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Josh's pancrease is no longer producing insuline......

dasjsmum

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CFkitty</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ShannonB</b></i>



So today we found out that Josh's pancrease is failing. It is no longer working to help with the insuline. his blood sugars are all over reaching 700.....they r talking taking it out. Has anyone had any experience with this. We r bothvery worried.</end quote></div>



<b>Let me first ask - are his sugars getting to 700 WITH insulin?</b> He should be taking a short-acting insulin (such as Novolog or Humalog) in addition to Lantus (long-acting). It doesn't make a lot of sense. Interesting that the doctors are discussing taking the Pancreas out because of diabetes. I have heard of transplanting islet cells (google that for more info).



What did the doctors actually say? Did they give reasons, statistics or evidence as to the benefit of removing the pancreas? I've been diabetic for years and have never heard of this.



I have chronic pancreatitis that causes pain every day, that worsens with eating any type of food. I begged my gastroenterologists (two of the top in the country, one in Boston and one at Yale) to take my pancreas out, but they said that removing part or all of the pancreas is rarely done except in cases of cancer, citing the risks of - get this - pancreatic insufficiency and diabetes, both of which I have.



I would ask for specifics. That way, we can try to speak to clinical information.</end quote></div>

Hi

so sorry this is happeninng on top of everything else <img src="i/expressions/face-icon-small-sad.gif" border="0"> I second kitty, sounds like they're not managing his diabetes well.

He's on long acting, (Lantus) which sort of covers you 24 hrs, but doesnt deal with high related to food intake.

So, he needs to be on 'short acting' insulin, which is taken before meals.

My son has cf, is on enzymes, and has type 1 diabetes, which is worse then cfrd (as far as the pancreatic ability to produce insulin is concerned).

NO ONE has mentioned removing his pancreas....seems really bizarre to me.

Hope things improve for you and Josh...try not to let it get you down too much...thinking of you both <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

dasjsmum

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CFkitty</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ShannonB</b></i>



So today we found out that Josh's pancrease is failing. It is no longer working to help with the insuline. his blood sugars are all over reaching 700.....they r talking taking it out. Has anyone had any experience with this. We r bothvery worried.</end quote></div>



<b>Let me first ask - are his sugars getting to 700 WITH insulin?</b> He should be taking a short-acting insulin (such as Novolog or Humalog) in addition to Lantus (long-acting). It doesn't make a lot of sense. Interesting that the doctors are discussing taking the Pancreas out because of diabetes. I have heard of transplanting islet cells (google that for more info).



What did the doctors actually say? Did they give reasons, statistics or evidence as to the benefit of removing the pancreas? I've been diabetic for years and have never heard of this.



I have chronic pancreatitis that causes pain every day, that worsens with eating any type of food. I begged my gastroenterologists (two of the top in the country, one in Boston and one at Yale) to take my pancreas out, but they said that removing part or all of the pancreas is rarely done except in cases of cancer, citing the risks of - get this - pancreatic insufficiency and diabetes, both of which I have.



I would ask for specifics. That way, we can try to speak to clinical information.</end quote></div>

Hi

so sorry this is happeninng on top of everything else <img src="i/expressions/face-icon-small-sad.gif" border="0"> I second kitty, sounds like they're not managing his diabetes well.

He's on long acting, (Lantus) which sort of covers you 24 hrs, but doesnt deal with high related to food intake.

So, he needs to be on 'short acting' insulin, which is taken before meals.

My son has cf, is on enzymes, and has type 1 diabetes, which is worse then cfrd (as far as the pancreatic ability to produce insulin is concerned).

NO ONE has mentioned removing his pancreas....seems really bizarre to me.

Hope things improve for you and Josh...try not to let it get you down too much...thinking of you both <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

dasjsmum

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CFkitty</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ShannonB</b></i>



So today we found out that Josh's pancrease is failing. It is no longer working to help with the insuline. his blood sugars are all over reaching 700.....they r talking taking it out. Has anyone had any experience with this. We r bothvery worried.</end quote></div>



<b>Let me first ask - are his sugars getting to 700 WITH insulin?</b> He should be taking a short-acting insulin (such as Novolog or Humalog) in addition to Lantus (long-acting). It doesn't make a lot of sense. Interesting that the doctors are discussing taking the Pancreas out because of diabetes. I have heard of transplanting islet cells (google that for more info).



What did the doctors actually say? Did they give reasons, statistics or evidence as to the benefit of removing the pancreas? I've been diabetic for years and have never heard of this.



