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My Hubby's Test Was Negative, Yea!

blindhearted

New member
Congratulations Christain! I know that's a relief. My husband got tested and he is not a carrier either.

Emily, my husband got tested not long after we got engaged. We had them test him at my CF clinic (Duke) and they let me know the results in 2-3 weeks (long time to wait). They did file it on his insurance, but since he hadnt met his deductable (sp?) they didnt pay. But they should be able to file Mike's insurance.
 

blindhearted

New member
Congratulations Christain! I know that's a relief. My husband got tested and he is not a carrier either.

Emily, my husband got tested not long after we got engaged. We had them test him at my CF clinic (Duke) and they let me know the results in 2-3 weeks (long time to wait). They did file it on his insurance, but since he hadnt met his deductable (sp?) they didnt pay. But they should be able to file Mike's insurance.
 

mtmonroe

New member
I have CF and my husband is a CARRIER. Our 4 year old daughter DOES NOT have CF. We had 1 out 0f 2 chances of a baby with CF. For us, no more kids. WE are truely blessed.


TRISTA 32 with CF & CFRD
 

mtmonroe

New member
I have CF and my husband is a CARRIER. Our 4 year old daughter DOES NOT have CF. We had 1 out 0f 2 chances of a baby with CF. For us, no more kids. WE are truely blessed.


TRISTA 32 with CF & CFRD
 

anonymous

New member
Thanks for all your words of congratulations and encouragement.
They mean alot to me. No one else seems to understand.

Lauren- Congrats to you on your last birth control pill!!!!!!!! You should have a mini-party on that day. I wish I could go off! I'm so happy that you are able to start your family. Let us know what happens.
To answer your question, I am 23. Seems young, I know, but I am really in my prime health, and most that know me would agree that life experiences have made me a little more mature.
 

anonymous

New member
Thanks for all your words of congratulations and encouragement.
They mean alot to me. No one else seems to understand.

Lauren- Congrats to you on your last birth control pill!!!!!!!! You should have a mini-party on that day. I wish I could go off! I'm so happy that you are able to start your family. Let us know what happens.
To answer your question, I am 23. Seems young, I know, but I am really in my prime health, and most that know me would agree that life experiences have made me a little more mature.
 

anonymous

New member
Thanks for all your words of congratulations and encouragement.
They mean alot to me. No one else seems to understand.

Lauren- Congrats to you on your last birth control pill!!!!!!!! You should have a mini-party on that day. I wish I could go off! I'm so happy that you are able to start your family. Let us know what happens.
To answer your question, I am 23. Seems young, I know, but I am really in my prime health, and most that know me would agree that life experiences have made me a little more mature.
 

anonymous

New member
Thanks for all your words of congratulations and encouragement.
They mean alot to me. No one else seems to understand.

Lauren- Congrats to you on your last birth control pill!!!!!!!! You should have a mini-party on that day. I wish I could go off! I'm so happy that you are able to start your family. Let us know what happens.
To answer your question, I am 23. Seems young, I know, but I am really in my prime health, and most that know me would agree that life experiences have made me a little more mature.
 

anonymous

New member
That last post was me!

I don't know what button I hit, but I wasn't finished!

Anyway, we really didn't receive any guidance with this test. I did alot of research, so I know that technically there are no guarantees. We had to get the test through our primary, and they really didn't know alot about it. I had to basically hold the doctor's hand just to get the right prescription filled for the bloodwork. But, we have an appointment with the genetic counselor at St Vincent's CF center in a few weeks, to talk about the results, any further testing, ect.

Liz, you're such a sweetie! I wish we were closer (and that I didn't have cepacia) so we could hang out! I've been meaning to tell you this, but you look EXACTLY like my sister-in law. When I saw your picture I took a double take. I still can't believe it! Everytime I see it, I forget that it's you and not her.
Anyway, as far as when we'll start trying, I don't know. I still am not 100% sure if we want to try or adopt. To be honest, I really would be equally happy with either, but I know that conceiving would be my husband's first choice. So, I'll do either.

So, here's an interesting update to my ongoing baby troubles!!!!!!!!!

If any of you remember my last few threads, the main problem has been my husband's fears, and his wanting to do all these things before having kids. The issue is, I feel strongly about starting when I'm young and in the best of health, which would be very soon. And he, could easily wait many many years. As of late we have compromised on 2 years.

So, last night when he came home, I told him the results. (I just realized that all of you found out the results before he did-ha!) Anyway, I wanted to try to see how concerned he was with the results, so when he came home, I just said-"so hon, your test results came back.' And I stopped there. And he's like-'and, and?' So, before telling him, I just asked him if he's nervous, would he be dissapointed if he was a carrier..? I gave him a minute to think about it.

