Need help, question about Kaylee and TOBI

[JazzysMom]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>debs2girls</b></i>

I was told we can mix the albuterol and hypertonic saline, do them first...then do the Pulmozyme....wait 15 minutes before ding the Vest or Flutter.</end quote></div>


I, personally, would have a problem doing this. For those like me with highly reactive airways, the HS would over power the albeuterol if mixing them. I could never do that plus I would cough so much from the HS that I dont think I could actually get enough albuterol in me.

Interesting how there are so many ways being "told" to do it.

 

[JazzysMom]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>debs2girls</b></i>

I was told we can mix the albuterol and hypertonic saline, do them first...then do the Pulmozyme....wait 15 minutes before ding the Vest or Flutter.</end quote></div>


I, personally, would have a problem doing this. For those like me with highly reactive airways, the HS would over power the albeuterol if mixing them. I could never do that plus I would cough so much from the HS that I dont think I could actually get enough albuterol in me.

Interesting how there are so many ways being "told" to do it.

 

[JazzysMom]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>debs2girls</b></i>

I was told we can mix the albuterol and hypertonic saline, do them first...then do the Pulmozyme....wait 15 minutes before ding the Vest or Flutter.</end quote></div>


I, personally, would have a problem doing this. For those like me with highly reactive airways, the HS would over power the albeuterol if mixing them. I could never do that plus I would cough so much from the HS that I dont think I could actually get enough albuterol in me.

Interesting how there are so many ways being "told" to do it.

 

[JazzysMom]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>debs2girls</b></i>

I was told we can mix the albuterol and hypertonic saline, do them first...then do the Pulmozyme....wait 15 minutes before ding the Vest or Flutter.</end quote>


I, personally, would have a problem doing this. For those like me with highly reactive airways, the HS would over power the albeuterol if mixing them. I could never do that plus I would cough so much from the HS that I dont think I could actually get enough albuterol in me.

Interesting how there are so many ways being "told" to do it.

 

[JazzysMom]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>debs2girls</b></i>

I was told we can mix the albuterol and hypertonic saline, do them first...then do the Pulmozyme....wait 15 minutes before ding the Vest or Flutter.</end quote>


I, personally, would have a problem doing this. For those like me with highly reactive airways, the HS would over power the albeuterol if mixing them. I could never do that plus I would cough so much from the HS that I dont think I could actually get enough albuterol in me.

Interesting how there are so many ways being "told" to do it.

 

[Mommafirst]

Alyssa's never been on TOBI, but she gets 2 puffs of the albuterol inhaler at the start of each vest treatment as per the doctor.

 

[Mommafirst]

Alyssa's never been on TOBI, but she gets 2 puffs of the albuterol inhaler at the start of each vest treatment as per the doctor.

 

[Mommafirst]

Alyssa's never been on TOBI, but she gets 2 puffs of the albuterol inhaler at the start of each vest treatment as per the doctor.

 

[Mommafirst]

Alyssa's never been on TOBI, but she gets 2 puffs of the albuterol inhaler at the start of each vest treatment as per the doctor.

 

[Mommafirst]

Alyssa's never been on TOBI, but she gets 2 puffs of the albuterol inhaler at the start of each vest treatment as per the doctor.

 

[dbtoo]

Wow, so many variations. Just goes to show that while there may be guidelines, there is no standard. I've often wondered if my docs followed the quidelines or do they just wing it. I'm not a fan of cookie-cutter approaches to life. (Personnaly, I would particularly question a laminated-card - unless it was done in my presense explicitly for me. If it's something they winged at me from the top drawer, it wouldn't make it out of the clinic door. Not saying you should aspiesmom, just that's <u>my </u>way of doing things in life. If it's working well, GREAT !!! )

My personnal belief is you need to figure out what will work for you (kaylee in this case) starting with the recommendation/perscribed, then weighing others experiences on what to do next. I have to recommend to my cf docs anything new for my treatment (stuff I've learned about from this site by the way), they are very reluctant to personalize treatment????

My CF docs, and the RT who does the pulminary functions insist I do things 'wrong'. I'm 50 yrs old, it must not be <i>too </i>wrong! And still, they don't personalize what I should be doing. tsk tsk tsk

Maybe this is why my docs don't like me....?

