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I'm No Scrooge, But Here's What Irks Me

anonymous

New member
<img src="i/expressions/oxygen.gif" border="0"> Hiya it's me Charlotte again. Can't even work out how to login properly! As you can really see now I'm new to this! Can someone give me a few tips please? Ta.
 

anonymous

New member
<img src="i/expressions/oxygen.gif" border="0"> Hiya it's me Charlotte again. Can't even work out how to login properly! As you can really see now I'm new to this! Can someone give me a few tips please? Ta.
 

anonymous

New member
I don't think you are being a scrooge, CF is a very hard Disease to deal with! and people continue to lose there life to it everyday and it all seems so unfair when we lose them!!! i am a mother of 2 CF children and the thought of my children dying before me makes me ILL, but i do believe in God and believe he can save us spiritly and help us deal with everyday life and even deal with the Illness, however God promises eternal life with him if we choose to follow him but he does not promise us that we will not die at a young age!!! and does not promise us a easy life.. people who make bad remarks such as that person didn't care enough or didn't have God in there lifes or not enough faith, our people who can't underestand and are afraid because if that preson can die at the age of 20 persay so can they and that scares people and they say stupid stuff, try not to get too upset with it, holding such pain will only pull you down and make you angry and bitter... i hope things began to ease up for you your pain is real and you have a right to have these feelings
 

anonymous

New member
I don't think you are being a scrooge, CF is a very hard Disease to deal with! and people continue to lose there life to it everyday and it all seems so unfair when we lose them!!! i am a mother of 2 CF children and the thought of my children dying before me makes me ILL, but i do believe in God and believe he can save us spiritly and help us deal with everyday life and even deal with the Illness, however God promises eternal life with him if we choose to follow him but he does not promise us that we will not die at a young age!!! and does not promise us a easy life.. people who make bad remarks such as that person didn't care enough or didn't have God in there lifes or not enough faith, our people who can't underestand and are afraid because if that preson can die at the age of 20 persay so can they and that scares people and they say stupid stuff, try not to get too upset with it, holding such pain will only pull you down and make you angry and bitter... i hope things began to ease up for you your pain is real and you have a right to have these feelings
 

anonymous

New member
a book I'd like to read
<a target=new class=ftalternatingbarlinklarge href="http://www.amazon.com/gp/product/0973806400/ref=sib_rdr_dp/104-6737304-7892768?me=ATVPDKIKX0DER&no=283155&st=books&n=283155
">http://www.amazon.com/gp/product/0973806400/ref=sib_rdr_dp/104-6737304-7892768?me=ATVPDKIKX0DER&no=283155&st=books&n=283155
</a>
 

anonymous

New member
a book I'd like to read
<a target=new class=ftalternatingbarlinklarge href="http://www.amazon.com/gp/product/0973806400/ref=sib_rdr_dp/104-6737304-7892768?me=ATVPDKIKX0DER&no=283155&st=books&n=283155
">http://www.amazon.com/gp/product/0973806400/ref=sib_rdr_dp/104-6737304-7892768?me=ATVPDKIKX0DER&no=283155&st=books&n=283155
</a>
 

Landy

New member
Emily
I have to add my 2 cents here (when don't I?-lol). This is also a perfect time when I miss Winace's reply, he would have plenty to say about this! I mean that in a most respectful way.
I do not believe that if you die it was because you didn't believe in God/Jesus and I hope I have never came across that way to you or anyone else previously.
I do try to keep a positive attitude and part of that is because as I've stated before, I think God has His plan for me so I try to just trust in that plan & do the best to take care of myself and let God do the rest. This has helped me personally to not get so stressed about my future. Not to say that I don't have my moments, I think we all do. And of course, I respect your decision to not believe.
As we all know, there are studies done that claim just about everything, and I'm sure you've heard the claims that people that have positive attitudes do better than others that tend to see the glass as half empty.
Who knows if that's true but like Luke mentioned I would think someone that dwells on being sick and feels like "poor me" all the time may have a harder time mustering up will power to fight something off than someone that has the "this sucks, but I'm going to try to kick butt" attitude. Maybe that wasn't a good example, it's all I could come up with at this time.<img src="i/expressions/face-icon-small-confused.gif" border="0">

edited to add: Of course I know that we will all have our time to go, I'm not saying that someone died because of their attitude either. Like someone else said, this is a tricky question to tackle.
 

