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Do enzymes always work?

K

kitomd21

New member
Yet another question from Katie! <img src="i/expressions/face-icon-small-smile.gif" border="0">

My daughter is doing well and gaining lots of weight on pancreatic enzymes (5 granules with each feeding, up to 8 doses/day per the doctor). Do pancreatic enzymes always work for each CF individual? Are there cases where individuals have tried different manufacturers until they found a "brand" that worked? In addition, I keep reading recurring posts/articles regarding malabsorption...could this be more of an issue as my daughter ages? That is, she's doing well now, can I assume the enzymes will always work for her? FYI and fun fact for all...she poops 1 - 3 times daily...stools have always been loose/viscous-like and yellow/orange...gassiness has decreased significantly in past few weeks.
 
K

kitomd21

New member
Yet another question from Katie! <img src="i/expressions/face-icon-small-smile.gif" border="0">

My daughter is doing well and gaining lots of weight on pancreatic enzymes (5 granules with each feeding, up to 8 doses/day per the doctor). Do pancreatic enzymes always work for each CF individual? Are there cases where individuals have tried different manufacturers until they found a "brand" that worked? In addition, I keep reading recurring posts/articles regarding malabsorption...could this be more of an issue as my daughter ages? That is, she's doing well now, can I assume the enzymes will always work for her? FYI and fun fact for all...she poops 1 - 3 times daily...stools have always been loose/viscous-like and yellow/orange...gassiness has decreased significantly in past few weeks.
 
K

kitomd21

New member
Yet another question from Katie! <img src="i/expressions/face-icon-small-smile.gif" border="0">

My daughter is doing well and gaining lots of weight on pancreatic enzymes (5 granules with each feeding, up to 8 doses/day per the doctor). Do pancreatic enzymes always work for each CF individual? Are there cases where individuals have tried different manufacturers until they found a "brand" that worked? In addition, I keep reading recurring posts/articles regarding malabsorption...could this be more of an issue as my daughter ages? That is, she's doing well now, can I assume the enzymes will always work for her? FYI and fun fact for all...she poops 1 - 3 times daily...stools have always been loose/viscous-like and yellow/orange...gassiness has decreased significantly in past few weeks.
 
K

kitomd21

New member
Yet another question from Katie! <img src="i/expressions/face-icon-small-smile.gif" border="0">

My daughter is doing well and gaining lots of weight on pancreatic enzymes (5 granules with each feeding, up to 8 doses/day per the doctor). Do pancreatic enzymes always work for each CF individual? Are there cases where individuals have tried different manufacturers until they found a "brand" that worked? In addition, I keep reading recurring posts/articles regarding malabsorption...could this be more of an issue as my daughter ages? That is, she's doing well now, can I assume the enzymes will always work for her? FYI and fun fact for all...she poops 1 - 3 times daily...stools have always been loose/viscous-like and yellow/orange...gassiness has decreased significantly in past few weeks.
 
K

kitomd21

New member
Yet another question from Katie! <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />My daughter is doing well and gaining lots of weight on pancreatic enzymes (5 granules with each feeding, up to 8 doses/day per the doctor). Do pancreatic enzymes always work for each CF individual? Are there cases where individuals have tried different manufacturers until they found a "brand" that worked? In addition, I keep reading recurring posts/articles regarding malabsorption...could this be more of an issue as my daughter ages? That is, she's doing well now, can I assume the enzymes will always work for her? FYI and fun fact for all...she poops 1 - 3 times daily...stools have always been loose/viscous-like and yellow/orange...gassiness has decreased significantly in past few weeks.
 
A

AnD

New member
I did have to try <i>several</i> different brands until I found one that worked for me. And you will probably find yourself having to change dosages and possibly even brands as she gets bigger/older and things change. But there is no real way to predict how it will go- it's just one of those "go with the flow" things you adapt to. I'm glad she's doing well on her enzymes now <img src="i/expressions/face-icon-small-smile.gif" border="0"> .
 