Then I told him. A side of him came out that I haven't seen yet! He was so happy, he hugged me. And I tried not to be too overly excited. (I don't want to ever come off as pushing kids on him.) But HE was like-'we need to do this test, and let's test my sperm count and let's do this, call and make this appointment...We need to start renovating the house, b/c I don't want you breathing in construction dust while you're caring for a baby"

I couldn't believe it! It really was true, what many of you said. He just needed time to get used to the idea! He needed to realize on his own how much he wanted it!

He's a guy, so I expect ups and downs of course. So, I'll appreciate any further advice on any aspect of this situation. Many of you have been through this. I'll need all the advice I can get.

Christian
 

anonymous

New member
That last post was me!

I don't know what button I hit, but I wasn't finished!

Anyway, we really didn't receive any guidance with this test. I did alot of research, so I know that technically there are no guarantees. We had to get the test through our primary, and they really didn't know alot about it. I had to basically hold the doctor's hand just to get the right prescription filled for the bloodwork. But, we have an appointment with the genetic counselor at St Vincent's CF center in a few weeks, to talk about the results, any further testing, ect.

Liz, you're such a sweetie! I wish we were closer (and that I didn't have cepacia) so we could hang out! I've been meaning to tell you this, but you look EXACTLY like my sister-in law. When I saw your picture I took a double take. I still can't believe it! Everytime I see it, I forget that it's you and not her.
Anyway, as far as when we'll start trying, I don't know. I still am not 100% sure if we want to try or adopt. To be honest, I really would be equally happy with either, but I know that conceiving would be my husband's first choice. So, I'll do either.

So, here's an interesting update to my ongoing baby troubles!!!!!!!!!

If any of you remember my last few threads, the main problem has been my husband's fears, and his wanting to do all these things before having kids. The issue is, I feel strongly about starting when I'm young and in the best of health, which would be very soon. And he, could easily wait many many years. As of late we have compromised on 2 years.

So, last night when he came home, I told him the results. (I just realized that all of you found out the results before he did-ha!) Anyway, I wanted to try to see how concerned he was with the results, so when he came home, I just said-"so hon, your test results came back.' And I stopped there. And he's like-'and, and?' So, before telling him, I just asked him if he's nervous, would he be dissapointed if he was a carrier..? I gave him a minute to think about it.

Then I told him. A side of him came out that I haven't seen yet! He was so happy, he hugged me. And I tried not to be too overly excited. (I don't want to ever come off as pushing kids on him.) But HE was like-'we need to do this test, and let's test my sperm count and let's do this, call and make this appointment...We need to start renovating the house, b/c I don't want you breathing in construction dust while you're caring for a baby"

I couldn't believe it! It really was true, what many of you said. He just needed time to get used to the idea! He needed to realize on his own how much he wanted it!

He's a guy, so I expect ups and downs of course. So, I'll appreciate any further advice on any aspect of this situation. Many of you have been through this. I'll need all the advice I can get.

Christian
 

thelizardqueen

New member
That's really great for you Christian! I guess all he really did need was time to realize just what he wanted. Him not being a carrier is half the battle right there. Now all you have to do is figure out if you want to try for your own, or adopt. I know my boyfriend and I want to try and have our own first, and seeing as how we want more then one, if I can't have more after, we want to adopt.

ps. Maybe your sister in law is my twin. They say everyone has one! I think you are such an awesome woman, and completly understand your need for children. I've wanted children for as long as I can remember! Not sure if you have msn, but if ever you want to chat or email, here is my address: lizd1981@hotmail.com
 

thelizardqueen

New member
That's really great for you Christian! I guess all he really did need was time to realize just what he wanted. Him not being a carrier is half the battle right there. Now all you have to do is figure out if you want to try for your own, or adopt. I know my boyfriend and I want to try and have our own first, and seeing as how we want more then one, if I can't have more after, we want to adopt.

ps. Maybe your sister in law is my twin. They say everyone has one! I think you are such an awesome woman, and completly understand your need for children. I've wanted children for as long as I can remember! Not sure if you have msn, but if ever you want to chat or email, here is my address: lizd1981@hotmail.com
 

anonymous

New member
Thanks, Liz!

Just a quick question for you (or anyone for that matter). Since you said you're thinking about starting eventually, are you ever afraid about the future? I mean, regardless of what method I use to get kids, I'm starting to feel a little afraid about losing my battle in the future.
I'm not usually like this-never. I don't know what's going on. Seriously, I think that thread on Cepacia is scaring me.
There's still more facts I need to know. I never really knew how much Cepacia complicates CF.

