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new CF at 59 years old

S

snowshoe

New member
as  you can see by the title I just  found out  that
I have  CF.  For the past 20 years or  so  I
have  been telling  the doc's that  I felt like
 i  was drowning and that  i could not  catch
my breath etc.  they tried all sorts of stuff but nothing
 helped.  finally my wife (thank  god for them) got
into  the act.  I  went to a cf spec. and  in 5
minutes he told  me  I had cf and in 30 minutes with the
sweat  test he confirmed it.  <br>
<br>
<br>
For you older patients, how do  you work with this?  I am
on the  road selling , going  to meetings, big crowds
etc.  Looking  back I see that  my worst
 spells  were when I was around  large crowds, I
would cough for weeks at  a time and  get up for an hour
just  to cough.  the  doc's all told me that it was
 going  around  and i would get over it.  <br>
<br>
 
S

snowshoe

New member
as  you can see by the title I just  found out  that
I have  CF.  For the past 20 years or  so  I
have  been telling  the doc's that  I felt like
 i  was drowning and that  i could not  catch
my breath etc.  they tried all sorts of stuff but nothing
 helped.  finally my wife (thank  god for them) got
into  the act.  I  went to a cf spec. and  in 5
minutes he told  me  I had cf and in 30 minutes with the
sweat  test he confirmed it.  <br>
<br>
<br>
For you older patients, how do  you work with this?  I am
on the  road selling , going  to meetings, big crowds
etc.  Looking  back I see that  my worst
 spells  were when I was around  large crowds, I
would cough for weeks at  a time and  get up for an hour
just  to cough.  the  doc's all told me that it was
 going  around  and i would get over it.  <br>
<br>
 
S

snowshoe

New member
as  you can see by the title I just  found out  that
I have  CF.  For the past 20 years or  so  I
have  been telling  the doc's that  I felt like
 i  was drowning and that  i could not  catch
my breath etc.  they tried all sorts of stuff but nothing
 helped.  finally my wife (thank  god for them) got
into  the act.  I  went to a cf spec. and  in 5
minutes he told  me  I had cf and in 30 minutes with the
sweat  test he confirmed it.  <br>
<br>
<br>
For you older patients, how do  you work with this?  I am
on the  road selling , going  to meetings, big crowds
etc.  Looking  back I see that  my worst
 spells  were when I was around  large crowds, I
would cough for weeks at  a time and  get up for an hour
just  to cough.  the  doc's all told me that it was
 going  around  and i would get over it.  <br>
<br>
 
N

NoExcuses

New member
that's incredible!

welcome to the CF club (although no one wants to be a member)!.

hopefully now that you know what you have, you can get proper treatment.

i'm only 25, so i can't help you with the whole being diagnosed late.... but welcome to the site!
 
N

NoExcuses

New member
that's incredible!

welcome to the CF club (although no one wants to be a member)!.

hopefully now that you know what you have, you can get proper treatment.

i'm only 25, so i can't help you with the whole being diagnosed late.... but welcome to the site!
 
N

NoExcuses

New member
that's incredible!

welcome to the CF club (although no one wants to be a member)!.

hopefully now that you know what you have, you can get proper treatment.

i'm only 25, so i can't help you with the whole being diagnosed late.... but welcome to the site!
 
D

Debi

New member
Thanks to your wife for connecting you to a doc to get the right diagnosis, and thanks to you for finding and joining this site!

I am 54 with cf, and was also diagnosed later in life, although a lot sooner than you! I have tons to share, but am not sure exactly what you specifically want to hear about. Feel free to send me a personal message by clicking on the person without the exclamation point at the top right of your post. Like you, I work full-time and often find myself among large groups. Through following a drug regimen and using The Vest, I have done extremely well.

There is a ton of information and no shortage of opinions on this site. There is no universal agreement on what is "the one and only right way" to deal with cf. I recommend you sort through all the info and all the opinions and, through trial and error, put together a regimen that works for you. You've obviously done well enough already to make it to 59, so it's not like you need to quit your "normal" life and start living a completely different life.

