Need help, question about Kaylee and TOBI

[kayleesgrandma]

I was talking to Mel and she said that kaylee should do albuterol while vesting to ope up her lungs and then do the TOBI. Demelza says the office never said anything about taking albuterol

My theory is that it was the end of the day on Friday, and they forgot. Demelza thinks they would have told her if she needed it.

Does she need to do albuterol before tobi ( I understand we can't mix them), whic means an hour of therapy....

Please help...<img src="i/expressions/heart.gif" border="0">

 

[kayleesgrandma]

I was talking to Mel and she said that kaylee should do albuterol while vesting to ope up her lungs and then do the TOBI. Demelza says the office never said anything about taking albuterol

My theory is that it was the end of the day on Friday, and they forgot. Demelza thinks they would have told her if she needed it.

Does she need to do albuterol before tobi ( I understand we can't mix them), whic means an hour of therapy....

Please help...<img src="i/expressions/heart.gif" border="0">

 

[kayleesgrandma]

I was talking to Mel and she said that kaylee should do albuterol while vesting to ope up her lungs and then do the TOBI. Demelza says the office never said anything about taking albuterol

My theory is that it was the end of the day on Friday, and they forgot. Demelza thinks they would have told her if she needed it.

Does she need to do albuterol before tobi ( I understand we can't mix them), whic means an hour of therapy....

Please help...<img src="i/expressions/heart.gif" border="0">

 

[kayleesgrandma]

I was talking to Mel and she said that kaylee should do albuterol while vesting to ope up her lungs and then do the TOBI. Demelza says the office never said anything about taking albuterol

My theory is that it was the end of the day on Friday, and they forgot. Demelza thinks they would have told her if she needed it.

Does she need to do albuterol before tobi ( I understand we can't mix them), whic means an hour of therapy....

Please help...<img src="i/expressions/heart.gif" border="0">

 

[kayleesgrandma]

I was talking to Mel and she said that kaylee should do albuterol while vesting to ope up her lungs and then do the TOBI. Demelza says the office never said anything about taking albuterol

My theory is that it was the end of the day on Friday, and they forgot. Demelza thinks they would have told her if she needed it.

Does she need to do albuterol before tobi ( I understand we can't mix them), whic means an hour of therapy....

Please help...<img src="i/expressions/heart.gif" border="0">

 

[JazzysMom]

You can try the Tobi & see how she tolerates it. The idea is to open the airways as much as possible so the Tobi can get deep down not to mention that some people have reactive airways to the Tobi and MUST use the Albeuterol first.

I would call and ask what the doctor says since it wasnt actually mentioned. Not to mention that Demelza will want to hear it from them anyway <img src="">

 

[JazzysMom]

You can try the Tobi & see how she tolerates it. The idea is to open the airways as much as possible so the Tobi can get deep down not to mention that some people have reactive airways to the Tobi and MUST use the Albeuterol first.

I would call and ask what the doctor says since it wasnt actually mentioned. Not to mention that Demelza will want to hear it from them anyway <img src="">

 

[JazzysMom]

You can try the Tobi & see how she tolerates it. The idea is to open the airways as much as possible so the Tobi can get deep down not to mention that some people have reactive airways to the Tobi and MUST use the Albeuterol first.

I would call and ask what the doctor says since it wasnt actually mentioned. Not to mention that Demelza will want to hear it from them anyway <img src="">

 

[JazzysMom]

You can try the Tobi & see how she tolerates it. The idea is to open the airways as much as possible so the Tobi can get deep down not to mention that some people have reactive airways to the Tobi and MUST use the Albeuterol first.

I would call and ask what the doctor says since it wasnt actually mentioned. Not to mention that Demelza will want to hear it from them anyway <img src="">

 

[JazzysMom]

You can try the Tobi & see how she tolerates it. The idea is to open the airways as much as possible so the Tobi can get deep down not to mention that some people have reactive airways to the Tobi and MUST use the Albeuterol first.

I would call and ask what the doctor says since it wasnt actually mentioned. Not to mention that Demelza will want to hear it from them anyway <img src="">

 

[lightNlife]

This is a repeat of something I've posted before, but it's appropriate to post it again based on your question, as I'm sure others are wondering the same thing.

