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SO grateful!

mom2lillian

New member
Original thread: <a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/forums/messageview.cfm?catid=5&threadid=53043&enterthread=y
">http://www.cysticfibrosis.com/...3&enterthread=y
</a>


Jane I am so glad to hear you may be on your way to getting some things figured out. We have to proceed with caution on these sorts of 'fringe' diagnosis but I surely hope this is "IT" for you guys. Please do keep me updated on your status. I just went and got my blood drawn monday. Since I have completed 5 weeks of steroids this year I am thinking it wont show much but it will be interesting. I also got a stool culture to see if there is excessive candida or a lack of good bacteria. Unfortunately I had changed my diet for a couple weeks prior to the test so again will be interesting to see but I am not going to proceed with it not being a problem if I dont get something conclusive.

I have been drinking green smoothies and highly recommend the book Green for Life that Mandy recommended to me. Even my husband is drinking them and occasionally my daughter! They ahve regulated my digestion alot.

I also just received the book yeast overgrowth syndrom I believe its called I will post back if it is any good. NExt on my list to read is alkanize or die.



Oh and to answer someone's ? about how to treat it. A major component is diet which for most cf'ers may prove difficult, its difficult for the average person. There are components which you can incorporate easily enough I think. One other think that has proved effective is if your body is acidic get it back into neutral territory. There is also colonics to flush some candida out and prevent some of the 'die off' symptoms. Additionally there are orals you can take such as fluconazole which is hard on your liver FYI.

here is some preliminary info on testing for those interested: <a target=_blank class=ftalternatingbarlinklarge href="http://cftoo.blogspot.com/2010/03/diagnostic-tests-for-candida.html">http://cftoo.blogspot.com/2010...tests-for-candida.html</a>
 

mom2lillian

New member
Original thread: <a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/forums/messageview.cfm?catid=5&threadid=53043&enterthread=y
">http://www.cysticfibrosis.com/...3&enterthread=y
</a>


Jane I am so glad to hear you may be on your way to getting some things figured out. We have to proceed with caution on these sorts of 'fringe' diagnosis but I surely hope this is "IT" for you guys. Please do keep me updated on your status. I just went and got my blood drawn monday. Since I have completed 5 weeks of steroids this year I am thinking it wont show much but it will be interesting. I also got a stool culture to see if there is excessive candida or a lack of good bacteria. Unfortunately I had changed my diet for a couple weeks prior to the test so again will be interesting to see but I am not going to proceed with it not being a problem if I dont get something conclusive.

I have been drinking green smoothies and highly recommend the book Green for Life that Mandy recommended to me. Even my husband is drinking them and occasionally my daughter! They ahve regulated my digestion alot.

I also just received the book yeast overgrowth syndrom I believe its called I will post back if it is any good. NExt on my list to read is alkanize or die.



Oh and to answer someone's ? about how to treat it. A major component is diet which for most cf'ers may prove difficult, its difficult for the average person. There are components which you can incorporate easily enough I think. One other think that has proved effective is if your body is acidic get it back into neutral territory. There is also colonics to flush some candida out and prevent some of the 'die off' symptoms. Additionally there are orals you can take such as fluconazole which is hard on your liver FYI.

here is some preliminary info on testing for those interested: <a target=_blank class=ftalternatingbarlinklarge href="http://cftoo.blogspot.com/2010/03/diagnostic-tests-for-candida.html">http://cftoo.blogspot.com/2010...tests-for-candida.html</a>
 

mom2lillian

New member
Original thread: <a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/forums/messageview.cfm?catid=5&threadid=53043&enterthread=y
">http://www.cysticfibrosis.com/...3&enterthread=y
</a>


Jane I am so glad to hear you may be on your way to getting some things figured out. We have to proceed with caution on these sorts of 'fringe' diagnosis but I surely hope this is "IT" for you guys. Please do keep me updated on your status. I just went and got my blood drawn monday. Since I have completed 5 weeks of steroids this year I am thinking it wont show much but it will be interesting. I also got a stool culture to see if there is excessive candida or a lack of good bacteria. Unfortunately I had changed my diet for a couple weeks prior to the test so again will be interesting to see but I am not going to proceed with it not being a problem if I dont get something conclusive.

I have been drinking green smoothies and highly recommend the book Green for Life that Mandy recommended to me. Even my husband is drinking them and occasionally my daughter! They ahve regulated my digestion alot.

I also just received the book yeast overgrowth syndrom I believe its called I will post back if it is any good. NExt on my list to read is alkanize or die.