Landy

New member
Emily
I have to add my 2 cents here (when don't I?-lol). This is also a perfect time when I miss Winace's reply, he would have plenty to say about this! I mean that in a most respectful way.
I do not believe that if you die it was because you didn't believe in God/Jesus and I hope I have never came across that way to you or anyone else previously.
I do try to keep a positive attitude and part of that is because as I've stated before, I think God has His plan for me so I try to just trust in that plan & do the best to take care of myself and let God do the rest. This has helped me personally to not get so stressed about my future. Not to say that I don't have my moments, I think we all do. And of course, I respect your decision to not believe.
As we all know, there are studies done that claim just about everything, and I'm sure you've heard the claims that people that have positive attitudes do better than others that tend to see the glass as half empty.
Who knows if that's true but like Luke mentioned I would think someone that dwells on being sick and feels like "poor me" all the time may have a harder time mustering up will power to fight something off than someone that has the "this sucks, but I'm going to try to kick butt" attitude. Maybe that wasn't a good example, it's all I could come up with at this time.<img src="i/expressions/face-icon-small-confused.gif" border="0">

edited to add: Of course I know that we will all have our time to go, I'm not saying that someone died because of their attitude either. Like someone else said, this is a tricky question to tackle.
 

thelizardqueen

New member
Wow - that's a tricky question. I personally am Agnostic. I don't believe that God will save me, that I should "believe in God", and everything will be alright. I believe that to survive the life of CF is to have a positive attitude. Not so much a positive attitude that yes, there will be a cure in my lifetime, but a positive attitude of taking care of myself. If I do my treatments, take my medications, don't go to smoky environments, don't do anything that would be detremental to my health, then I will sustain myself a bit longer. At the same time, CF is a roll of a dice. Some of us are lucky enough to get a rare mutations, where we manage to live longer then others, because we are slowly affected more then others.

A lot of how we live is also based on our mental state I think. If we are continually depressed about having this disease, we are not going to take as great a care of ourselfs. Its a proven fact that people who suffer from depression live somewhat shortened life spans. Its all about having hope, trying to keep happy, and honestly doing all you can to maintain your lifespan. That's not to say that people who have died young have not done these things - this is where mutations come into effect, as well as bugs like Cepacia.
 

thelizardqueen

New member
Wow - that's a tricky question. I personally am Agnostic. I don't believe that God will save me, that I should "believe in God", and everything will be alright. I believe that to survive the life of CF is to have a positive attitude. Not so much a positive attitude that yes, there will be a cure in my lifetime, but a positive attitude of taking care of myself. If I do my treatments, take my medications, don't go to smoky environments, don't do anything that would be detremental to my health, then I will sustain myself a bit longer. At the same time, CF is a roll of a dice. Some of us are lucky enough to get a rare mutations, where we manage to live longer then others, because we are slowly affected more then others.

A lot of how we live is also based on our mental state I think. If we are continually depressed about having this disease, we are not going to take as great a care of ourselfs. Its a proven fact that people who suffer from depression live somewhat shortened life spans. Its all about having hope, trying to keep happy, and honestly doing all you can to maintain your lifespan. That's not to say that people who have died young have not done these things - this is where mutations come into effect, as well as bugs like Cepacia.
 

EnergyGal

New member
"As we all know, there are studies done that claim just about everything, and I'm sure you've heard the claims that people that have positive attitudes do better than others that tend to see the glass as half empty.
Who knows if that's true but like Luke mentioned I would think someone that dwells on being sick and feels like "poor me" all the time may have a harder time mustering up will power to fight something off than someone that has the "this sucks, but I'm going to try to kick butt" attitude."

I feel the same way Lynda. I have learned not to let what others say influence me. I try hard to not react to what they say. If they mean well and have good intentions even though their choice of wording stinks, I say to myself consider the source from that statement and appreciate what the person is saying. Not everyone is born with a disease to fully understand what we go through. Not everyone is trained on how to talk to people who have illnesses. I find that getting angry over words are very unhealthy and most people have no clue what to say so if they say anything that means they care and are trying their best. I try not to correct them.

People would say you are a fighter, you are strong etc...I take it all as a compliment. I just hope if they go through a tough time one day that they have half the strength that people with cF have. I do believe that taking good care of yourself overall will improve your health and a person with CF might get over illnesses faster but they still have a disease and until a good control is found cf is cF.