I often do CPT without a bronchodilator unless my asthma is acting up or I'm fighting infection. I also am asked why I do Xopenex. Usually RTs in the hospital ask me that because they are more familiar with albuterol. I choose Xopenex over albuterol because of the extreme jittery/anxious feelings I exhibit with albuterol that don't occur with Xopenex. For me, that's a quality of life decision, not necessarily a scientific one.

I do use bronchodilators both as a "rescue med" and as part of my preventive maintenance even if I don't do them at the same time as CPT. Bronchodilators are most effective when they are done first in the lineup of "usuals." Below is the proper order of med-neb treatments, as reported by another CF patient's clinic's recommendation:

1. Bronchodilator (albuterol or xopenex)

2. Mucolytics (pulmozyme THEN hypertonic saline)

3. Inhaled antibiotic (TOBI or colistin)

4. Long acting bronchodilator (serevent or foradil)

5. Inhaled steroid (flovent, advair, or pulmicort)

Here's why the order of operations is so important when managing CF.

The bronchodilator helps open up the airways. The more open the airways, the better the chances of inhaling the other medications deeply enough into the lungs where they can be most effective. Mucolytics are "mucus cutting" medications. They help break up the secretions so that they can be coughed up more easily. In CF patients, the mucus and the lungs are typically dry, which is why hypertonic saline is so useful. Hypertonic saline works by adding moisture to the lining of the lungs, resulting in a slippery surface conducive coughing out sputum. Following sputum clearance of the airways, the lungs are further able to take in the nebulized mist of the antibiotics. At this point there is a greater likelihood of the antibiotics taking hold in both small and large airways. The treatment concludes with inhaled steroids which help keep the airways open for an extended period of time (i.e. 8-12 hours when it is time for another treatment.)

The length of time to complete all these steps varies somewhat depending on the type of nebulizer/compressor system being used. For me this process takes approximately half an hour when I am not in a TOBI month and not producing much sputum. When I am not feeling well, am more congested or taking TOBI, it can take me as long as 1-1/2 hours to complete the process.

 

[lightNlife]

This is a repeat of something I've posted before, but it's appropriate to post it again based on your question, as I'm sure others are wondering the same thing.

I often do CPT without a bronchodilator unless my asthma is acting up or I'm fighting infection. I also am asked why I do Xopenex. Usually RTs in the hospital ask me that because they are more familiar with albuterol. I choose Xopenex over albuterol because of the extreme jittery/anxious feelings I exhibit with albuterol that don't occur with Xopenex. For me, that's a quality of life decision, not necessarily a scientific one.

I do use bronchodilators both as a "rescue med" and as part of my preventive maintenance even if I don't do them at the same time as CPT. Bronchodilators are most effective when they are done first in the lineup of "usuals." Below is the proper order of med-neb treatments, as reported by another CF patient's clinic's recommendation:

1. Bronchodilator (albuterol or xopenex)

2. Mucolytics (pulmozyme THEN hypertonic saline)

3. Inhaled antibiotic (TOBI or colistin)

4. Long acting bronchodilator (serevent or foradil)

5. Inhaled steroid (flovent, advair, or pulmicort)

Here's why the order of operations is so important when managing CF.

The bronchodilator helps open up the airways. The more open the airways, the better the chances of inhaling the other medications deeply enough into the lungs where they can be most effective. Mucolytics are "mucus cutting" medications. They help break up the secretions so that they can be coughed up more easily. In CF patients, the mucus and the lungs are typically dry, which is why hypertonic saline is so useful. Hypertonic saline works by adding moisture to the lining of the lungs, resulting in a slippery surface conducive coughing out sputum. Following sputum clearance of the airways, the lungs are further able to take in the nebulized mist of the antibiotics. At this point there is a greater likelihood of the antibiotics taking hold in both small and large airways. The treatment concludes with inhaled steroids which help keep the airways open for an extended period of time (i.e. 8-12 hours when it is time for another treatment.)

The length of time to complete all these steps varies somewhat depending on the type of nebulizer/compressor system being used. For me this process takes approximately half an hour when I am not in a TOBI month and not producing much sputum. When I am not feeling well, am more congested or taking TOBI, it can take me as long as 1-1/2 hours to complete the process.

 

[lightNlife]

This is a repeat of something I've posted before, but it's appropriate to post it again based on your question, as I'm sure others are wondering the same thing.

