they'd have to do the full panel since your daughter can only have CF if your husband is a carrier, and he hasn't been tested. One copy of a CF mutation would have to come from each of you in order for your daughter to have CF. If your husband is not a carrier then there is zero chance she has CF. If your husband is a carrier then there is a 50% chance she has CF.
<br />
<br />I'd not wait on your daughters testing. If she does have 2 mutations she needs treatment now even if she has no obvious symptoms yet. I'm sorry, I know that isn't what you want to hear.
<br />
<br />Bonnie
<br />
<br />
<br />

 

[mom2lillian]

see my blog for full details but they did, only because I found a loophole with gettting test drawn IN network but having it sent OUT network (ambry). FYI if you self pay they can reduce price to 1400 and set up a payment plan. It was a BUNCH rigamarole but it did get covered. I ended just signing saying I would pay if it didnt work out with ambry but it did.

ps I didnt read all responses but DONT get dh tested for carrier as they will only do a small panel then deny full panel for your daughter based on his 'not' being a carrier and assuming due to your late dx she will need a full panel.

 

[mom2lillian]

see my blog for full details but they did, only because I found a loophole with gettting test drawn IN network but having it sent OUT network (ambry). FYI if you self pay they can reduce price to 1400 and set up a payment plan. It was a BUNCH rigamarole but it did get covered. I ended just signing saying I would pay if it didnt work out with ambry but it did.

ps I didnt read all responses but DONT get dh tested for carrier as they will only do a small panel then deny full panel for your daughter based on his 'not' being a carrier and assuming due to your late dx she will need a full panel.

 

[mom2lillian]

see my blog for full details but they did, only because I found a loophole with gettting test drawn IN network but having it sent OUT network (ambry). FYI if you self pay they can reduce price to 1400 and set up a payment plan. It was a BUNCH rigamarole but it did get covered. I ended just signing saying I would pay if it didnt work out with ambry but it did.

ps I didnt read all responses but DONT get dh tested for carrier as they will only do a small panel then deny full panel for your daughter based on his 'not' being a carrier and assuming due to your late dx she will need a full panel.

 

[mom2lillian]

see my blog for full details but they did, only because I found a loophole with gettting test drawn IN network but having it sent OUT network (ambry). FYI if you self pay they can reduce price to 1400 and set up a payment plan. It was a BUNCH rigamarole but it did get covered. I ended just signing saying I would pay if it didnt work out with ambry but it did.

ps I didnt read all responses but DONT get dh tested for carrier as they will only do a small panel then deny full panel for your daughter based on his 'not' being a carrier and assuming due to your late dx she will need a full panel.

 

[mom2lillian]

see my blog for full details but they did, only because I found a loophole with gettting test drawn IN network but having it sent OUT network (ambry). FYI if you self pay they can reduce price to 1400 and set up a payment plan. It was a BUNCH rigamarole but it did get covered. I ended just signing saying I would pay if it didnt work out with ambry but it did.
<br />
<br />ps I didnt read all responses but DONT get dh tested for carrier as they will only do a small panel then deny full panel for your daughter based on his 'not' being a carrier and assuming due to your late dx she will need a full panel.