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just not sure....

L

ladybug

New member
Hey, everyone.

So, with our move a couple months ago, my FEV1 dropped about 5%. I also had my first true hemoptysis. My new docs think its all related to the dust and inflammation kicked up by unpacking, stress, etc.

Yesterday, I saw the lowest FEV1 ever. It had lowered another 3% and it was HARD to do the pft. I felt like I'd pass out when doing it. Urgh.

I have noticed lately (like over the past week or two) that I've been really "burpy" even with my 4 times a day rx acid blockers.

I have noticed also since moving here, I cannot cough anything up and when I do, its often fairly watery and not thick and yucky. I don't even cough stuff out when I laugh! (this is very odd for me). I mentioned all this to the doc yesterday and she was very adamant that it doesn't sound like an exacerbation, but instead some serious GI issues causing inflammation and reflux, thereby causing much lower pfts.

Has anyone else been told this? Or, has anyone else had major dips in their FEV1 based on reflux alone? I honestly felt super burpy when I was doing the pft, so wouldn't doubt it had SOME effect, but lowering it 8% since getting here two months ago is a huge disappointment to me.

I don't feel terrible. I feel tired and a little sob and can't jog nearly as far as I used to, but all in all, I was shocked beyond belief when I saw my numbers yesterday. I don't think I'm having fevers, but have been taking tylenol for a bum back, so can't be positive.

Anyway, just curious if anyone thinks this is odd to NOT treat with abx with such a huge slide in FEV1 and instead start looking at other things like reflux as a possible culprit? I don't want to loose lung function or scar my lungs cause I don't do IV abx, but also want to get to the bottom of the TRUE cause if it really is reflux.

Urgghhh.... I'm just soooo stressed and depressed about this all.

Thanks, guys....
 
L

ladybug

New member
Hey, everyone.

So, with our move a couple months ago, my FEV1 dropped about 5%. I also had my first true hemoptysis. My new docs think its all related to the dust and inflammation kicked up by unpacking, stress, etc.

Yesterday, I saw the lowest FEV1 ever. It had lowered another 3% and it was HARD to do the pft. I felt like I'd pass out when doing it. Urgh.

I have noticed lately (like over the past week or two) that I've been really "burpy" even with my 4 times a day rx acid blockers.

I have noticed also since moving here, I cannot cough anything up and when I do, its often fairly watery and not thick and yucky. I don't even cough stuff out when I laugh! (this is very odd for me). I mentioned all this to the doc yesterday and she was very adamant that it doesn't sound like an exacerbation, but instead some serious GI issues causing inflammation and reflux, thereby causing much lower pfts.

Has anyone else been told this? Or, has anyone else had major dips in their FEV1 based on reflux alone? I honestly felt super burpy when I was doing the pft, so wouldn't doubt it had SOME effect, but lowering it 8% since getting here two months ago is a huge disappointment to me.

I don't feel terrible. I feel tired and a little sob and can't jog nearly as far as I used to, but all in all, I was shocked beyond belief when I saw my numbers yesterday. I don't think I'm having fevers, but have been taking tylenol for a bum back, so can't be positive.

Anyway, just curious if anyone thinks this is odd to NOT treat with abx with such a huge slide in FEV1 and instead start looking at other things like reflux as a possible culprit? I don't want to loose lung function or scar my lungs cause I don't do IV abx, but also want to get to the bottom of the TRUE cause if it really is reflux.

Urgghhh.... I'm just soooo stressed and depressed about this all.

Thanks, guys....
 
L

ladybug

New member
Hey, everyone.

So, with our move a couple months ago, my FEV1 dropped about 5%. I also had my first true hemoptysis. My new docs think its all related to the dust and inflammation kicked up by unpacking, stress, etc.

Yesterday, I saw the lowest FEV1 ever. It had lowered another 3% and it was HARD to do the pft. I felt like I'd pass out when doing it. Urgh.