I look forward to sharing with you, and also to learning from you. Welcome!

Debi
54 w/cf
 
D

Debi

New member
Thanks to your wife for connecting you to a doc to get the right diagnosis, and thanks to you for finding and joining this site!

I am 54 with cf, and was also diagnosed later in life, although a lot sooner than you! I have tons to share, but am not sure exactly what you specifically want to hear about. Feel free to send me a personal message by clicking on the person without the exclamation point at the top right of your post. Like you, I work full-time and often find myself among large groups. Through following a drug regimen and using The Vest, I have done extremely well.

There is a ton of information and no shortage of opinions on this site. There is no universal agreement on what is "the one and only right way" to deal with cf. I recommend you sort through all the info and all the opinions and, through trial and error, put together a regimen that works for you. You've obviously done well enough already to make it to 59, so it's not like you need to quit your "normal" life and start living a completely different life.

I look forward to sharing with you, and also to learning from you. Welcome!

Debi
54 w/cf
 
D

Debi

New member
Thanks to your wife for connecting you to a doc to get the right diagnosis, and thanks to you for finding and joining this site!

I am 54 with cf, and was also diagnosed later in life, although a lot sooner than you! I have tons to share, but am not sure exactly what you specifically want to hear about. Feel free to send me a personal message by clicking on the person without the exclamation point at the top right of your post. Like you, I work full-time and often find myself among large groups. Through following a drug regimen and using The Vest, I have done extremely well.

There is a ton of information and no shortage of opinions on this site. There is no universal agreement on what is "the one and only right way" to deal with cf. I recommend you sort through all the info and all the opinions and, through trial and error, put together a regimen that works for you. You've obviously done well enough already to make it to 59, so it's not like you need to quit your "normal" life and start living a completely different life.

I look forward to sharing with you, and also to learning from you. Welcome!

Debi
54 w/cf
 
C

CowTown

New member
Welcome! Like Debi said, you're obviously doing pretty well to have just found out, but will have some great new medications to help you now. That's the good news! This is a great place to come when you're looking for answers, or whether someone else feels the same or has the same experiences, or for advice. There's a ton of information here, and it's real-life experience that you just can't get anywhere else.

I hope you're doing okay. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
C

CowTown

New member
Welcome! Like Debi said, you're obviously doing pretty well to have just found out, but will have some great new medications to help you now. That's the good news! This is a great place to come when you're looking for answers, or whether someone else feels the same or has the same experiences, or for advice. There's a ton of information here, and it's real-life experience that you just can't get anywhere else.

I hope you're doing okay. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
C

CowTown

New member
Welcome! Like Debi said, you're obviously doing pretty well to have just found out, but will have some great new medications to help you now. That's the good news! This is a great place to come when you're looking for answers, or whether someone else feels the same or has the same experiences, or for advice. There's a ton of information here, and it's real-life experience that you just can't get anywhere else.

I hope you're doing okay. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
J

JennifersHope

New member
Hi,

Welcome.. I was diagnoised late in life as well.. Age 29... The best thing to do is keep doing what you are doing, just adding whatever treatments the doctors want to give you.

There is not any need to change anything as far as what I can tell.... but that is up to your doctors....I was diagnoised right before I started nursing school.. I just went ahead with my plan...I did finish school with some health challenges.. but like everyone said.. nothing is going to change in your body just because you have a name with the disease now...

Glad you found this site.. Post often and ask as many questions as you want..


Jennifer
 
J

JennifersHope

New member
Hi,

Welcome.. I was diagnoised late in life as well.. Age 29... The best thing to do is keep doing what you are doing, just adding whatever treatments the doctors want to give you.

There is not any need to change anything as far as what I can tell.... but that is up to your doctors....I was diagnoised right before I started nursing school.. I just went ahead with my plan...I did finish school with some health challenges.. but like everyone said.. nothing is going to change in your body just because you have a name with the disease now...

Glad you found this site.. Post often and ask as many questions as you want..


Jennifer
 
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