Yes, I realize 30% is talk of tx. I also know that I don't feel like I am there. I can go from the basement to top floor and feel winded but usually with basket of clothes in my arms. I have a lot of plugging and I am trying to get them out but don't seem to have a lot of luck. I would like to try the GSH but have bleeding problems on and off, so I have to check first to see about doing that.
I realize I have limitations, and yes i do work, part-time as a graphic designer, and keep up our house, laundry, cleaning, and so on, while also doing 3 hours of therapy and nebs a day and exercising. I think all those things are great to keep me going. The last time the doc mentioned tx was two years ago after I have an upper portion of my right lobe removed, my numbers kept falling, but have been steady since that time.
My husband and I have had the talk too about being single parent when I die, a hard conversation to have. On that we are extremely realistic. I also feel that having a baby via "gestational carrier", I don't have to recover from the pregnancy - however healthy it might be. I am able to be more involved in it. We still have a lot of info to gather before we.
I just take it day at a time.
I realize I have limitations, and yes i do work, part-time as a graphic designer, and keep up our house, laundry, cleaning, and so on, while also doing 3 hours of therapy and nebs a day and exercising. I think all those things are great to keep me going. The last time the doc mentioned tx was two years ago after I have an upper portion of my right lobe removed, my numbers kept falling, but have been steady since that time.
My husband and I have had the talk too about being single parent when I die, a hard conversation to have. On that we are extremely realistic. I also feel that having a baby via "gestational carrier", I don't have to recover from the pregnancy - however healthy it might be. I am able to be more involved in it. We still have a lot of info to gather before we.
I just take it day at a time.