Oh and to answer someone's ? about how to treat it. A major component is diet which for most cf'ers may prove difficult, its difficult for the average person. There are components which you can incorporate easily enough I think. One other think that has proved effective is if your body is acidic get it back into neutral territory. There is also colonics to flush some candida out and prevent some of the 'die off' symptoms. Additionally there are orals you can take such as fluconazole which is hard on your liver FYI.

here is some preliminary info on testing for those interested: <a target=_blank class=ftalternatingbarlinklarge href="http://cftoo.blogspot.com/2010/03/diagnostic-tests-for-candida.html">http://cftoo.blogspot.com/2010...tests-for-candida.html</a>
 

mom2lillian

New member
Original thread: <a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/forums/messageview.cfm?catid=5&threadid=53043&enterthread=y
">http://www.cysticfibrosis.com/...3&enterthread=y
</a>


Jane I am so glad to hear you may be on your way to getting some things figured out. We have to proceed with caution on these sorts of 'fringe' diagnosis but I surely hope this is "IT" for you guys. Please do keep me updated on your status. I just went and got my blood drawn monday. Since I have completed 5 weeks of steroids this year I am thinking it wont show much but it will be interesting. I also got a stool culture to see if there is excessive candida or a lack of good bacteria. Unfortunately I had changed my diet for a couple weeks prior to the test so again will be interesting to see but I am not going to proceed with it not being a problem if I dont get something conclusive.

I have been drinking green smoothies and highly recommend the book Green for Life that Mandy recommended to me. Even my husband is drinking them and occasionally my daughter! They ahve regulated my digestion alot.

I also just received the book yeast overgrowth syndrom I believe its called I will post back if it is any good. NExt on my list to read is alkanize or die.



Oh and to answer someone's ? about how to treat it. A major component is diet which for most cf'ers may prove difficult, its difficult for the average person. There are components which you can incorporate easily enough I think. One other think that has proved effective is if your body is acidic get it back into neutral territory. There is also colonics to flush some candida out and prevent some of the 'die off' symptoms. Additionally there are orals you can take such as fluconazole which is hard on your liver FYI.

here is some preliminary info on testing for those interested: <a target=_blank class=ftalternatingbarlinklarge href="http://cftoo.blogspot.com/2010/03/diagnostic-tests-for-candida.html">http://cftoo.blogspot.com/2010...tests-for-candida.html</a>
 

mom2lillian

New member
Original thread: <a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/forums/messageview.cfm?catid=5&threadid=53043&enterthread=y
<br />">http://www.cysticfibrosis.com/...3&enterthread=y
<br /></a>
<br />
<br />
<br />Jane I am so glad to hear you may be on your way to getting some things figured out. We have to proceed with caution on these sorts of 'fringe' diagnosis but I surely hope this is "IT" for you guys. Please do keep me updated on your status. I just went and got my blood drawn monday. Since I have completed 5 weeks of steroids this year I am thinking it wont show much but it will be interesting. I also got a stool culture to see if there is excessive candida or a lack of good bacteria. Unfortunately I had changed my diet for a couple weeks prior to the test so again will be interesting to see but I am not going to proceed with it not being a problem if I dont get something conclusive.
<br />
<br />I have been drinking green smoothies and highly recommend the book Green for Life that Mandy recommended to me. Even my husband is drinking them and occasionally my daughter! They ahve regulated my digestion alot.
<br />
<br />I also just received the book yeast overgrowth syndrom I believe its called I will post back if it is any good. NExt on my list to read is alkanize or die.
<br />
<br />
<br />
<br />Oh and to answer someone's ? about how to treat it. A major component is diet which for most cf'ers may prove difficult, its difficult for the average person. There are components which you can incorporate easily enough I think. One other think that has proved effective is if your body is acidic get it back into neutral territory. There is also colonics to flush some candida out and prevent some of the 'die off' symptoms. Additionally there are orals you can take such as fluconazole which is hard on your liver FYI.
<br />
<br />here is some preliminary info on testing for those interested: <a target=_blank class=ftalternatingbarlinklarge href="http://cftoo.blogspot.com/2010/03/diagnostic-tests-for-candida.html">http://cftoo.blogspot.com/2010...tests-for-candida.html</a>
 

Jane

Digital opinion leader
Our doctor wants to put off treatment until after the bronchoscopy and impedence study already scheduled for next Wed.

So frustrating to wait, now that we may have some answers.
 

Jane

Digital opinion leader
Our doctor wants to put off treatment until after the bronchoscopy and impedence study already scheduled for next Wed.

So frustrating to wait, now that we may have some answers.
 

