Hi,
<br />
<br />Thanks for posting that website. Tamiflu, like a LOT of drugs (especially antivirals), have bad side effects. That's why tamiflu SHOULD not be given freely to the community.
<br />
<br />I work in the pediatric ICU and we have put our immunosuppressed and fragile children on tamiflu as prophylaxis. We've had several healthy (aside from mild asthma in their history) children contract H1N1 (swine flu) and do very poorly (many have died). We have to protect these other children from the risk of getting H1N1. We do give ourselves tamiflu if we have a strong likelihood of being exposed or are currently caring for the H1N1 patients. We don't routinely give staff the meds to give to their children or significant others UNLESS there is a medical reason to do so.
<br />
<br />I haven't seen any of those adverse effects, but then again, the population of those taking tamiflu is large. I think you have to weigh the risks versus benefits. I would not advocate for CF patients taking it UNLESS they were in the hospital for a prolonged period of time during the H1N1 admissions. I didn't even have my sister (who also has CF) take it. I knew to avoid her while I was at risk for contracting or passing on H1N1.
<br />
<br />I took it. I knew I had been in rooms that we were concerned for H1N1 as well as I was in rooms with patients with documented positive results. I had to make sure my health was protected. I would never have just taken it if there was not a reason to.
<br />
<br />So as much as it does have significant adverse effects, it's not a drug that should be "banned" from the CF population. It should be carefully administered as needed for specific reasons. If we looked at adverse effects of all our drugs, a lot of us would want to "ban" these drugs too. Drugs have a purpose in our lives as long as they are used judiciously.
<br />
<br />That's all I have to say

<br />
<br />Jenn
<br />31 yo cf