I have noticed lately (like over the past week or two) that I've been really "burpy" even with my 4 times a day rx acid blockers.

I have noticed also since moving here, I cannot cough anything up and when I do, its often fairly watery and not thick and yucky. I don't even cough stuff out when I laugh! (this is very odd for me). I mentioned all this to the doc yesterday and she was very adamant that it doesn't sound like an exacerbation, but instead some serious GI issues causing inflammation and reflux, thereby causing much lower pfts.

Has anyone else been told this? Or, has anyone else had major dips in their FEV1 based on reflux alone? I honestly felt super burpy when I was doing the pft, so wouldn't doubt it had SOME effect, but lowering it 8% since getting here two months ago is a huge disappointment to me.

I don't feel terrible. I feel tired and a little sob and can't jog nearly as far as I used to, but all in all, I was shocked beyond belief when I saw my numbers yesterday. I don't think I'm having fevers, but have been taking tylenol for a bum back, so can't be positive.

Anyway, just curious if anyone thinks this is odd to NOT treat with abx with such a huge slide in FEV1 and instead start looking at other things like reflux as a possible culprit? I don't want to loose lung function or scar my lungs cause I don't do IV abx, but also want to get to the bottom of the TRUE cause if it really is reflux.

Urgghhh.... I'm just soooo stressed and depressed about this all.

Thanks, guys....
 
L

ladybug

New member
Hey, everyone.

So, with our move a couple months ago, my FEV1 dropped about 5%. I also had my first true hemoptysis. My new docs think its all related to the dust and inflammation kicked up by unpacking, stress, etc.

Yesterday, I saw the lowest FEV1 ever. It had lowered another 3% and it was HARD to do the pft. I felt like I'd pass out when doing it. Urgh.

I have noticed lately (like over the past week or two) that I've been really "burpy" even with my 4 times a day rx acid blockers.

I have noticed also since moving here, I cannot cough anything up and when I do, its often fairly watery and not thick and yucky. I don't even cough stuff out when I laugh! (this is very odd for me). I mentioned all this to the doc yesterday and she was very adamant that it doesn't sound like an exacerbation, but instead some serious GI issues causing inflammation and reflux, thereby causing much lower pfts.

Has anyone else been told this? Or, has anyone else had major dips in their FEV1 based on reflux alone? I honestly felt super burpy when I was doing the pft, so wouldn't doubt it had SOME effect, but lowering it 8% since getting here two months ago is a huge disappointment to me.

I don't feel terrible. I feel tired and a little sob and can't jog nearly as far as I used to, but all in all, I was shocked beyond belief when I saw my numbers yesterday. I don't think I'm having fevers, but have been taking tylenol for a bum back, so can't be positive.

Anyway, just curious if anyone thinks this is odd to NOT treat with abx with such a huge slide in FEV1 and instead start looking at other things like reflux as a possible culprit? I don't want to loose lung function or scar my lungs cause I don't do IV abx, but also want to get to the bottom of the TRUE cause if it really is reflux.

Urgghhh.... I'm just soooo stressed and depressed about this all.

Thanks, guys....
 