I have chronic pancreatitis that causes pain every day, that worsens with eating any type of food. I begged my gastroenterologists (two of the top in the country, one in Boston and one at Yale) to take my pancreas out, but they said that removing part or all of the pancreas is rarely done except in cases of cancer, citing the risks of - get this - pancreatic insufficiency and diabetes, both of which I have.



I would ask for specifics. That way, we can try to speak to clinical information.</end quote></div>

Hi

so sorry this is happeninng on top of everything else <img src="i/expressions/face-icon-small-sad.gif" border="0"> I second kitty, sounds like they're not managing his diabetes well.

He's on long acting, (Lantus) which sort of covers you 24 hrs, but doesnt deal with high related to food intake.

So, he needs to be on 'short acting' insulin, which is taken before meals.

My son has cf, is on enzymes, and has type 1 diabetes, which is worse then cfrd (as far as the pancreatic ability to produce insulin is concerned).

NO ONE has mentioned removing his pancreas....seems really bizarre to me.

Hope things improve for you and Josh...try not to let it get you down too much...thinking of you both <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

dasjsmum

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CFkitty</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ShannonB</b></i>



So today we found out that Josh's pancrease is failing. It is no longer working to help with the insuline. his blood sugars are all over reaching 700.....they r talking taking it out. Has anyone had any experience with this. We r bothvery worried.</end quote>



<b>Let me first ask - are his sugars getting to 700 WITH insulin?</b> He should be taking a short-acting insulin (such as Novolog or Humalog) in addition to Lantus (long-acting). It doesn't make a lot of sense. Interesting that the doctors are discussing taking the Pancreas out because of diabetes. I have heard of transplanting islet cells (google that for more info).



What did the doctors actually say? Did they give reasons, statistics or evidence as to the benefit of removing the pancreas? I've been diabetic for years and have never heard of this.



I have chronic pancreatitis that causes pain every day, that worsens with eating any type of food. I begged my gastroenterologists (two of the top in the country, one in Boston and one at Yale) to take my pancreas out, but they said that removing part or all of the pancreas is rarely done except in cases of cancer, citing the risks of - get this - pancreatic insufficiency and diabetes, both of which I have.



I would ask for specifics. That way, we can try to speak to clinical information.</end quote>

Hi

so sorry this is happeninng on top of everything else <img src="i/expressions/face-icon-small-sad.gif" border="0"> I second kitty, sounds like they're not managing his diabetes well.

He's on long acting, (Lantus) which sort of covers you 24 hrs, but doesnt deal with high related to food intake.

So, he needs to be on 'short acting' insulin, which is taken before meals.

My son has cf, is on enzymes, and has type 1 diabetes, which is worse then cfrd (as far as the pancreatic ability to produce insulin is concerned).

NO ONE has mentioned removing his pancreas....seems really bizarre to me.

Hope things improve for you and Josh...try not to let it get you down too much...thinking of you both <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

dasjsmum

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CFkitty</b></i>
<br />
<br /><div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ShannonB</b></i>
<br />
<br />
<br />
<br />So today we found out that Josh's pancrease is failing. It is no longer working to help with the insuline. his blood sugars are all over reaching 700.....they r talking taking it out. Has anyone had any experience with this. We r bothvery worried.</end quote>
<br />
<br />
<br />
<br /><b>Let me first ask - are his sugars getting to 700 WITH insulin?</b> He should be taking a short-acting insulin (such as Novolog or Humalog) in addition to Lantus (long-acting). It doesn't make a lot of sense. Interesting that the doctors are discussing taking the Pancreas out because of diabetes. I have heard of transplanting islet cells (google that for more info).
<br />
<br />
<br />
<br />What did the doctors actually say? Did they give reasons, statistics or evidence as to the benefit of removing the pancreas? I've been diabetic for years and have never heard of this.
<br />
<br />
<br />
<br />I have chronic pancreatitis that causes pain every day, that worsens with eating any type of food. I begged my gastroenterologists (two of the top in the country, one in Boston and one at Yale) to take my pancreas out, but they said that removing part or all of the pancreas is rarely done except in cases of cancer, citing the risks of - get this - pancreatic insufficiency and diabetes, both of which I have.
<br />
<br />
<br />
<br />I would ask for specifics. That way, we can try to speak to clinical information.</end quote>
<br />
<br />Hi
<br />
<br />so sorry this is happeninng on top of everything else <img src="i/expressions/face-icon-small-sad.gif" border="0"> I second kitty, sounds like they're not managing his diabetes well.
<br />
<br />He's on long acting, (Lantus) which sort of covers you 24 hrs, but doesnt deal with high related to food intake.
<br />
<br />So, he needs to be on 'short acting' insulin, which is taken before meals.
<br />
<br />My son has cf, is on enzymes, and has type 1 diabetes, which is worse then cfrd (as far as the pancreatic ability to produce insulin is concerned).
<br />
<br />NO ONE has mentioned removing his pancreas....seems really bizarre to me.
<br />
<br />Hope things improve for you and Josh...try not to let it get you down too much...thinking of you both <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
A

Aspiemom

Guest
I have no advice but wanted to say I'm so sorry to hear this. I know it's very discouraging and I hope they get things under control soon.
 