 

[dbtoo]

Wow, so many variations. Just goes to show that while there may be guidelines, there is no standard. I've often wondered if my docs followed the quidelines or do they just wing it. I'm not a fan of cookie-cutter approaches to life. (Personnaly, I would particularly question a laminated-card - unless it was done in my presense explicitly for me. If it's something they winged at me from the top drawer, it wouldn't make it out of the clinic door. Not saying you should aspiesmom, just that's <u>my </u>way of doing things in life. If it's working well, GREAT !!! )

My personnal belief is you need to figure out what will work for you (kaylee in this case) starting with the recommendation/perscribed, then weighing others experiences on what to do next. I have to recommend to my cf docs anything new for my treatment (stuff I've learned about from this site by the way), they are very reluctant to personalize treatment????

My CF docs, and the RT who does the pulminary functions insist I do things 'wrong'. I'm 50 yrs old, it must not be <i>too </i>wrong! And still, they don't personalize what I should be doing. tsk tsk tsk

Maybe this is why my docs don't like me....?

 

[dbtoo]

Wow, so many variations. Just goes to show that while there may be guidelines, there is no standard. I've often wondered if my docs followed the quidelines or do they just wing it. I'm not a fan of cookie-cutter approaches to life. (Personnaly, I would particularly question a laminated-card - unless it was done in my presense explicitly for me. If it's something they winged at me from the top drawer, it wouldn't make it out of the clinic door. Not saying you should aspiesmom, just that's <u>my </u>way of doing things in life. If it's working well, GREAT !!! )

My personnal belief is you need to figure out what will work for you (kaylee in this case) starting with the recommendation/perscribed, then weighing others experiences on what to do next. I have to recommend to my cf docs anything new for my treatment (stuff I've learned about from this site by the way), they are very reluctant to personalize treatment????

My CF docs, and the RT who does the pulminary functions insist I do things 'wrong'. I'm 50 yrs old, it must not be <i>too </i>wrong! And still, they don't personalize what I should be doing. tsk tsk tsk

Maybe this is why my docs don't like me....?

 

[dbtoo]

Wow, so many variations. Just goes to show that while there may be guidelines, there is no standard. I've often wondered if my docs followed the quidelines or do they just wing it. I'm not a fan of cookie-cutter approaches to life. (Personnaly, I would particularly question a laminated-card - unless it was done in my presense explicitly for me. If it's something they winged at me from the top drawer, it wouldn't make it out of the clinic door. Not saying you should aspiesmom, just that's <u>my </u>way of doing things in life. If it's working well, GREAT !!! )

My personnal belief is you need to figure out what will work for you (kaylee in this case) starting with the recommendation/perscribed, then weighing others experiences on what to do next. I have to recommend to my cf docs anything new for my treatment (stuff I've learned about from this site by the way), they are very reluctant to personalize treatment????

My CF docs, and the RT who does the pulminary functions insist I do things 'wrong'. I'm 50 yrs old, it must not be <i>too </i>wrong! And still, they don't personalize what I should be doing. tsk tsk tsk

Maybe this is why my docs don't like me....?

 

[dbtoo]

Wow, so many variations. Just goes to show that while there may be guidelines, there is no standard. I've often wondered if my docs followed the quidelines or do they just wing it. I'm not a fan of cookie-cutter approaches to life. (Personnaly, I would particularly question a laminated-card - unless it was done in my presense explicitly for me. If it's something they winged at me from the top drawer, it wouldn't make it out of the clinic door. Not saying you should aspiesmom, just that's <u>my </u>way of doing things in life. If it's working well, GREAT !!! )

My personnal belief is you need to figure out what will work for you (kaylee in this case) starting with the recommendation/perscribed, then weighing others experiences on what to do next. I have to recommend to my cf docs anything new for my treatment (stuff I've learned about from this site by the way), they are very reluctant to personalize treatment????

My CF docs, and the RT who does the pulminary functions insist I do things 'wrong'. I'm 50 yrs old, it must not be <i>too </i>wrong! And still, they don't personalize what I should be doing. tsk tsk tsk

Maybe this is why my docs don't like me....?

 

[tara]

My doctor once recently asked me if I combine my nebs with my vest and my answer was yes. She said recent studies have shown contrary to what you might think about airway clearance end nebulizer delivery, combining the two helps get the nebulizer drugs deeper into the lungs. I was surprised. I don't know what "study" she was referring to.

Regardless, here's my routine:

Morning:
Fire up the vest for 30 minutes. (I use Warwick's frequency/pressure recommendations)
While vesting I start with Xopenex
Then HTS (no waiting time in between, it's a judgment call on my part, but when I'm not in the midst of an exacerbation, I have no toleration problems with HTS so I don't need to "wait" for the full effect of the Xop. The instant effect it gives me is well enough.
Then I start the inhaled antibiotic. (in my case it's Aztreonam, not TOBI) The antibiotics sometimes gets started on the last few minutes of the vest, sometimes not. It depends how distracted I was and how long I let the Xop and HTS run.
And last, 2 puffs Advair HFA

Afternoon:
Xopenex
Pulmozyme
(no vest unless I'm feeling the need, like during an exacerbation)

Evening:
same as the morning routine.

