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high fev 1 and low fev1 and how you feel on a daily basis

R

Ricky123

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sakasuka</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>rockingdog</b></i>



You should speak to your doctors or get another opinion from another CF doc. That seems like too much of a loss in two years. They should have been monitoring you more closely.</end quote></div>



agreed 100%



this should be unacceptable to you. what have they been doing these past 2 years to prevent the decline?</end quote></div>
they put me on hypetonic saline and arizoymycin 3 months ago but i admit cos i have been stressed out about exams i skipped treatments hence i think the decline
 
R

Ricky123

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sakasuka</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>rockingdog</b></i>



You should speak to your doctors or get another opinion from another CF doc. That seems like too much of a loss in two years. They should have been monitoring you more closely.</end quote></div>



agreed 100%



this should be unacceptable to you. what have they been doing these past 2 years to prevent the decline?</end quote></div>
they put me on hypetonic saline and arizoymycin 3 months ago but i admit cos i have been stressed out about exams i skipped treatments hence i think the decline
 
R

Ricky123

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sakasuka</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>rockingdog</b></i>



You should speak to your doctors or get another opinion from another CF doc. That seems like too much of a loss in two years. They should have been monitoring you more closely.</end quote></div>



agreed 100%



this should be unacceptable to you. what have they been doing these past 2 years to prevent the decline?</end quote></div>
they put me on hypetonic saline and arizoymycin 3 months ago but i admit cos i have been stressed out about exams i skipped treatments hence i think the decline
 
R

Ricky123

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sakasuka</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>rockingdog</b></i>



You should speak to your doctors or get another opinion from another CF doc. That seems like too much of a loss in two years. They should have been monitoring you more closely.</end quote></div>



agreed 100%



this should be unacceptable to you. what have they been doing these past 2 years to prevent the decline?</end quote></div>
they put me on hypetonic saline and arizoymycin 3 months ago but i admit cos i have been stressed out about exams i skipped treatments hence i think the decline
 
R

Ricky123

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sakasuka</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>rockingdog</b></i>



You should speak to your doctors or get another opinion from another CF doc. That seems like too much of a loss in two years. They should have been monitoring you more closely.</end quote>



agreed 100%



this should be unacceptable to you. what have they been doing these past 2 years to prevent the decline?</end quote>
they put me on hypetonic saline and arizoymycin 3 months ago but i admit cos i have been stressed out about exams i skipped treatments hence i think the decline
 
R

Ricky123

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sakasuka</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>rockingdog</b></i>



You should speak to your doctors or get another opinion from another CF doc. That seems like too much of a loss in two years. They should have been monitoring you more closely.</end quote>



agreed 100%



this should be unacceptable to you. what have they been doing these past 2 years to prevent the decline?</end quote>
they put me on hypetonic saline and arizoymycin 3 months ago but i admit cos i have been stressed out about exams i skipped treatments hence i think the decline
 
R

Ricky123

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ricky123</b></i>



okay just had my clinic appointement yesterday and found my lung function has dropped again its now down to fev 1 62 a drop of around 20 % in 2 years it was fev1 84 this time 2 years ago .But the thing is is i dont feel that different compared to when my pfts were high.I can still walk about without little problems and the only thing is i notice i become a lot more breathless when i play sport thing i want to know is have others who have had big drops in their pfts felt much difference in there daily activities ie walking etc</end quote></div>





Can you just clarify IF you had been to the clinic, doing pfts, doing treatments, doing follow up between the time of the fev1 being 84 & the current fev1 of 62?



I would hate to criticize the doctor if you hadnt been doing your part.</end quote></div>yes i was doing treatments up until about 3 months ago i was quite regular but because of exams i put more emphasis on studying and less on my treatments
it just shows me what i always considered the extent of how severe cf can be up until recently i have been 100% religious hence the fev 1 84 yet any slight let up in treatment and my fev1 goes down quick isnt cf a pain in the ass to live with
 
R

Ricky123

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ricky123</b></i>



okay just had my clinic appointement yesterday and found my lung function has dropped again its now down to fev 1 62 a drop of around 20 % in 2 years it was fev1 84 this time 2 years ago .But the thing is is i dont feel that different compared to when my pfts were high.I can still walk about without little problems and the only thing is i notice i become a lot more breathless when i play sport thing i want to know is have others who have had big drops in their pfts felt much difference in there daily activities ie walking etc</end quote></div>





Can you just clarify IF you had been to the clinic, doing pfts, doing treatments, doing follow up between the time of the fev1 being 84 & the current fev1 of 62?