A

Aspiemom

Guest
I have no advice but wanted to say I'm so sorry to hear this. I know it's very discouraging and I hope they get things under control soon.
 
A

Aspiemom

Guest
I have no advice but wanted to say I'm so sorry to hear this. I know it's very discouraging and I hope they get things under control soon.
 
A

Aspiemom

Guest
I have no advice but wanted to say I'm so sorry to hear this. I know it's very discouraging and I hope they get things under control soon.
 
A

Aspiemom

Guest
I have no advice but wanted to say I'm so sorry to hear this. I know it's very discouraging and I hope they get things under control soon.
 

ShannonB

New member
ok so I don't know if Josh was hearing wrong or if they wern't clear...they r not going to take it out. ;o] I have a hard time finding stuff out because I can't be there a lot. So now the plan is they r trying to get the blood sugars under control, they r giving him both long and short acting insuline, lantice and I'm not sure of the other short one. I know they r having trouble getting a dose that is right his sugars are up and down so bad. He feels like crap. they were saying he could get out tomorrow but now with this he has to stay till it's under better control, friday will be 3 weeks in. and without seeing the kids. And on top of everything he started coughing up blood again this morning. UGH but we'll beat this too and we are praying he is home by Thanksgiving which is also my daughters birthday. thanks everyone for the positive thoughts and prayer,
 

ShannonB

New member
ok so I don't know if Josh was hearing wrong or if they wern't clear...they r not going to take it out. ;o] I have a hard time finding stuff out because I can't be there a lot. So now the plan is they r trying to get the blood sugars under control, they r giving him both long and short acting insuline, lantice and I'm not sure of the other short one. I know they r having trouble getting a dose that is right his sugars are up and down so bad. He feels like crap. they were saying he could get out tomorrow but now with this he has to stay till it's under better control, friday will be 3 weeks in. and without seeing the kids. And on top of everything he started coughing up blood again this morning. UGH but we'll beat this too and we are praying he is home by Thanksgiving which is also my daughters birthday. thanks everyone for the positive thoughts and prayer,
 

ShannonB

New member
ok so I don't know if Josh was hearing wrong or if they wern't clear...they r not going to take it out. ;o] I have a hard time finding stuff out because I can't be there a lot. So now the plan is they r trying to get the blood sugars under control, they r giving him both long and short acting insuline, lantice and I'm not sure of the other short one. I know they r having trouble getting a dose that is right his sugars are up and down so bad. He feels like crap. they were saying he could get out tomorrow but now with this he has to stay till it's under better control, friday will be 3 weeks in. and without seeing the kids. And on top of everything he started coughing up blood again this morning. UGH but we'll beat this too and we are praying he is home by Thanksgiving which is also my daughters birthday. thanks everyone for the positive thoughts and prayer,
 

ShannonB

New member
ok so I don't know if Josh was hearing wrong or if they wern't clear...they r not going to take it out. ;o] I have a hard time finding stuff out because I can't be there a lot. So now the plan is they r trying to get the blood sugars under control, they r giving him both long and short acting insuline, lantice and I'm not sure of the other short one. I know they r having trouble getting a dose that is right his sugars are up and down so bad. He feels like crap. they were saying he could get out tomorrow but now with this he has to stay till it's under better control, friday will be 3 weeks in. and without seeing the kids. And on top of everything he started coughing up blood again this morning. UGH but we'll beat this too and we are praying he is home by Thanksgiving which is also my daughters birthday. thanks everyone for the positive thoughts and prayer,
 

ShannonB

New member
ok so I don't know if Josh was hearing wrong or if they wern't clear...they r not going to take it out. ;o] I have a hard time finding stuff out because I can't be there a lot. So now the plan is they r trying to get the blood sugars under control, they r giving him both long and short acting insuline, lantice and I'm not sure of the other short one. I know they r having trouble getting a dose that is right his sugars are up and down so bad. He feels like crap. they were saying he could get out tomorrow but now with this he has to stay till it's under better control, friday will be 3 weeks in. and without seeing the kids. And on top of everything he started coughing up blood again this morning. UGH but we'll beat this too and we are praying he is home by Thanksgiving which is also my daughters birthday. thanks everyone for the positive thoughts and prayer,
 
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