I often do CPT without a bronchodilator unless my asthma is acting up or I'm fighting infection. I also am asked why I do Xopenex. Usually RTs in the hospital ask me that because they are more familiar with albuterol. I choose Xopenex over albuterol because of the extreme jittery/anxious feelings I exhibit with albuterol that don't occur with Xopenex. For me, that's a quality of life decision, not necessarily a scientific one.

I do use bronchodilators both as a "rescue med" and as part of my preventive maintenance even if I don't do them at the same time as CPT. Bronchodilators are most effective when they are done first in the lineup of "usuals." Below is the proper order of med-neb treatments, as reported by another CF patient's clinic's recommendation:

1. Bronchodilator (albuterol or xopenex)

2. Mucolytics (pulmozyme THEN hypertonic saline)

3. Inhaled antibiotic (TOBI or colistin)

4. Long acting bronchodilator (serevent or foradil)

5. Inhaled steroid (flovent, advair, or pulmicort)

Here's why the order of operations is so important when managing CF.

The bronchodilator helps open up the airways. The more open the airways, the better the chances of inhaling the other medications deeply enough into the lungs where they can be most effective. Mucolytics are "mucus cutting" medications. They help break up the secretions so that they can be coughed up more easily. In CF patients, the mucus and the lungs are typically dry, which is why hypertonic saline is so useful. Hypertonic saline works by adding moisture to the lining of the lungs, resulting in a slippery surface conducive coughing out sputum. Following sputum clearance of the airways, the lungs are further able to take in the nebulized mist of the antibiotics. At this point there is a greater likelihood of the antibiotics taking hold in both small and large airways. The treatment concludes with inhaled steroids which help keep the airways open for an extended period of time (i.e. 8-12 hours when it is time for another treatment.)

The length of time to complete all these steps varies somewhat depending on the type of nebulizer/compressor system being used. For me this process takes approximately half an hour when I am not in a TOBI month and not producing much sputum. When I am not feeling well, am more congested or taking TOBI, it can take me as long as 1-1/2 hours to complete the process.

 

[lightNlife]

This is a repeat of something I've posted before, but it's appropriate to post it again based on your question, as I'm sure others are wondering the same thing.

I often do CPT without a bronchodilator unless my asthma is acting up or I'm fighting infection. I also am asked why I do Xopenex. Usually RTs in the hospital ask me that because they are more familiar with albuterol. I choose Xopenex over albuterol because of the extreme jittery/anxious feelings I exhibit with albuterol that don't occur with Xopenex. For me, that's a quality of life decision, not necessarily a scientific one.

I do use bronchodilators both as a "rescue med" and as part of my preventive maintenance even if I don't do them at the same time as CPT. Bronchodilators are most effective when they are done first in the lineup of "usuals." Below is the proper order of med-neb treatments, as reported by another CF patient's clinic's recommendation:

1. Bronchodilator (albuterol or xopenex)

2. Mucolytics (pulmozyme THEN hypertonic saline)

3. Inhaled antibiotic (TOBI or colistin)

4. Long acting bronchodilator (serevent or foradil)

5. Inhaled steroid (flovent, advair, or pulmicort)

Here's why the order of operations is so important when managing CF.

The bronchodilator helps open up the airways. The more open the airways, the better the chances of inhaling the other medications deeply enough into the lungs where they can be most effective. Mucolytics are "mucus cutting" medications. They help break up the secretions so that they can be coughed up more easily. In CF patients, the mucus and the lungs are typically dry, which is why hypertonic saline is so useful. Hypertonic saline works by adding moisture to the lining of the lungs, resulting in a slippery surface conducive coughing out sputum. Following sputum clearance of the airways, the lungs are further able to take in the nebulized mist of the antibiotics. At this point there is a greater likelihood of the antibiotics taking hold in both small and large airways. The treatment concludes with inhaled steroids which help keep the airways open for an extended period of time (i.e. 8-12 hours when it is time for another treatment.)

The length of time to complete all these steps varies somewhat depending on the type of nebulizer/compressor system being used. For me this process takes approximately half an hour when I am not in a TOBI month and not producing much sputum. When I am not feeling well, am more congested or taking TOBI, it can take me as long as 1-1/2 hours to complete the process.

 

[lightNlife]

This is a repeat of something I've posted before, but it's appropriate to post it again based on your question, as I'm sure others are wondering the same thing.