Jane

Digital opinion leader
Our doctor wants to put off treatment until after the bronchoscopy and impedence study already scheduled for next Wed.

So frustrating to wait, now that we may have some answers.
 

Jane

Digital opinion leader
Our doctor wants to put off treatment until after the bronchoscopy and impedence study already scheduled for next Wed.

So frustrating to wait, now that we may have some answers.
 

Jane

Digital opinion leader
Our doctor wants to put off treatment until after the bronchoscopy and impedence study already scheduled for next Wed.
<br />
<br />So frustrating to wait, now that we may have some answers.
 

ktsmom

New member
Jane - it would be SO AWESOME if this discovery will lead to Josh feeling better! I hope the wait isn't too long. Our best friends (a non-cf family) absolutely swears by this green smoothie thing. They are into a lot of holistic health ideas and I trust them. Are there any things you can try on your own while you wait?

p.s. I can't believe your doc would be even mildly reluctant to follow any of your suggestions. You've earned your honorary M.D. as far as I'm concerned! <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

ktsmom

New member
Jane - it would be SO AWESOME if this discovery will lead to Josh feeling better! I hope the wait isn't too long. Our best friends (a non-cf family) absolutely swears by this green smoothie thing. They are into a lot of holistic health ideas and I trust them. Are there any things you can try on your own while you wait?

p.s. I can't believe your doc would be even mildly reluctant to follow any of your suggestions. You've earned your honorary M.D. as far as I'm concerned! <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

ktsmom

New member
Jane - it would be SO AWESOME if this discovery will lead to Josh feeling better! I hope the wait isn't too long. Our best friends (a non-cf family) absolutely swears by this green smoothie thing. They are into a lot of holistic health ideas and I trust them. Are there any things you can try on your own while you wait?

p.s. I can't believe your doc would be even mildly reluctant to follow any of your suggestions. You've earned your honorary M.D. as far as I'm concerned! <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

ktsmom

New member
Jane - it would be SO AWESOME if this discovery will lead to Josh feeling better! I hope the wait isn't too long. Our best friends (a non-cf family) absolutely swears by this green smoothie thing. They are into a lot of holistic health ideas and I trust them. Are there any things you can try on your own while you wait?

p.s. I can't believe your doc would be even mildly reluctant to follow any of your suggestions. You've earned your honorary M.D. as far as I'm concerned! <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

ktsmom

New member
Jane - it would be SO AWESOME if this discovery will lead to Josh feeling better! I hope the wait isn't too long. Our best friends (a non-cf family) absolutely swears by this green smoothie thing. They are into a lot of holistic health ideas and I trust them. Are there any things you can try on your own while you wait?
<br />
<br />p.s. I can't believe your doc would be even mildly reluctant to follow any of your suggestions. You've earned your honorary M.D. as far as I'm concerned! <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

mom2lillian

New member
if this is it tell them they can thank me and pay you later!

I am sure it is very frustrating to wait however better than to start treating and have it not be that and then have covered up clues as to what it is.

ALso just FYI I had high levels of inflammation when I had my bronchoscopy and I had a bad reaction, hard to breathe, flu like etc for days afterword just FYI
 

mom2lillian

New member
if this is it tell them they can thank me and pay you later!

I am sure it is very frustrating to wait however better than to start treating and have it not be that and then have covered up clues as to what it is.

ALso just FYI I had high levels of inflammation when I had my bronchoscopy and I had a bad reaction, hard to breathe, flu like etc for days afterword just FYI
 

mom2lillian

New member
if this is it tell them they can thank me and pay you later!

I am sure it is very frustrating to wait however better than to start treating and have it not be that and then have covered up clues as to what it is.

ALso just FYI I had high levels of inflammation when I had my bronchoscopy and I had a bad reaction, hard to breathe, flu like etc for days afterword just FYI
 

mom2lillian

New member
if this is it tell them they can thank me and pay you later!

I am sure it is very frustrating to wait however better than to start treating and have it not be that and then have covered up clues as to what it is.

ALso just FYI I had high levels of inflammation when I had my bronchoscopy and I had a bad reaction, hard to breathe, flu like etc for days afterword just FYI
 

mom2lillian

New member
if this is it tell them they can thank me and pay you later!
<br />
<br />I am sure it is very frustrating to wait however better than to start treating and have it not be that and then have covered up clues as to what it is.
<br />
<br />ALso just FYI I had high levels of inflammation when I had my bronchoscopy and I had a bad reaction, hard to breathe, flu like etc for days afterword just FYI
 
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