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Lung transplant with 2 living donors

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christyisnutz

Guest
I had a living-related lobar transplant in 2001. I was the 4th patient at Duke to have this done. One of my best friends was the 2nd, and she is still doing great!

I received a lobe from my mom and one from my uncle. Because of my pregnancy, I developed anti-human antibodies that made me incompatible with 96% of the population. They knew they would never find a cadaver match for me, so they went the living donor route. My mom and uncle essentially lost about 18% lung capacity which neither of them notice. They are both doing fine.

I have about 76% lung capacity.. about what you would expect with 2 lobes instead of 2 full lungs. The lobes expand to fill the space, but they don't actually "grow". I guess you could compare them to a balloon that is blown up.

My friend who had this done was running out of time and the docs knew they didn't have time to find a cadaver match for her.. that's why she received living donor lungs (both of her parents were donors). Obviously, they don't like to put donors lives at risk unless they absolutely have to... that's why there aren't more of these done.
 
C

christyisnutz

Guest
I had a living-related lobar transplant in 2001. I was the 4th patient at Duke to have this done. One of my best friends was the 2nd, and she is still doing great!

I received a lobe from my mom and one from my uncle. Because of my pregnancy, I developed anti-human antibodies that made me incompatible with 96% of the population. They knew they would never find a cadaver match for me, so they went the living donor route. My mom and uncle essentially lost about 18% lung capacity which neither of them notice. They are both doing fine.

I have about 76% lung capacity.. about what you would expect with 2 lobes instead of 2 full lungs. The lobes expand to fill the space, but they don't actually "grow". I guess you could compare them to a balloon that is blown up.

My friend who had this done was running out of time and the docs knew they didn't have time to find a cadaver match for her.. that's why she received living donor lungs (both of her parents were donors). Obviously, they don't like to put donors lives at risk unless they absolutely have to... that's why there aren't more of these done.
 
C

christyisnutz

Guest
I had a living-related lobar transplant in 2001. I was the 4th patient at Duke to have this done. One of my best friends was the 2nd, and she is still doing great!

I received a lobe from my mom and one from my uncle. Because of my pregnancy, I developed anti-human antibodies that made me incompatible with 96% of the population. They knew they would never find a cadaver match for me, so they went the living donor route. My mom and uncle essentially lost about 18% lung capacity which neither of them notice. They are both doing fine.

I have about 76% lung capacity.. about what you would expect with 2 lobes instead of 2 full lungs. The lobes expand to fill the space, but they don't actually "grow". I guess you could compare them to a balloon that is blown up.

My friend who had this done was running out of time and the docs knew they didn't have time to find a cadaver match for her.. that's why she received living donor lungs (both of her parents were donors). Obviously, they don't like to put donors lives at risk unless they absolutely have to... that's why there aren't more of these done.
 
C

christyisnutz

Guest
I had a living-related lobar transplant in 2001. I was the 4th patient at Duke to have this done. One of my best friends was the 2nd, and she is still doing great!

I received a lobe from my mom and one from my uncle. Because of my pregnancy, I developed anti-human antibodies that made me incompatible with 96% of the population. They knew they would never find a cadaver match for me, so they went the living donor route. My mom and uncle essentially lost about 18% lung capacity which neither of them notice. They are both doing fine.

I have about 76% lung capacity.. about what you would expect with 2 lobes instead of 2 full lungs. The lobes expand to fill the space, but they don't actually "grow". I guess you could compare them to a balloon that is blown up.

My friend who had this done was running out of time and the docs knew they didn't have time to find a cadaver match for her.. that's why she received living donor lungs (both of her parents were donors). Obviously, they don't like to put donors lives at risk unless they absolutely have to... that's why there aren't more of these done.
 
C

christyisnutz

Guest
<br />I had a living-related lobar transplant in 2001. I was the 4th patient at Duke to have this done. One of my best friends was the 2nd, and she is still doing great!
<br />
<br />I received a lobe from my mom and one from my uncle. Because of my pregnancy, I developed anti-human antibodies that made me incompatible with 96% of the population. They knew they would never find a cadaver match for me, so they went the living donor route. My mom and uncle essentially lost about 18% lung capacity which neither of them notice. They are both doing fine.
<br />
<br />I have about 76% lung capacity.. about what you would expect with 2 lobes instead of 2 full lungs. The lobes expand to fill the space, but they don't actually "grow". I guess you could compare them to a balloon that is blown up.
<br />
<br />My friend who had this done was running out of time and the docs knew they didn't have time to find a cadaver match for her.. that's why she received living donor lungs (both of her parents were donors). Obviously, they don't like to put donors lives at risk unless they absolutely have to... that's why there aren't more of these done.
<br />
<br />
 
L

lightNlife

New member
I've done some investigating about living-lobar transplants. I've talked with my family and said that this is the only type of transplant I would accept. Studies show that there is far less problem of rejection with this type. It's a good option (though still a risky one) for people with cepacia. The post-transplant longevity is also WAY longer than with traditional double-lung transplants. I know 2 girls who had lobar transplants more than a decade ago and have had no problems! One of them is married now and has kids and is doing GREAT!
 