L

ladybug

New member
Hey, everyone.
<br />
<br />So, with our move a couple months ago, my FEV1 dropped about 5%. I also had my first true hemoptysis. My new docs think its all related to the dust and inflammation kicked up by unpacking, stress, etc.
<br />
<br />Yesterday, I saw the lowest FEV1 ever. It had lowered another 3% and it was HARD to do the pft. I felt like I'd pass out when doing it. Urgh.
<br />
<br />I have noticed lately (like over the past week or two) that I've been really "burpy" even with my 4 times a day rx acid blockers.
<br />
<br />I have noticed also since moving here, I cannot cough anything up and when I do, its often fairly watery and not thick and yucky. I don't even cough stuff out when I laugh! (this is very odd for me). I mentioned all this to the doc yesterday and she was very adamant that it doesn't sound like an exacerbation, but instead some serious GI issues causing inflammation and reflux, thereby causing much lower pfts.
<br />
<br />Has anyone else been told this? Or, has anyone else had major dips in their FEV1 based on reflux alone? I honestly felt super burpy when I was doing the pft, so wouldn't doubt it had SOME effect, but lowering it 8% since getting here two months ago is a huge disappointment to me.
<br />
<br />I don't feel terrible. I feel tired and a little sob and can't jog nearly as far as I used to, but all in all, I was shocked beyond belief when I saw my numbers yesterday. I don't think I'm having fevers, but have been taking tylenol for a bum back, so can't be positive.
<br />
<br />Anyway, just curious if anyone thinks this is odd to NOT treat with abx with such a huge slide in FEV1 and instead start looking at other things like reflux as a possible culprit? I don't want to loose lung function or scar my lungs cause I don't do IV abx, but also want to get to the bottom of the TRUE cause if it really is reflux.
<br />
<br />Urgghhh.... I'm just soooo stressed and depressed about this all.
<br />
<br />Thanks, guys....
 
J

JazzysMom

New member
I also think it sounds like acid issues of some sort.

If I dont take my nexium I can feel it in my lungs. Never by belly, but definitely my lungs~
 
J

JazzysMom

New member
I also think it sounds like acid issues of some sort.

If I dont take my nexium I can feel it in my lungs. Never by belly, but definitely my lungs~
 
J

JazzysMom

New member
I also think it sounds like acid issues of some sort.

If I dont take my nexium I can feel it in my lungs. Never by belly, but definitely my lungs~
 
J

JazzysMom

New member
I also think it sounds like acid issues of some sort.

If I dont take my nexium I can feel it in my lungs. Never by belly, but definitely my lungs~
 
J

JazzysMom

New member
I also think it sounds like acid issues of some sort.
<br />
<br />If I dont take my nexium I can feel it in my lungs. Never by belly, but definitely my lungs~
 
S

saveferris2009

New member
Nocturnal aspiration of gastric juice.

Feel free to read my blog entry about it: <a target=_blank class=ftalternatingbarlinklarge href="http://noexcusesnoexcuses.blogspot.com/search/label/Stanford%20Visit">http://noexcusesnoexcuses.blog...label/Stanford%20Visit</a>
 
S

saveferris2009

New member
Nocturnal aspiration of gastric juice.

Feel free to read my blog entry about it: <a target=_blank class=ftalternatingbarlinklarge href="http://noexcusesnoexcuses.blogspot.com/search/label/Stanford%20Visit">http://noexcusesnoexcuses.blog...label/Stanford%20Visit</a>
 
S

saveferris2009

New member
Nocturnal aspiration of gastric juice.

Feel free to read my blog entry about it: <a target=_blank class=ftalternatingbarlinklarge href="http://noexcusesnoexcuses.blogspot.com/search/label/Stanford%20Visit">http://noexcusesnoexcuses.blog...label/Stanford%20Visit</a>
 
S

saveferris2009

New member
Nocturnal aspiration of gastric juice.

Feel free to read my blog entry about it: <a target=_blank class=ftalternatingbarlinklarge href="http://noexcusesnoexcuses.blogspot.com/search/label/Stanford%20Visit">http://noexcusesnoexcuses.blog...label/Stanford%20Visit</a>
 
S

saveferris2009

New member
Nocturnal aspiration of gastric juice.
<br />
<br />Feel free to read my blog entry about it: <a target=_blank class=ftalternatingbarlinklarge href="http://noexcusesnoexcuses.blogspot.com/search/label/Stanford%20Visit">http://noexcusesnoexcuses.blog...label/Stanford%20Visit</a>
 
L

ladybug

New member
Thanks, Ladies!

I have had the barium about a year ago and they found a heital hernia which may or may not cause problems. They weren't too concerned since the treatment for that is surgery and that can bring its own host of problems.

