What's new
By:
Filters
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

New and bewildered

N

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kayleesgrandma</b></i>

Amy, I just read that article--it was facinating! I can't believe I hadn't taken the time to read that before. Didn't you say once, that that article was what introduced you to Warrick? Thank you for providing the link--I am going to print this off.</end quote></div>

I'm glad you finally read it. <img src="i/expressions/face-icon-small-smile.gif" border="0"> It was in my signature for a while, but I figured I'd re-post because not everyone has read it.

Yes, this is how I found out about Warwick.

I'm glad you read it
 
N

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kayleesgrandma</b></i>

Amy, I just read that article--it was facinating! I can't believe I hadn't taken the time to read that before. Didn't you say once, that that article was what introduced you to Warrick? Thank you for providing the link--I am going to print this off.</end quote></div>

I'm glad you finally read it. <img src="i/expressions/face-icon-small-smile.gif" border="0"> It was in my signature for a while, but I figured I'd re-post because not everyone has read it.

Yes, this is how I found out about Warwick.

I'm glad you read it
 
N

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kayleesgrandma</b></i>

Amy, I just read that article--it was facinating! I can't believe I hadn't taken the time to read that before. Didn't you say once, that that article was what introduced you to Warrick? Thank you for providing the link--I am going to print this off.</end quote></div>

I'm glad you finally read it. <img src="i/expressions/face-icon-small-smile.gif" border="0"> It was in my signature for a while, but I figured I'd re-post because not everyone has read it.

Yes, this is how I found out about Warwick.

I'm glad you read it
 
N

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kayleesgrandma</b></i>

Amy, I just read that article--it was facinating! I can't believe I hadn't taken the time to read that before. Didn't you say once, that that article was what introduced you to Warrick? Thank you for providing the link--I am going to print this off.</end quote></div>

I'm glad you finally read it. <img src="i/expressions/face-icon-small-smile.gif" border="0"> It was in my signature for a while, but I figured I'd re-post because not everyone has read it.

Yes, this is how I found out about Warwick.

I'm glad you read it
 
N

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kayleesgrandma</b></i>

Amy, I just read that article--it was facinating! I can't believe I hadn't taken the time to read that before. Didn't you say once, that that article was what introduced you to Warrick? Thank you for providing the link--I am going to print this off.</end quote>

I'm glad you finally read it. <img src="i/expressions/face-icon-small-smile.gif" border="0"> It was in my signature for a while, but I figured I'd re-post because not everyone has read it.

Yes, this is how I found out about Warwick.

I'm glad you read it
 
N

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kayleesgrandma</b></i>

Amy, I just read that article--it was facinating! I can't believe I hadn't taken the time to read that before. Didn't you say once, that that article was what introduced you to Warrick? Thank you for providing the link--I am going to print this off.</end quote>

I'm glad you finally read it. <img src="i/expressions/face-icon-small-smile.gif" border="0"> It was in my signature for a while, but I figured I'd re-post because not everyone has read it.

Yes, this is how I found out about Warwick.

I'm glad you read it
 
N

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>schmunks</b></i>




The specialist that i see told me herself that she was one of the best in the country(England).



Sarah 32</end quote></div>

I would ask her how she determined that she is the best. What are those measurements?

Life expectancy?

I would be weary of someone proclaming to me "I am the best" (in those exact words) without solid proof.

I do know that life expectacny in the UK is 4-5 years less than in the US. I've always wondered why. Maybe your brother's experience is more common that I realized...
 
N

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>schmunks</b></i>




The specialist that i see told me herself that she was one of the best in the country(England).



Sarah 32</end quote></div>

I would ask her how she determined that she is the best. What are those measurements?

Life expectancy?

I would be weary of someone proclaming to me "I am the best" (in those exact words) without solid proof.

I do know that life expectacny in the UK is 4-5 years less than in the US. I've always wondered why. Maybe your brother's experience is more common that I realized...
 
N

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>schmunks</b></i>




The specialist that i see told me herself that she was one of the best in the country(England).



Sarah 32</end quote></div>

I would ask her how she determined that she is the best. What are those measurements?

Life expectancy?

I would be weary of someone proclaming to me "I am the best" (in those exact words) without solid proof.

I do know that life expectacny in the UK is 4-5 years less than in the US. I've always wondered why. Maybe your brother's experience is more common that I realized...
 
N

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>schmunks</b></i>




The specialist that i see told me herself that she was one of the best in the country(England).



Sarah 32</end quote></div>

I would ask her how she determined that she is the best. What are those measurements?

Life expectancy?

I would be weary of someone proclaming to me "I am the best" (in those exact words) without solid proof.

I do know that life expectacny in the UK is 4-5 years less than in the US. I've always wondered why. Maybe your brother's experience is more common that I realized...
 
N

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>schmunks</b></i>




The specialist that i see told me herself that she was one of the best in the country(England).



Sarah 32</end quote>

I would ask her how she determined that she is the best. What are those measurements?

Life expectancy?

I would be weary of someone proclaming to me "I am the best" (in those exact words) without solid proof.

I do know that life expectacny in the UK is 4-5 years less than in the US. I've always wondered why. Maybe your brother's experience is more common that I realized...
 
N

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>schmunks</b></i>




The specialist that i see told me herself that she was one of the best in the country(England).



Sarah 32</end quote>

I would ask her how she determined that she is the best. What are those measurements?

Life expectancy?

I would be weary of someone proclaming to me "I am the best" (in those exact words) without solid proof.

