What's new
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

New and bewildered

NoExcuses

New member
One thing I've learned with CF is that all doctors are not created equally.

We like to think so, because that would be mean that we all are getting equal care. But the reality is, that simply isn't the case.

If you have a moment, check out this article in the New Yorker. <a target=_blank class=ftalternatingbarlinklarge href="http://www.newyorker.com/archive/2004/12/06/041206fa_fact?currentPage=1">http://www.newyorker.com/archi...6fa_fact?currentPage=1</a>
 

NoExcuses

New member
One thing I've learned with CF is that all doctors are not created equally.

We like to think so, because that would be mean that we all are getting equal care. But the reality is, that simply isn't the case.

If you have a moment, check out this article in the New Yorker. <a target=_blank class=ftalternatingbarlinklarge href="http://www.newyorker.com/archive/2004/12/06/041206fa_fact?currentPage=1">http://www.newyorker.com/archi...6fa_fact?currentPage=1</a>
 

NoExcuses

New member
One thing I've learned with CF is that all doctors are not created equally.

We like to think so, because that would be mean that we all are getting equal care. But the reality is, that simply isn't the case.

If you have a moment, check out this article in the New Yorker. <a target=_blank class=ftalternatingbarlinklarge href="http://www.newyorker.com/archive/2004/12/06/041206fa_fact?currentPage=1">http://www.newyorker.com/archi...6fa_fact?currentPage=1</a>
 

NoExcuses

New member
One thing I've learned with CF is that all doctors are not created equally.

We like to think so, because that would be mean that we all are getting equal care. But the reality is, that simply isn't the case.

If you have a moment, check out this article in the New Yorker. <a target=_blank class=ftalternatingbarlinklarge href="http://www.newyorker.com/archive/2004/12/06/041206fa_fact?currentPage=1">http://www.newyorker.com/archi...6fa_fact?currentPage=1</a>
 

schmunks

New member
I have printed it off and will take it home to read tonight!<img src="i/expressions/face-icon-small-smile.gif" border="0">

I am glad that i have joined this site it feels like a relief to talk to people that know what's going on coz i certainly don't, not yet anyway!

Sarah 32
 

schmunks

New member
I have printed it off and will take it home to read tonight!<img src="i/expressions/face-icon-small-smile.gif" border="0">

I am glad that i have joined this site it feels like a relief to talk to people that know what's going on coz i certainly don't, not yet anyway!

Sarah 32
 

schmunks

New member
I have printed it off and will take it home to read tonight!<img src="i/expressions/face-icon-small-smile.gif" border="0">

I am glad that i have joined this site it feels like a relief to talk to people that know what's going on coz i certainly don't, not yet anyway!

Sarah 32
 

schmunks

New member
I have printed it off and will take it home to read tonight!<img src="i/expressions/face-icon-small-smile.gif" border="0">

I am glad that i have joined this site it feels like a relief to talk to people that know what's going on coz i certainly don't, not yet anyway!

Sarah 32
 

schmunks

New member
I have printed it off and will take it home to read tonight!<img src="i/expressions/face-icon-small-smile.gif" border="0">

I am glad that i have joined this site it feels like a relief to talk to people that know what's going on coz i certainly don't, not yet anyway!

Sarah 32
 

schmunks

New member
I have printed it off and will take it home to read tonight!<img src="i/expressions/face-icon-small-smile.gif" border="0">

I am glad that i have joined this site it feels like a relief to talk to people that know what's going on coz i certainly don't, not yet anyway!

Sarah 32
 

kayleesgrandma

New member
Amy, I just read that article--it was facinating! I can't believe I hadn't taken the time to read that before. Didn't you say once, that that article was what introduced you to Warrick? Thank you for providing the link--I am going to print this off.
 

kayleesgrandma

New member
Amy, I just read that article--it was facinating! I can't believe I hadn't taken the time to read that before. Didn't you say once, that that article was what introduced you to Warrick? Thank you for providing the link--I am going to print this off.
 

kayleesgrandma

New member
Amy, I just read that article--it was facinating! I can't believe I hadn't taken the time to read that before. Didn't you say once, that that article was what introduced you to Warrick? Thank you for providing the link--I am going to print this off.
 

kayleesgrandma

New member
Amy, I just read that article--it was facinating! I can't believe I hadn't taken the time to read that before. Didn't you say once, that that article was what introduced you to Warrick? Thank you for providing the link--I am going to print this off.
 

kayleesgrandma

New member
Amy, I just read that article--it was facinating! I can't believe I hadn't taken the time to read that before. Didn't you say once, that that article was what introduced you to Warrick? Thank you for providing the link--I am going to print this off.
 

kayleesgrandma

New member
Amy, I just read that article--it was facinating! I can't believe I hadn't taken the time to read that before. Didn't you say once, that that article was what introduced you to Warrick? Thank you for providing the link--I am going to print this off.
 

schmunks

New member
Hi Amy,

It is really interesting, the bit where it says that people with CF are like scientists reminded me of my brother, even though he did not know what the actual problem was he always knew what helped and what did'nt weather,temperature, food everything he did or did'nt do had an effect on how he would be each day.

As for the clapping neither he nor any of our family were informed that that is what needed to be done even though it now seems obvious that they should have told us about that because of the condition of his lungs. He used to break his ribs all the time from coughing because he had osteoporosis which then meant he could'nt cough properly to clear his chest.

The specialist that i see told me herself that she was one of the best in the country(England).

Sarah 32
 

schmunks

New member
Hi Amy,

It is really interesting, the bit where it says that people with CF are like scientists reminded me of my brother, even though he did not know what the actual problem was he always knew what helped and what did'nt weather,temperature, food everything he did or did'nt do had an effect on how he would be each day.

As for the clapping neither he nor any of our family were informed that that is what needed to be done even though it now seems obvious that they should have told us about that because of the condition of his lungs. He used to break his ribs all the time from coughing because he had osteoporosis which then meant he could'nt cough properly to clear his chest.

The specialist that i see told me herself that she was one of the best in the country(England).

Sarah 32
 

schmunks

New member
Hi Amy,

It is really interesting, the bit where it says that people with CF are like scientists reminded me of my brother, even though he did not know what the actual problem was he always knew what helped and what did'nt weather,temperature, food everything he did or did'nt do had an effect on how he would be each day.

As for the clapping neither he nor any of our family were informed that that is what needed to be done even though it now seems obvious that they should have told us about that because of the condition of his lungs. He used to break his ribs all the time from coughing because he had osteoporosis which then meant he could'nt cough properly to clear his chest.

The specialist that i see told me herself that she was one of the best in the country(England).

Sarah 32
 

schmunks

New member
Hi Amy,

It is really interesting, the bit where it says that people with CF are like scientists reminded me of my brother, even though he did not know what the actual problem was he always knew what helped and what did'nt weather,temperature, food everything he did or did'nt do had an effect on how he would be each day.

As for the clapping neither he nor any of our family were informed that that is what needed to be done even though it now seems obvious that they should have told us about that because of the condition of his lungs. He used to break his ribs all the time from coughing because he had osteoporosis which then meant he could'nt cough properly to clear his chest.

The specialist that i see told me herself that she was one of the best in the country(England).

Sarah 32
 
Top