 

[tara]

My doctor once recently asked me if I combine my nebs with my vest and my answer was yes. She said recent studies have shown contrary to what you might think about airway clearance end nebulizer delivery, combining the two helps get the nebulizer drugs deeper into the lungs. I was surprised. I don't know what "study" she was referring to.

Regardless, here's my routine:

Morning:
Fire up the vest for 30 minutes. (I use Warwick's frequency/pressure recommendations)
While vesting I start with Xopenex
Then HTS (no waiting time in between, it's a judgment call on my part, but when I'm not in the midst of an exacerbation, I have no toleration problems with HTS so I don't need to "wait" for the full effect of the Xop. The instant effect it gives me is well enough.
Then I start the inhaled antibiotic. (in my case it's Aztreonam, not TOBI) The antibiotics sometimes gets started on the last few minutes of the vest, sometimes not. It depends how distracted I was and how long I let the Xop and HTS run.
And last, 2 puffs Advair HFA

Afternoon:
Xopenex
Pulmozyme
(no vest unless I'm feeling the need, like during an exacerbation)

Evening:
same as the morning routine.

 

[tara]

My doctor once recently asked me if I combine my nebs with my vest and my answer was yes. She said recent studies have shown contrary to what you might think about airway clearance end nebulizer delivery, combining the two helps get the nebulizer drugs deeper into the lungs. I was surprised. I don't know what "study" she was referring to.

Regardless, here's my routine:

Morning:
Fire up the vest for 30 minutes. (I use Warwick's frequency/pressure recommendations)
While vesting I start with Xopenex
Then HTS (no waiting time in between, it's a judgment call on my part, but when I'm not in the midst of an exacerbation, I have no toleration problems with HTS so I don't need to "wait" for the full effect of the Xop. The instant effect it gives me is well enough.
Then I start the inhaled antibiotic. (in my case it's Aztreonam, not TOBI) The antibiotics sometimes gets started on the last few minutes of the vest, sometimes not. It depends how distracted I was and how long I let the Xop and HTS run.
And last, 2 puffs Advair HFA

Afternoon:
Xopenex
Pulmozyme
(no vest unless I'm feeling the need, like during an exacerbation)

Evening:
same as the morning routine.

 

[tara]

My doctor once recently asked me if I combine my nebs with my vest and my answer was yes. She said recent studies have shown contrary to what you might think about airway clearance end nebulizer delivery, combining the two helps get the nebulizer drugs deeper into the lungs. I was surprised. I don't know what "study" she was referring to.

Regardless, here's my routine:

Morning:
Fire up the vest for 30 minutes. (I use Warwick's frequency/pressure recommendations)
While vesting I start with Xopenex
Then HTS (no waiting time in between, it's a judgment call on my part, but when I'm not in the midst of an exacerbation, I have no toleration problems with HTS so I don't need to "wait" for the full effect of the Xop. The instant effect it gives me is well enough.
Then I start the inhaled antibiotic. (in my case it's Aztreonam, not TOBI) The antibiotics sometimes gets started on the last few minutes of the vest, sometimes not. It depends how distracted I was and how long I let the Xop and HTS run.
And last, 2 puffs Advair HFA

Afternoon:
Xopenex
Pulmozyme
(no vest unless I'm feeling the need, like during an exacerbation)

Evening:
same as the morning routine.

 

[tara]

My doctor once recently asked me if I combine my nebs with my vest and my answer was yes. She said recent studies have shown contrary to what you might think about airway clearance end nebulizer delivery, combining the two helps get the nebulizer drugs deeper into the lungs. I was surprised. I don't know what "study" she was referring to.

Regardless, here's my routine:

Morning:
Fire up the vest for 30 minutes. (I use Warwick's frequency/pressure recommendations)
While vesting I start with Xopenex
Then HTS (no waiting time in between, it's a judgment call on my part, but when I'm not in the midst of an exacerbation, I have no toleration problems with HTS so I don't need to "wait" for the full effect of the Xop. The instant effect it gives me is well enough.
Then I start the inhaled antibiotic. (in my case it's Aztreonam, not TOBI) The antibiotics sometimes gets started on the last few minutes of the vest, sometimes not. It depends how distracted I was and how long I let the Xop and HTS run.
And last, 2 puffs Advair HFA

Afternoon:
Xopenex
Pulmozyme
(no vest unless I'm feeling the need, like during an exacerbation)

Evening:
same as the morning routine.