I'm sorry. I'm not trying to be a downer. I never ever feel scared about my disease. Maybe I should stop reading that particular thread? I don't know. I don't want to be ignorant either.

If you, Liz, or any of you ever feel scared about the future, especially partaining to having kids, what do you do to handle it? How do you cope?

Christian
 

anonymous

New member
Thanks, Liz!

Just a quick question for you (or anyone for that matter). Since you said you're thinking about starting eventually, are you ever afraid about the future? I mean, regardless of what method I use to get kids, I'm starting to feel a little afraid about losing my battle in the future.
I'm not usually like this-never. I don't know what's going on. Seriously, I think that thread on Cepacia is scaring me.
There's still more facts I need to know. I never really knew how much Cepacia complicates CF.

I'm sorry. I'm not trying to be a downer. I never ever feel scared about my disease. Maybe I should stop reading that particular thread? I don't know. I don't want to be ignorant either.

If you, Liz, or any of you ever feel scared about the future, especially partaining to having kids, what do you do to handle it? How do you cope?

Christian
 

thelizardqueen

New member
I worry about what pregnancy will do to my health sometimes, but not enough to prevent me. I've heard that with some CF women, pregnancy made them healthier, were as others got sicker afterwards. My CF health is in great shape right now, so I'm not overly concerned about it, but at the same time...

I worry about not seeing my children grow up, go to highschool or even junior high. I worry about not seeing them graduate, have relationships, get married, have kids of their own - all the things that my partner will enjoy, but not me. I worry about when I get sick, and have to explain to my kids about what mummy has, why is she sick, why is she going to hospital all the time, and enivitably why is she dieing? ALl these things I worry about. I also worry about my guy moving on after me and finding someone else, who will enivitably become my children's 'step mother'.

I think that these worries are natural for those of us with CF. We should be thinking about these things before we have kids, so that we know what we're getting into - so that we're prepared for what may happen in the future. But again, who's to say that I won't live to the rip old age of 45? Or even 50 or 60? No one knows the future, or what may happen, but I'm not going to prevent myself from doing the things in life I want (children of my own), because of some 'what if...?'.
 

thelizardqueen

New member
I worry about what pregnancy will do to my health sometimes, but not enough to prevent me. I've heard that with some CF women, pregnancy made them healthier, were as others got sicker afterwards. My CF health is in great shape right now, so I'm not overly concerned about it, but at the same time...

I worry about not seeing my children grow up, go to highschool or even junior high. I worry about not seeing them graduate, have relationships, get married, have kids of their own - all the things that my partner will enjoy, but not me. I worry about when I get sick, and have to explain to my kids about what mummy has, why is she sick, why is she going to hospital all the time, and enivitably why is she dieing? ALl these things I worry about. I also worry about my guy moving on after me and finding someone else, who will enivitably become my children's 'step mother'.

I think that these worries are natural for those of us with CF. We should be thinking about these things before we have kids, so that we know what we're getting into - so that we're prepared for what may happen in the future. But again, who's to say that I won't live to the rip old age of 45? Or even 50 or 60? No one knows the future, or what may happen, but I'm not going to prevent myself from doing the things in life I want (children of my own), because of some 'what if...?'.
 

anonymous

New member
Good thoughts, Liz.

I need to focus on that. We've already talked about the what if-worst case secenario together. And, fortunately, we both have strong families-one of them next door to us, that would be there for us and our kids if something happened.
But I still can't help but go back to being afraid from time to time.

My doctor told me that she has realistically high hopes for increasing the expectant average age to 50+. She said that almost half of her patients now are 40 or older. And she has several patients in their 50s and I think 2 or 3 in their 60s.

That makes me have a little more hope.

That feeling of fear is just not healthy, though. I don't think I'd ever let it stop me. But, it's hard when you feel like you're trying to convince everyone else in your life that everything will be ok, and in your own private self you have doubts.

Christian
 

anonymous

New member
Good thoughts, Liz.

I need to focus on that. We've already talked about the what if-worst case secenario together. And, fortunately, we both have strong families-one of them next door to us, that would be there for us and our kids if something happened.
But I still can't help but go back to being afraid from time to time.

My doctor told me that she has realistically high hopes for increasing the expectant average age to 50+. She said that almost half of her patients now are 40 or older. And she has several patients in their 50s and I think 2 or 3 in their 60s.

That makes me have a little more hope.

That feeling of fear is just not healthy, though. I don't think I'd ever let it stop me. But, it's hard when you feel like you're trying to convince everyone else in your life that everything will be ok, and in your own private self you have doubts.

Christian
 
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