Risa
 

EnergyGal

New member
"As we all know, there are studies done that claim just about everything, and I'm sure you've heard the claims that people that have positive attitudes do better than others that tend to see the glass as half empty.
Who knows if that's true but like Luke mentioned I would think someone that dwells on being sick and feels like "poor me" all the time may have a harder time mustering up will power to fight something off than someone that has the "this sucks, but I'm going to try to kick butt" attitude."

I feel the same way Lynda. I have learned not to let what others say influence me. I try hard to not react to what they say. If they mean well and have good intentions even though their choice of wording stinks, I say to myself consider the source from that statement and appreciate what the person is saying. Not everyone is born with a disease to fully understand what we go through. Not everyone is trained on how to talk to people who have illnesses. I find that getting angry over words are very unhealthy and most people have no clue what to say so if they say anything that means they care and are trying their best. I try not to correct them.

People would say you are a fighter, you are strong etc...I take it all as a compliment. I just hope if they go through a tough time one day that they have half the strength that people with cF have. I do believe that taking good care of yourself overall will improve your health and a person with CF might get over illnesses faster but they still have a disease and until a good control is found cf is cF.

Risa
 

Emily65Roses

New member
<blockquote>Quote
<hr><i>Originally posted by: <b>coltsfan715</b></i>
(at least I hope that is the truth - cause I am looking forward to hanging around my family when my time comes - lol I have already told them to be prepared)
<hr></blockquote>
I love that... hahaha. And I totally agree. I'm a giant neat freak, and Mike's a slob. So I already told him that after I die, I'm going to come back and neaten the bed sheets, and straighten couch cushions and stuff. He said that was a bad thing to tell him, because then he'd be <i>more</i> of a slob on purpose. lol

<blockquote>Quote
<hr><i>Originally posted by: <b>luke</b></i>
Do I think that positive attitude and faith plays a very important part in our disease, yes. Do I think that lack of these things cause an early death, it could. <hr></blockquote>
I actually see what you mean. If you're completely negative, and don't care about anything, that can kill you because you just don't care. I suppose I should've been a little broader. I'm not a faithful person, and I'm not particularly positive either. <u>But</u> I do have something to live for, and that's what'll keep me going when it really sucks. You don't need any specific type of thing to keep you going. No god, no positive outlook, no faith... just as long as you have <b>something</b> that makes you want to stick around and fight as long as possible.


<blockquote>Quote
<hr><i>Originally posted by: <b>lynda</b></i>
This is also a perfect time when I miss Winace's reply, he would have plenty to say about this! I mean that in a most respectful way.<hr></blockquote>
Oh my god... Allie said something to me last night on this subject, that I was sure was going to make me piss my pants. "You know Allan, if he got up to heaven and met god himself, I believe he would stand there and try to explain to god's face why he wasn't real." Sooooooooo funny. I can just see it happening too. lol

<blockquote>Quote
<hr><i>Originally posted by: <b>risa</b></i>
I have learned not to let what others say influence me. I try hard to not react to what they say. If they mean well and have good intentions even though their choice of wording stinks, I say to myself consider the source from that statement and appreciate what the person is saying.<hr></blockquote>
I do the same. As long as someone means well, I let it slide. Or, if they say something incorrect with kind intentions, I'll thank them and then sometimes correct the piece they had wrong, politely, of course. I always try to consider the intentions, because a lot of people just don't know. All I meant was people around here, people like us, that do know and say that stuff. That drives me up a damn wall, because unless it's clear that they're not blaming dead CFers, it sounds like they are. If that makes sense.

<blockquote>Quote
<hr><i>Originally posted by: <b>anonymous - lisav</b></i>
And others like to think that there's more under the control of the ill person (or under their control if they are a loved one) than is. It's a way of distancing ourselves from our own mortality. We can think "well, maybe he died young, but that because he didn't do x or y or z. Even though I have the CF (or whatever), I won't die young because I WILL or DO do x or y or z." It's a kind of "blame the victim" thing as a way of avoiding looking at the truth - which is that there is less under our control than we would like.<hr></blockquote>
This actually makes a whole lot of sense. But it still sucks. And whether or not you're willing to face your own mortality doesn't give you the right to put the blame on a CFer themselves for not having done X, Y, or Z. I certainly understand what you're saying... I just don't like it.