L

lightNlife

New member
I've done some investigating about living-lobar transplants. I've talked with my family and said that this is the only type of transplant I would accept. Studies show that there is far less problem of rejection with this type. It's a good option (though still a risky one) for people with cepacia. The post-transplant longevity is also WAY longer than with traditional double-lung transplants. I know 2 girls who had lobar transplants more than a decade ago and have had no problems! One of them is married now and has kids and is doing GREAT!
 
L

lightNlife

New member
I've done some investigating about living-lobar transplants. I've talked with my family and said that this is the only type of transplant I would accept. Studies show that there is far less problem of rejection with this type. It's a good option (though still a risky one) for people with cepacia. The post-transplant longevity is also WAY longer than with traditional double-lung transplants. I know 2 girls who had lobar transplants more than a decade ago and have had no problems! One of them is married now and has kids and is doing GREAT!
 
L

lightNlife

New member
I've done some investigating about living-lobar transplants. I've talked with my family and said that this is the only type of transplant I would accept. Studies show that there is far less problem of rejection with this type. It's a good option (though still a risky one) for people with cepacia. The post-transplant longevity is also WAY longer than with traditional double-lung transplants. I know 2 girls who had lobar transplants more than a decade ago and have had no problems! One of them is married now and has kids and is doing GREAT!
 
L

lightNlife

New member
I've done some investigating about living-lobar transplants. I've talked with my family and said that this is the only type of transplant I would accept. Studies show that there is far less problem of rejection with this type. It's a good option (though still a risky one) for people with cepacia. The post-transplant longevity is also WAY longer than with traditional double-lung transplants. I know 2 girls who had lobar transplants more than a decade ago and have had no problems! One of them is married now and has kids and is doing GREAT!
<br />
<br />
 
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Emily65Roses

New member
That and... if you get two living donors, you have TWO lungs to worry about rejecting. That is to say, if you get two lungs from the same person, you only have one other person's organs to possibly reject and worry about. If you get two living donors, you have two people's organs... and logic suggests, a better chance for rejection.

I don't have a source for this, so don't quote me at all. But if I remember right, the statistics for two living lobe donors are poorer than they are for one dead donor.

...I just read Lauren's response, so chances are, I'm full of sh*t. But I don't see why two donors would be less rejection than just one. Doesn't seem to make sense?
 
E

Emily65Roses

New member
That and... if you get two living donors, you have TWO lungs to worry about rejecting. That is to say, if you get two lungs from the same person, you only have one other person's organs to possibly reject and worry about. If you get two living donors, you have two people's organs... and logic suggests, a better chance for rejection.

I don't have a source for this, so don't quote me at all. But if I remember right, the statistics for two living lobe donors are poorer than they are for one dead donor.

...I just read Lauren's response, so chances are, I'm full of sh*t. But I don't see why two donors would be less rejection than just one. Doesn't seem to make sense?
 
E

Emily65Roses

New member
That and... if you get two living donors, you have TWO lungs to worry about rejecting. That is to say, if you get two lungs from the same person, you only have one other person's organs to possibly reject and worry about. If you get two living donors, you have two people's organs... and logic suggests, a better chance for rejection.

I don't have a source for this, so don't quote me at all. But if I remember right, the statistics for two living lobe donors are poorer than they are for one dead donor.

...I just read Lauren's response, so chances are, I'm full of sh*t. But I don't see why two donors would be less rejection than just one. Doesn't seem to make sense?
 
E

Emily65Roses

New member
That and... if you get two living donors, you have TWO lungs to worry about rejecting. That is to say, if you get two lungs from the same person, you only have one other person's organs to possibly reject and worry about. If you get two living donors, you have two people's organs... and logic suggests, a better chance for rejection.

I don't have a source for this, so don't quote me at all. But if I remember right, the statistics for two living lobe donors are poorer than they are for one dead donor.

...I just read Lauren's response, so chances are, I'm full of sh*t. But I don't see why two donors would be less rejection than just one. Doesn't seem to make sense?
 
E

Emily65Roses

New member
That and... if you get two living donors, you have TWO lungs to worry about rejecting. That is to say, if you get two lungs from the same person, you only have one other person's organs to possibly reject and worry about. If you get two living donors, you have two people's organs... and logic suggests, a better chance for rejection.
<br />
<br />I don't have a source for this, so don't quote me at all. But if I remember right, the statistics for two living lobe donors are poorer than they are for one dead donor.
<br />
<br />...I just read Lauren's response, so chances are, I'm full of sh*t. But I don't see why two donors would be less rejection than just one. Doesn't seem to make sense?
 
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