Last night my BF and i were talking, and i mentioned that i have a lot of guilt in me when it comes to my disease and my family. He cannot understand why i feel any guilt for what my cf does to me and how my family worries. I dont know about anyone else, but i HATE thinking that my parents and my brother feel bad for me. They never really worried about me so much as they have in the past 10 years or so. It's the past 10 years i have been having the most problems, and i noticed some small changes in everyones behavior around me. My father was never one to say "I Love You" before we hang up the phone, but lately he has been saying it each and every time. My mother gets so upset when we discuss the reality of cf and honestly i wish i could hide it all from her, but obviously i cant. AFter my last 2 embolizations she said to me <i>" Im so sorry i brought you into this world of pain"</i> and hearing her say that just breaks my heart for her ( not me). Great now my poor mom is blaming herself.... I DONT WANT THAT !!!! She does not deserve to feel that way. She has been wonderful to me all my life. I always remind my mother when she says how unfair my life is, that Life was unfair to my friend David ( David died 25 years ago at age 15 from cf )Not me.... i always tell my mom <b><i>"i wasnt cheated , i am blessed".</i></b> I had a great childhood with no symptoms of cf, a great family, friends, etc. I had /have things some healthy people dont. The real trouble started when i got cepacia 11 years ago. The other day i was on the phone with my brother and i told him i was getting an iv and he said <i>" oh you have to have one again"</i> ( just got off of one 2 and half months ago)and i could hear concern in his voice and that just makes me feel so bad. I feel like my cf is taking away everyones peace of mind ( including mine....lol).
I feel guilty that my family members have to be put thru this. I cant help BUT feel guilty. I know it isnt my fault, but i dont want them to worry and i know they do. Can anyone understand this ? Or am i just some sort of nut....lol
I feel guilty that my family members have to be put thru this. I cant help BUT feel guilty. I know it isnt my fault, but i dont want them to worry and i know they do. Can anyone understand this ? Or am i just some sort of nut....lol