A

AnD

New member
I did have to try <i>several</i> different brands until I found one that worked for me. And you will probably find yourself having to change dosages and possibly even brands as she gets bigger/older and things change. But there is no real way to predict how it will go- it's just one of those "go with the flow" things you adapt to. I'm glad she's doing well on her enzymes now <img src="i/expressions/face-icon-small-smile.gif" border="0"> .
 
A

AnD

New member
I did have to try <i>several</i> different brands until I found one that worked for me. And you will probably find yourself having to change dosages and possibly even brands as she gets bigger/older and things change. But there is no real way to predict how it will go- it's just one of those "go with the flow" things you adapt to. I'm glad she's doing well on her enzymes now <img src="i/expressions/face-icon-small-smile.gif" border="0"> .
 
A

AnD

New member
I did have to try <i>several</i> different brands until I found one that worked for me. And you will probably find yourself having to change dosages and possibly even brands as she gets bigger/older and things change. But there is no real way to predict how it will go- it's just one of those "go with the flow" things you adapt to. I'm glad she's doing well on her enzymes now <img src="i/expressions/face-icon-small-smile.gif" border="0"> .
 
A

AnD

New member
I did have to try <i>several</i> different brands until I found one that worked for me. And you will probably find yourself having to change dosages and possibly even brands as she gets bigger/older and things change. But there is no real way to predict how it will go- it's just one of those "go with the flow" things you adapt to. I'm glad she's doing well on her enzymes now <img src="i/expressions/face-icon-small-smile.gif" border="0"> .
 
T

Transplantmommy

New member
Nope...enzymes don't always help the way that they are supposed to.

Yes...some people do have to go through different brands until they find one that works. I used to be on Pancrease MT16 and am now on Creon 20 because the other ones didn't work anymore. I was not switched to the Creon 20 until about 2 years ago though.

Just as the lungs become more of an issue later in life, the same thing can happen with the GI part of CF. In my case, I actually had more GI problems when I was younger and they have diminished a little but are not all the way gone. My lungs were okay to begin with and they got worse as the years went on.

Like people on here before have said, every case is different!!
 
T

Transplantmommy

New member
Nope...enzymes don't always help the way that they are supposed to.

Yes...some people do have to go through different brands until they find one that works. I used to be on Pancrease MT16 and am now on Creon 20 because the other ones didn't work anymore. I was not switched to the Creon 20 until about 2 years ago though.

Just as the lungs become more of an issue later in life, the same thing can happen with the GI part of CF. In my case, I actually had more GI problems when I was younger and they have diminished a little but are not all the way gone. My lungs were okay to begin with and they got worse as the years went on.

Like people on here before have said, every case is different!!
 
T

Transplantmommy

New member
Nope...enzymes don't always help the way that they are supposed to.

Yes...some people do have to go through different brands until they find one that works. I used to be on Pancrease MT16 and am now on Creon 20 because the other ones didn't work anymore. I was not switched to the Creon 20 until about 2 years ago though.

Just as the lungs become more of an issue later in life, the same thing can happen with the GI part of CF. In my case, I actually had more GI problems when I was younger and they have diminished a little but are not all the way gone. My lungs were okay to begin with and they got worse as the years went on.

Like people on here before have said, every case is different!!
 
T

Transplantmommy

New member
Nope...enzymes don't always help the way that they are supposed to.

Yes...some people do have to go through different brands until they find one that works. I used to be on Pancrease MT16 and am now on Creon 20 because the other ones didn't work anymore. I was not switched to the Creon 20 until about 2 years ago though.

Just as the lungs become more of an issue later in life, the same thing can happen with the GI part of CF. In my case, I actually had more GI problems when I was younger and they have diminished a little but are not all the way gone. My lungs were okay to begin with and they got worse as the years went on.

Like people on here before have said, every case is different!!
 
