Does this happen to you when doing your tune ups?

NYCLawGirl · Sep 17, 2008

Jennifer, are you on ceftaz or cephaprim, by chance? This used to happen to me literally EVERY time I went in for tune up. Like you, docs told me that it was just my body reacting to the bacteria being killed off, etc. It always went away after about 2-3 days. Then after several years of this, I started getting really bad headaches, itching and swelling. They did a test and found out I was super allergic to cephalosporins, which apparently cause nausea and other flu-like symptoms when you have a reaction. I discontinued those drugs and have never had the issue again.

I would definitely talk to your doctor about maybe trying a new drug, especially if there's a pattern between these symptoms and which abx you are infusing. And it can also be helpful to switch abx every so often anyway...lots of CFers I know have had great results with added variation to their tune-up routine.

Good luck and feel better.

NYCLawGirl · Sep 17, 2008

Jennifer, are you on ceftaz or cephaprim, by chance? This used to happen to me literally EVERY time I went in for tune up. Like you, docs told me that it was just my body reacting to the bacteria being killed off, etc. It always went away after about 2-3 days. Then after several years of this, I started getting really bad headaches, itching and swelling. They did a test and found out I was super allergic to cephalosporins, which apparently cause nausea and other flu-like symptoms when you have a reaction. I discontinued those drugs and have never had the issue again.

I would definitely talk to your doctor about maybe trying a new drug, especially if there's a pattern between these symptoms and which abx you are infusing. And it can also be helpful to switch abx every so often anyway...lots of CFers I know have had great results with added variation to their tune-up routine.

Good luck and feel better.

NYCLawGirl · Sep 17, 2008

Jennifer, are you on ceftaz or cephaprim, by chance? This used to happen to me literally EVERY time I went in for tune up. Like you, docs told me that it was just my body reacting to the bacteria being killed off, etc. It always went away after about 2-3 days. Then after several years of this, I started getting really bad headaches, itching and swelling. They did a test and found out I was super allergic to cephalosporins, which apparently cause nausea and other flu-like symptoms when you have a reaction. I discontinued those drugs and have never had the issue again.

I would definitely talk to your doctor about maybe trying a new drug, especially if there's a pattern between these symptoms and which abx you are infusing. And it can also be helpful to switch abx every so often anyway...lots of CFers I know have had great results with added variation to their tune-up routine.

Good luck and feel better.

NYCLawGirl · Sep 17, 2008

Jennifer, are you on ceftaz or cephaprim, by chance? This used to happen to me literally EVERY time I went in for tune up. Like you, docs told me that it was just my body reacting to the bacteria being killed off, etc. It always went away after about 2-3 days. Then after several years of this, I started getting really bad headaches, itching and swelling. They did a test and found out I was super allergic to cephalosporins, which apparently cause nausea and other flu-like symptoms when you have a reaction. I discontinued those drugs and have never had the issue again.

I would definitely talk to your doctor about maybe trying a new drug, especially if there's a pattern between these symptoms and which abx you are infusing. And it can also be helpful to switch abx every so often anyway...lots of CFers I know have had great results with added variation to their tune-up routine.

Good luck and feel better.

NYCLawGirl · Sep 17, 2008

Jennifer, are you on ceftaz or cephaprim, by chance? This used to happen to me literally EVERY time I went in for tune up. Like you, docs told me that it was just my body reacting to the bacteria being killed off, etc. It always went away after about 2-3 days. Then after several years of this, I started getting really bad headaches, itching and swelling. They did a test and found out I was super allergic to cephalosporins, which apparently cause nausea and other flu-like symptoms when you have a reaction. I discontinued those drugs and have never had the issue again.
 
 I would definitely talk to your doctor about maybe trying a new drug, especially if there's a pattern between these symptoms and which abx you are infusing. And it can also be helpful to switch abx every so often anyway...lots of CFers I know have had great results with added variation to their tune-up routine.
 
 Good luck and feel better.

moxie1 · Sep 17, 2008

Hi,

That is me exactly, except I don't get fevers. I do feel horrible, get thrush, and throw up regularly despite the anti-nausea meds.

Interestingly, when I get home, even though I am still on IV's, I stop throwing up. I wonder sometimes if my nervousness makes me sick. Probably, since I respond well to adivan plus an anti-nausea.

moxie1 · Sep 17, 2008

Hi,

That is me exactly, except I don't get fevers. I do feel horrible, get thrush, and throw up regularly despite the anti-nausea meds.

Interestingly, when I get home, even though I am still on IV's, I stop throwing up. I wonder sometimes if my nervousness makes me sick. Probably, since I respond well to adivan plus an anti-nausea.

moxie1 · Sep 17, 2008

Hi,

That is me exactly, except I don't get fevers. I do feel horrible, get thrush, and throw up regularly despite the anti-nausea meds.

Interestingly, when I get home, even though I am still on IV's, I stop throwing up. I wonder sometimes if my nervousness makes me sick. Probably, since I respond well to adivan plus an anti-nausea.

moxie1 · Sep 17, 2008

Hi,

That is me exactly, except I don't get fevers. I do feel horrible, get thrush, and throw up regularly despite the anti-nausea meds.

Interestingly, when I get home, even though I am still on IV's, I stop throwing up. I wonder sometimes if my nervousness makes me sick. Probably, since I respond well to adivan plus an anti-nausea.

moxie1 · Sep 17, 2008

Hi,
 
 That is me exactly, except I don't get fevers. I do feel horrible, get thrush, and throw up regularly despite the anti-nausea meds.
 
 Interestingly, when I get home, even though I am still on IV's, I stop throwing up. I wonder sometimes if my nervousness makes me sick. Probably, since I respond well to adivan plus an anti-nausea.

Giggles · Sep 17, 2008

Actually I am always on Cefepime is that a Cephalasporing drug? If so, I will for sure have them run an allergy test then. Regardless, I am going to talk to Doc again about how to make me more comfortable before I go in this year. thanks for the advice

Jennifer 36 years old with CF and CFRD

Giggles · Sep 17, 2008

Actually I am always on Cefepime is that a Cephalasporing drug? If so, I will for sure have them run an allergy test then. Regardless, I am going to talk to Doc again about how to make me more comfortable before I go in this year. thanks for the advice

Jennifer 36 years old with CF and CFRD

Giggles · Sep 17, 2008

Actually I am always on Cefepime is that a Cephalasporing drug? If so, I will for sure have them run an allergy test then. Regardless, I am going to talk to Doc again about how to make me more comfortable before I go in this year. thanks for the advice

Jennifer 36 years old with CF and CFRD

Giggles · Sep 17, 2008

Actually I am always on Cefepime is that a Cephalasporing drug? If so, I will for sure have them run an allergy test then. Regardless, I am going to talk to Doc again about how to make me more comfortable before I go in this year. thanks for the advice

Jennifer 36 years old with CF and CFRD

Giggles · Sep 17, 2008

Actually I am always on Cefepime is that a Cephalasporing drug? If so, I will for sure have them run an allergy test then. Regardless, I am going to talk to Doc again about how to make me more comfortable before I go in this year. thanks for the advice
 
 
 
 Jennifer 36 years old with CF and CFRD

NYCLawGirl · Sep 17, 2008