I do know that life expectacny in the UK is 4-5 years less than in the US. I've always wondered why. Maybe your brother's experience is more common that I realized...
 
S

schmunks

New member
Hello,

I am at Southampton University Hospital which has a CF clinic in it with its own ward that has special single rooms that have there own air system, I am going to have to put my trust in them unless they give me reason not to. In comparison to the idiots that were in charge of my brother they are fantastic.
I used to live in Wythenshawe that's where my roots are, i now live on the Isle of Wight.

Amy, The exact words that were

"There are only 5 specialists in the country and i am one of them, You are in safe hands our clinic is one of the best"

I don't know what they base their statistics on but i have to go with the flow and hope they are right for the time being!


Hello Space mom,

Do you think that we should push it legally!
We are writing a letter to the hospital ombudsman but did'nt know whether or not to push it legally, It' would'nt be about money it would be about them getting away with it

Sarah x
 
S

schmunks

New member
Hello,

I am at Southampton University Hospital which has a CF clinic in it with its own ward that has special single rooms that have there own air system, I am going to have to put my trust in them unless they give me reason not to. In comparison to the idiots that were in charge of my brother they are fantastic.
I used to live in Wythenshawe that's where my roots are, i now live on the Isle of Wight.

Amy, The exact words that were

"There are only 5 specialists in the country and i am one of them, You are in safe hands our clinic is one of the best"

I don't know what they base their statistics on but i have to go with the flow and hope they are right for the time being!


Hello Space mom,

Do you think that we should push it legally!
We are writing a letter to the hospital ombudsman but did'nt know whether or not to push it legally, It' would'nt be about money it would be about them getting away with it

Sarah x
 
S

schmunks

New member
Hello,

I am at Southampton University Hospital which has a CF clinic in it with its own ward that has special single rooms that have there own air system, I am going to have to put my trust in them unless they give me reason not to. In comparison to the idiots that were in charge of my brother they are fantastic.
I used to live in Wythenshawe that's where my roots are, i now live on the Isle of Wight.

Amy, The exact words that were

"There are only 5 specialists in the country and i am one of them, You are in safe hands our clinic is one of the best"

I don't know what they base their statistics on but i have to go with the flow and hope they are right for the time being!


Hello Space mom,

Do you think that we should push it legally!
We are writing a letter to the hospital ombudsman but did'nt know whether or not to push it legally, It' would'nt be about money it would be about them getting away with it

Sarah x
 
S

schmunks

New member
Hello,

I am at Southampton University Hospital which has a CF clinic in it with its own ward that has special single rooms that have there own air system, I am going to have to put my trust in them unless they give me reason not to. In comparison to the idiots that were in charge of my brother they are fantastic.
I used to live in Wythenshawe that's where my roots are, i now live on the Isle of Wight.

Amy, The exact words that were

"There are only 5 specialists in the country and i am one of them, You are in safe hands our clinic is one of the best"

I don't know what they base their statistics on but i have to go with the flow and hope they are right for the time being!


Hello Space mom,

Do you think that we should push it legally!
We are writing a letter to the hospital ombudsman but did'nt know whether or not to push it legally, It' would'nt be about money it would be about them getting away with it

Sarah x
 
S

schmunks

New member
Hello,

I am at Southampton University Hospital which has a CF clinic in it with its own ward that has special single rooms that have there own air system, I am going to have to put my trust in them unless they give me reason not to. In comparison to the idiots that were in charge of my brother they are fantastic.
I used to live in Wythenshawe that's where my roots are, i now live on the Isle of Wight.

Amy, The exact words that were

"There are only 5 specialists in the country and i am one of them, You are in safe hands our clinic is one of the best"

I don't know what they base their statistics on but i have to go with the flow and hope they are right for the time being!


Hello Space mom,

Do you think that we should push it legally!
We are writing a letter to the hospital ombudsman but did'nt know whether or not to push it legally, It' would'nt be about money it would be about them getting away with it

Sarah x
 
S

schmunks

New member
Hello,

I am at Southampton University Hospital which has a CF clinic in it with its own ward that has special single rooms that have there own air system, I am going to have to put my trust in them unless they give me reason not to. In comparison to the idiots that were in charge of my brother they are fantastic.
I used to live in Wythenshawe that's where my roots are, i now live on the Isle of Wight.

Amy, The exact words that were

"There are only 5 specialists in the country and i am one of them, You are in safe hands our clinic is one of the best"

I don't know what they base their statistics on but i have to go with the flow and hope they are right for the time being!


Hello Space mom,

Do you think that we should push it legally!
We are writing a letter to the hospital ombudsman but did'nt know whether or not to push it legally, It' would'nt be about money it would be about them getting away with it

Sarah x
 
S

spacemom

New member
Them not getting away with it AND making sure it doesn't happen to more people!

I'm not familiar with how those things happen in England. Can you get informal advice from lawyers?

I find it very lax that they found the idea of a transplant ridiculous, and that they never suspected CF before (3 years for crying outloud!!!). After all, pseudomona infections are practically specific to CF.

Best thoughts your way.
 
S

spacemom

New member
Them not getting away with it AND making sure it doesn't happen to more people!

I'm not familiar with how those things happen in England. Can you get informal advice from lawyers?

I find it very lax that they found the idea of a transplant ridiculous, and that they never suspected CF before (3 years for crying outloud!!!). After all, pseudomona infections are practically specific to CF.

Best thoughts your way.
 
You must log in or register to reply here.
Top