Hi Sharon, my son who will be 5 months next week is having the Nissan Fundo this coming Tuesday (Nov.21st) As you, I have read a lot of negaitive things about the Nissan and am very concerend. I have talked to the surgeon, who has covered ALL of my concerns but I'm still very afraid.
Briceton is having the Fundo becuase he is aspirating into his lungs, and of course with him having CF is pretty serious. He has already been hospitilized for pneumonia and a collaption due to the aspirating and many secondary infictions. We pretty much have no choice but to have the surgery or highly risk a lot of damage to his lungs from the aspiration. CF is bad enough, he doesn't need anything else to aide in damaging his precious lungs.
Briceton will not be having a G-tube placed but will be having a nasal feeding tube in for 1-2 months after surgery due to the swelling it causes.
If you like, fell free to email me and I will gladly update you on his surgery and his progress afterwards. Just praying the surgery does more good then bad.
wish you well on your decision,
Sherry
Edited to try and figure out why it will not let me have a space between my paragraphs...........can't figure it out, who knows!<img src="i/expressions/face-icon-small-smile.gif" border="0">
Oooohhh I pray everything goes perfectly, this has been eating me up! Trying to be strong!