I would hate to criticize the doctor if you hadnt been doing your part.</end quote></div>yes i was doing treatments up until about 3 months ago i was quite regular but because of exams i put more emphasis on studying and less on my treatments
it just shows me what i always considered the extent of how severe cf can be up until recently i have been 100% religious hence the fev 1 84 yet any slight let up in treatment and my fev1 goes down quick isnt cf a pain in the ass to live with
 
R

Ricky123

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ricky123</b></i>



okay just had my clinic appointement yesterday and found my lung function has dropped again its now down to fev 1 62 a drop of around 20 % in 2 years it was fev1 84 this time 2 years ago .But the thing is is i dont feel that different compared to when my pfts were high.I can still walk about without little problems and the only thing is i notice i become a lot more breathless when i play sport thing i want to know is have others who have had big drops in their pfts felt much difference in there daily activities ie walking etc</end quote></div>





Can you just clarify IF you had been to the clinic, doing pfts, doing treatments, doing follow up between the time of the fev1 being 84 & the current fev1 of 62?



I would hate to criticize the doctor if you hadnt been doing your part.</end quote></div>yes i was doing treatments up until about 3 months ago i was quite regular but because of exams i put more emphasis on studying and less on my treatments
it just shows me what i always considered the extent of how severe cf can be up until recently i have been 100% religious hence the fev 1 84 yet any slight let up in treatment and my fev1 goes down quick isnt cf a pain in the ass to live with
 
R

Ricky123

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ricky123</b></i>



okay just had my clinic appointement yesterday and found my lung function has dropped again its now down to fev 1 62 a drop of around 20 % in 2 years it was fev1 84 this time 2 years ago .But the thing is is i dont feel that different compared to when my pfts were high.I can still walk about without little problems and the only thing is i notice i become a lot more breathless when i play sport thing i want to know is have others who have had big drops in their pfts felt much difference in there daily activities ie walking etc</end quote></div>





Can you just clarify IF you had been to the clinic, doing pfts, doing treatments, doing follow up between the time of the fev1 being 84 & the current fev1 of 62?



I would hate to criticize the doctor if you hadnt been doing your part.</end quote></div>yes i was doing treatments up until about 3 months ago i was quite regular but because of exams i put more emphasis on studying and less on my treatments
it just shows me what i always considered the extent of how severe cf can be up until recently i have been 100% religious hence the fev 1 84 yet any slight let up in treatment and my fev1 goes down quick isnt cf a pain in the ass to live with
 
R

Ricky123

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ricky123</b></i>



okay just had my clinic appointement yesterday and found my lung function has dropped again its now down to fev 1 62 a drop of around 20 % in 2 years it was fev1 84 this time 2 years ago .But the thing is is i dont feel that different compared to when my pfts were high.I can still walk about without little problems and the only thing is i notice i become a lot more breathless when i play sport thing i want to know is have others who have had big drops in their pfts felt much difference in there daily activities ie walking etc</end quote>





Can you just clarify IF you had been to the clinic, doing pfts, doing treatments, doing follow up between the time of the fev1 being 84 & the current fev1 of 62?



I would hate to criticize the doctor if you hadnt been doing your part.</end quote>yes i was doing treatments up until about 3 months ago i was quite regular but because of exams i put more emphasis on studying and less on my treatments
it just shows me what i always considered the extent of how severe cf can be up until recently i have been 100% religious hence the fev 1 84 yet any slight let up in treatment and my fev1 goes down quick isnt cf a pain in the ass to live with
 
R

Ricky123

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ricky123</b></i>



okay just had my clinic appointement yesterday and found my lung function has dropped again its now down to fev 1 62 a drop of around 20 % in 2 years it was fev1 84 this time 2 years ago .But the thing is is i dont feel that different compared to when my pfts were high.I can still walk about without little problems and the only thing is i notice i become a lot more breathless when i play sport thing i want to know is have others who have had big drops in their pfts felt much difference in there daily activities ie walking etc</end quote>





Can you just clarify IF you had been to the clinic, doing pfts, doing treatments, doing follow up between the time of the fev1 being 84 & the current fev1 of 62?