T

Transplantmommy

New member
Nope...enzymes don't always help the way that they are supposed to.
<br />
<br />Yes...some people do have to go through different brands until they find one that works. I used to be on Pancrease MT16 and am now on Creon 20 because the other ones didn't work anymore. I was not switched to the Creon 20 until about 2 years ago though.
<br />
<br />Just as the lungs become more of an issue later in life, the same thing can happen with the GI part of CF. In my case, I actually had more GI problems when I was younger and they have diminished a little but are not all the way gone. My lungs were okay to begin with and they got worse as the years went on.
<br />
<br />Like people on here before have said, every case is different!!
<br />
 
L

lmattaway

New member
Different brands work for different people. The main thing is the amount of lipase in each capsule. As she grows they can do a stool study and see just how much she's absorbing (or not) and regulate how much lipase she needs based on that. I've settled into Creon 20s as well, but even then, with a really fatty meal, I still experience oily stools. The older I've gotten the better I've gotten at watching what I eat and increasing or decreasing the enzymes accordingly. For reference Creon 10s would be 10,000 IU Lipase and Creon 20s would be 20,000 IU Lipase. Here are some links that might help:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cfeducation.ca/pdf/Enzymes_Adults.pdf">Enzyme Guidelines (for adults, but educational)</a>
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/treatments/Therapies/Nutrition/Enzymes/">FDA Requirements</a>
 
L

lmattaway

New member
Different brands work for different people. The main thing is the amount of lipase in each capsule. As she grows they can do a stool study and see just how much she's absorbing (or not) and regulate how much lipase she needs based on that. I've settled into Creon 20s as well, but even then, with a really fatty meal, I still experience oily stools. The older I've gotten the better I've gotten at watching what I eat and increasing or decreasing the enzymes accordingly. For reference Creon 10s would be 10,000 IU Lipase and Creon 20s would be 20,000 IU Lipase. Here are some links that might help:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cfeducation.ca/pdf/Enzymes_Adults.pdf">Enzyme Guidelines (for adults, but educational)</a>
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/treatments/Therapies/Nutrition/Enzymes/">FDA Requirements</a>
 
L

lmattaway

New member
Different brands work for different people. The main thing is the amount of lipase in each capsule. As she grows they can do a stool study and see just how much she's absorbing (or not) and regulate how much lipase she needs based on that. I've settled into Creon 20s as well, but even then, with a really fatty meal, I still experience oily stools. The older I've gotten the better I've gotten at watching what I eat and increasing or decreasing the enzymes accordingly. For reference Creon 10s would be 10,000 IU Lipase and Creon 20s would be 20,000 IU Lipase. Here are some links that might help:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cfeducation.ca/pdf/Enzymes_Adults.pdf">Enzyme Guidelines (for adults, but educational)</a>
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/treatments/Therapies/Nutrition/Enzymes/">FDA Requirements</a>
 
L

lmattaway

New member
Different brands work for different people. The main thing is the amount of lipase in each capsule. As she grows they can do a stool study and see just how much she's absorbing (or not) and regulate how much lipase she needs based on that. I've settled into Creon 20s as well, but even then, with a really fatty meal, I still experience oily stools. The older I've gotten the better I've gotten at watching what I eat and increasing or decreasing the enzymes accordingly. For reference Creon 10s would be 10,000 IU Lipase and Creon 20s would be 20,000 IU Lipase. Here are some links that might help:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cfeducation.ca/pdf/Enzymes_Adults.pdf">Enzyme Guidelines (for adults, but educational)</a>
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/treatments/Therapies/Nutrition/Enzymes/">FDA Requirements</a>
 
L

lmattaway

New member
Different brands work for different people. The main thing is the amount of lipase in each capsule. As she grows they can do a stool study and see just how much she's absorbing (or not) and regulate how much lipase she needs based on that. I've settled into Creon 20s as well, but even then, with a really fatty meal, I still experience oily stools. The older I've gotten the better I've gotten at watching what I eat and increasing or decreasing the enzymes accordingly. For reference Creon 10s would be 10,000 IU Lipase and Creon 20s would be 20,000 IU Lipase. Here are some links that might help:
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.cfeducation.ca/pdf/Enzymes_Adults.pdf">Enzyme Guidelines (for adults, but educational)</a>
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/treatments/Therapies/Nutrition/Enzymes/">FDA Requirements</a>
 
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