I've been on the same acid blockers for GERD for years and have not changed anything, so it just seems weird that all of a sudden my meds stop working and all this becomes an issue.

However, isn't it odd that with an exacerbation (if it is/isn't that), there wouldn't be any increase in cough/gunk?? That just completely floors me and makes me think it IS something else. I honestly have not had this minor of a cough for YEARS. But am still sob, exercise intolerance, racing heart, etc. Who knows?!?!

Thanks for the info... Keep the suggestions/ideas coming. I have searched extensively for actual medical research confirming that GERD can lower pfts in people with lung disease and it seems pretty inconclusive.
 
L

ladybug

New member
Thanks, Ladies!

I have had the barium about a year ago and they found a heital hernia which may or may not cause problems. They weren't too concerned since the treatment for that is surgery and that can bring its own host of problems.

I've been on the same acid blockers for GERD for years and have not changed anything, so it just seems weird that all of a sudden my meds stop working and all this becomes an issue.

However, isn't it odd that with an exacerbation (if it is/isn't that), there wouldn't be any increase in cough/gunk?? That just completely floors me and makes me think it IS something else. I honestly have not had this minor of a cough for YEARS. But am still sob, exercise intolerance, racing heart, etc. Who knows?!?!

Thanks for the info... Keep the suggestions/ideas coming. I have searched extensively for actual medical research confirming that GERD can lower pfts in people with lung disease and it seems pretty inconclusive.
 
L

ladybug

New member
Thanks, Ladies!

I have had the barium about a year ago and they found a heital hernia which may or may not cause problems. They weren't too concerned since the treatment for that is surgery and that can bring its own host of problems.

I've been on the same acid blockers for GERD for years and have not changed anything, so it just seems weird that all of a sudden my meds stop working and all this becomes an issue.

However, isn't it odd that with an exacerbation (if it is/isn't that), there wouldn't be any increase in cough/gunk?? That just completely floors me and makes me think it IS something else. I honestly have not had this minor of a cough for YEARS. But am still sob, exercise intolerance, racing heart, etc. Who knows?!?!

Thanks for the info... Keep the suggestions/ideas coming. I have searched extensively for actual medical research confirming that GERD can lower pfts in people with lung disease and it seems pretty inconclusive.
 
L

ladybug

New member
Thanks, Ladies!

I have had the barium about a year ago and they found a heital hernia which may or may not cause problems. They weren't too concerned since the treatment for that is surgery and that can bring its own host of problems.

I've been on the same acid blockers for GERD for years and have not changed anything, so it just seems weird that all of a sudden my meds stop working and all this becomes an issue.

However, isn't it odd that with an exacerbation (if it is/isn't that), there wouldn't be any increase in cough/gunk?? That just completely floors me and makes me think it IS something else. I honestly have not had this minor of a cough for YEARS. But am still sob, exercise intolerance, racing heart, etc. Who knows?!?!

Thanks for the info... Keep the suggestions/ideas coming. I have searched extensively for actual medical research confirming that GERD can lower pfts in people with lung disease and it seems pretty inconclusive.
 
L

ladybug

New member
Thanks, Ladies!
<br />
<br />I have had the barium about a year ago and they found a heital hernia which may or may not cause problems. They weren't too concerned since the treatment for that is surgery and that can bring its own host of problems.
<br />
<br />I've been on the same acid blockers for GERD for years and have not changed anything, so it just seems weird that all of a sudden my meds stop working and all this becomes an issue.
<br />
<br />However, isn't it odd that with an exacerbation (if it is/isn't that), there wouldn't be any increase in cough/gunk?? That just completely floors me and makes me think it IS something else. I honestly have not had this minor of a cough for YEARS. But am still sob, exercise intolerance, racing heart, etc. Who knows?!?!
<br />
<br />Thanks for the info... Keep the suggestions/ideas coming. I have searched extensively for actual medical research confirming that GERD can lower pfts in people with lung disease and it seems pretty inconclusive.
<br />
<br />
 
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