I would hate to criticize the doctor if you hadnt been doing your part.</end quote>yes i was doing treatments up until about 3 months ago i was quite regular but because of exams i put more emphasis on studying and less on my treatments
it just shows me what i always considered the extent of how severe cf can be up until recently i have been 100% religious hence the fev 1 84 yet any slight let up in treatment and my fev1 goes down quick isnt cf a pain in the ass to live with
 
J

Julz

New member
I recently had a "visit reality" talk with my doctor. He said he understood and respected my decisions (excuses) to hold off a bit when I really needed to come in for a tune-up, or why I am too busy to be 100% compliant, etc. But as he put it, the talk we were having about where my fev1 is and were it can't be again is a choice I made alone. I was stung by his words, I knew they were true. I've been busy digging my own grave, by not being compliant, sucks to realize what I have done to my children (2) and husband and to myself. My fev1 is now low 40 into the 30s and I know I can't do much. He also concluded he wished we were having this talk 3, maybe 5 years down the road, but I made the choice. I pray you make a better choice than I do.
Goodluck!
 
J

Julz

New member
I recently had a "visit reality" talk with my doctor. He said he understood and respected my decisions (excuses) to hold off a bit when I really needed to come in for a tune-up, or why I am too busy to be 100% compliant, etc. But as he put it, the talk we were having about where my fev1 is and were it can't be again is a choice I made alone. I was stung by his words, I knew they were true. I've been busy digging my own grave, by not being compliant, sucks to realize what I have done to my children (2) and husband and to myself. My fev1 is now low 40 into the 30s and I know I can't do much. He also concluded he wished we were having this talk 3, maybe 5 years down the road, but I made the choice. I pray you make a better choice than I do.
Goodluck!
 
J

Julz

New member
I recently had a "visit reality" talk with my doctor. He said he understood and respected my decisions (excuses) to hold off a bit when I really needed to come in for a tune-up, or why I am too busy to be 100% compliant, etc. But as he put it, the talk we were having about where my fev1 is and were it can't be again is a choice I made alone. I was stung by his words, I knew they were true. I've been busy digging my own grave, by not being compliant, sucks to realize what I have done to my children (2) and husband and to myself. My fev1 is now low 40 into the 30s and I know I can't do much. He also concluded he wished we were having this talk 3, maybe 5 years down the road, but I made the choice. I pray you make a better choice than I do.
Goodluck!
 
J

Julz

New member
I recently had a "visit reality" talk with my doctor. He said he understood and respected my decisions (excuses) to hold off a bit when I really needed to come in for a tune-up, or why I am too busy to be 100% compliant, etc. But as he put it, the talk we were having about where my fev1 is and were it can't be again is a choice I made alone. I was stung by his words, I knew they were true. I've been busy digging my own grave, by not being compliant, sucks to realize what I have done to my children (2) and husband and to myself. My fev1 is now low 40 into the 30s and I know I can't do much. He also concluded he wished we were having this talk 3, maybe 5 years down the road, but I made the choice. I pray you make a better choice than I do.
Goodluck!
 
J

Julz

New member
I recently had a "visit reality" talk with my doctor. He said he understood and respected my decisions (excuses) to hold off a bit when I really needed to come in for a tune-up, or why I am too busy to be 100% compliant, etc. But as he put it, the talk we were having about where my fev1 is and were it can't be again is a choice I made alone. I was stung by his words, I knew they were true. I've been busy digging my own grave, by not being compliant, sucks to realize what I have done to my children (2) and husband and to myself. My fev1 is now low 40 into the 30s and I know I can't do much. He also concluded he wished we were having this talk 3, maybe 5 years down the road, but I made the choice. I pray you make a better choice than I do.
Goodluck!
 
J

Julz

New member
I recently had a "visit reality" talk with my doctor. He said he understood and respected my decisions (excuses) to hold off a bit when I really needed to come in for a tune-up, or why I am too busy to be 100% compliant, etc. But as he put it, the talk we were having about where my fev1 is and were it can't be again is a choice I made alone. I was stung by his words, I knew they were true. I've been busy digging my own grave, by not being compliant, sucks to realize what I have done to my children (2) and husband and to myself. My fev1 is now low 40 into the 30s and I know I can't do much. He also concluded he wished we were having this talk 3, maybe 5 years down the road, but I made the choice. I pray you make a better choice than I do.
Goodluck!
 
B

bigstar

New member
Well mine is usually between 97 and 99 so its fine i guess....But keep you fingers crossed because i have a visit tomorrow and it is making me nervous.I hope no IVs this summer<img src="i/expressions/iv.gif" border="0">
 
B

bigstar

New member
Well mine is usually between 97 and 99 so its fine i guess....But keep you fingers crossed because i have a visit tomorrow and it is making me nervous.I hope no IVs this summer<img src="i/expressions/iv.gif" border="0">
 
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