Thanks for replying everyone. And this thread went a lot more civilly than Allie and I feared it might. Hahaha. <img src="i/expressions/rose.gif" border="0">
 

Emily65Roses

New member
<blockquote>Quote
<hr><i>Originally posted by: <b>coltsfan715</b></i>
(at least I hope that is the truth - cause I am looking forward to hanging around my family when my time comes - lol I have already told them to be prepared)
<hr></blockquote>
I love that... hahaha. And I totally agree. I'm a giant neat freak, and Mike's a slob. So I already told him that after I die, I'm going to come back and neaten the bed sheets, and straighten couch cushions and stuff. He said that was a bad thing to tell him, because then he'd be <i>more</i> of a slob on purpose. lol

<blockquote>Quote
<hr><i>Originally posted by: <b>luke</b></i>
Do I think that positive attitude and faith plays a very important part in our disease, yes. Do I think that lack of these things cause an early death, it could. <hr></blockquote>
I actually see what you mean. If you're completely negative, and don't care about anything, that can kill you because you just don't care. I suppose I should've been a little broader. I'm not a faithful person, and I'm not particularly positive either. <u>But</u> I do have something to live for, and that's what'll keep me going when it really sucks. You don't need any specific type of thing to keep you going. No god, no positive outlook, no faith... just as long as you have <b>something</b> that makes you want to stick around and fight as long as possible.


<blockquote>Quote
<hr><i>Originally posted by: <b>lynda</b></i>
This is also a perfect time when I miss Winace's reply, he would have plenty to say about this! I mean that in a most respectful way.<hr></blockquote>
Oh my god... Allie said something to me last night on this subject, that I was sure was going to make me piss my pants. "You know Allan, if he got up to heaven and met god himself, I believe he would stand there and try to explain to god's face why he wasn't real." Sooooooooo funny. I can just see it happening too. lol

<blockquote>Quote
<hr><i>Originally posted by: <b>risa</b></i>
I have learned not to let what others say influence me. I try hard to not react to what they say. If they mean well and have good intentions even though their choice of wording stinks, I say to myself consider the source from that statement and appreciate what the person is saying.<hr></blockquote>
I do the same. As long as someone means well, I let it slide. Or, if they say something incorrect with kind intentions, I'll thank them and then sometimes correct the piece they had wrong, politely, of course. I always try to consider the intentions, because a lot of people just don't know. All I meant was people around here, people like us, that do know and say that stuff. That drives me up a damn wall, because unless it's clear that they're not blaming dead CFers, it sounds like they are. If that makes sense.

<blockquote>Quote
<hr><i>Originally posted by: <b>anonymous - lisav</b></i>
And others like to think that there's more under the control of the ill person (or under their control if they are a loved one) than is. It's a way of distancing ourselves from our own mortality. We can think "well, maybe he died young, but that because he didn't do x or y or z. Even though I have the CF (or whatever), I won't die young because I WILL or DO do x or y or z." It's a kind of "blame the victim" thing as a way of avoiding looking at the truth - which is that there is less under our control than we would like.<hr></blockquote>
This actually makes a whole lot of sense. But it still sucks. And whether or not you're willing to face your own mortality doesn't give you the right to put the blame on a CFer themselves for not having done X, Y, or Z. I certainly understand what you're saying... I just don't like it.

Thanks for replying everyone. And this thread went a lot more civilly than Allie and I feared it might. Hahaha. <img src="i/expressions/rose.gif" border="0">
 

thelizardqueen

New member
<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i><br>Message for the Lizard Queen. How old were you when you found out you had CF?



Charlotte<hr></blockquote>


6 Weeks of age I was diagnosed at. My mum told me when I was 4. Why's that?
 

thelizardqueen

New member
<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i><br>Message for the Lizard Queen. How old were you when you found out you had CF?



Charlotte<hr></blockquote>


6 Weeks of age I was diagnosed at. My mum told me when I was 4. Why's that?
 

anonymous

New member
it does just suck, doesn't it.
"understanding" why someone says something crappy doesn't make it any easier to hear...
-lisav
 

anonymous

New member
it does just suck, doesn't it.
"understanding" why someone says something crappy doesn't make it any easier to hear...
-lisav
 
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