I often do CPT without a bronchodilator unless my asthma is acting up or I'm fighting infection. I also am asked why I do Xopenex. Usually RTs in the hospital ask me that because they are more familiar with albuterol. I choose Xopenex over albuterol because of the extreme jittery/anxious feelings I exhibit with albuterol that don't occur with Xopenex. For me, that's a quality of life decision, not necessarily a scientific one.

I do use bronchodilators both as a "rescue med" and as part of my preventive maintenance even if I don't do them at the same time as CPT. Bronchodilators are most effective when they are done first in the lineup of "usuals." Below is the proper order of med-neb treatments, as reported by another CF patient's clinic's recommendation:

1. Bronchodilator (albuterol or xopenex)

2. Mucolytics (pulmozyme THEN hypertonic saline)

3. Inhaled antibiotic (TOBI or colistin)

4. Long acting bronchodilator (serevent or foradil)

5. Inhaled steroid (flovent, advair, or pulmicort)

Here's why the order of operations is so important when managing CF.

The bronchodilator helps open up the airways. The more open the airways, the better the chances of inhaling the other medications deeply enough into the lungs where they can be most effective. Mucolytics are "mucus cutting" medications. They help break up the secretions so that they can be coughed up more easily. In CF patients, the mucus and the lungs are typically dry, which is why hypertonic saline is so useful. Hypertonic saline works by adding moisture to the lining of the lungs, resulting in a slippery surface conducive coughing out sputum. Following sputum clearance of the airways, the lungs are further able to take in the nebulized mist of the antibiotics. At this point there is a greater likelihood of the antibiotics taking hold in both small and large airways. The treatment concludes with inhaled steroids which help keep the airways open for an extended period of time (i.e. 8-12 hours when it is time for another treatment.)

The length of time to complete all these steps varies somewhat depending on the type of nebulizer/compressor system being used. For me this process takes approximately half an hour when I am not in a TOBI month and not producing much sputum. When I am not feeling well, am more congested or taking TOBI, it can take me as long as 1-1/2 hours to complete the process.

 

[semperfiohana]

i've been told to do my inhaler before i do my treatments. to help open my airways so that it goes further. i don't think i've ever really followed through with it though. but i have been told by my doctor to at least try doing the inhaler first and then wait like 15 min and then do my other treatments. they've tried their hardest to get me to do tobi again, but i won't do it cause it gives me extreme headaches. so instead i do genetimicin and colistin (i used to alternate months), but i can't use either of them for the next 6 months.

 

[semperfiohana]

i've been told to do my inhaler before i do my treatments. to help open my airways so that it goes further. i don't think i've ever really followed through with it though. but i have been told by my doctor to at least try doing the inhaler first and then wait like 15 min and then do my other treatments. they've tried their hardest to get me to do tobi again, but i won't do it cause it gives me extreme headaches. so instead i do genetimicin and colistin (i used to alternate months), but i can't use either of them for the next 6 months.

 

[semperfiohana]

i've been told to do my inhaler before i do my treatments. to help open my airways so that it goes further. i don't think i've ever really followed through with it though. but i have been told by my doctor to at least try doing the inhaler first and then wait like 15 min and then do my other treatments. they've tried their hardest to get me to do tobi again, but i won't do it cause it gives me extreme headaches. so instead i do genetimicin and colistin (i used to alternate months), but i can't use either of them for the next 6 months.

 

[semperfiohana]

i've been told to do my inhaler before i do my treatments. to help open my airways so that it goes further. i don't think i've ever really followed through with it though. but i have been told by my doctor to at least try doing the inhaler first and then wait like 15 min and then do my other treatments. they've tried their hardest to get me to do tobi again, but i won't do it cause it gives me extreme headaches. so instead i do genetimicin and colistin (i used to alternate months), but i can't use either of them for the next 6 months.

 

[semperfiohana]

i've been told to do my inhaler before i do my treatments. to help open my airways so that it goes further. i don't think i've ever really followed through with it though. but i have been told by my doctor to at least try doing the inhaler first and then wait like 15 min and then do my other treatments. they've tried their hardest to get me to do tobi again, but i won't do it cause it gives me extreme headaches. so instead i do genetimicin and colistin (i used to alternate months), but i can't use either of them for the next 6 months.