What's new
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Still frustrated. Need some input to possible solution

AnD

New member
I can't really help with the bleeding issue, but I have had chronic sinus infections for years until I changed a few things (I also don't have sinus polyps for the most part- just occasionally a small one that goes away with a spray).

I started taking singulair, and that took care of the chronic part, I went to an allergist (found out I am allergic to mold and feathers- and I was sleeping with a goosedown blanket), and got a good ENT who has actually seen cf noses, instead of the doctor I had previously whom I didn't like a bit, and who seemed clueless.

The last time I had a sinus infection that wouldn't go away, My new ENT prescribed me an inhaled antibiotic (if you want the name, I will look it up- don't remember right now-smelled like cat pee minus the ammonia- yeesh) and inhaled pulmicort, via an Aeroneb Go Ultrasonic nasal neb, and that did wonders.

The pharmacist I spoke to about those meds said that some people even use the nasal pulmicort for allergies. I don't know if that has helped you at all, but I thought I would throw it out there just in case. I was, years ago, scheduled for sinus surgery, that I cancelled, and this year, my new ENT pronounced my sinuses a "0" <img src="i/expressions/face-icon-small-smile.gif" border="0"> .
 

AnD

New member
I can't really help with the bleeding issue, but I have had chronic sinus infections for years until I changed a few things (I also don't have sinus polyps for the most part- just occasionally a small one that goes away with a spray).

I started taking singulair, and that took care of the chronic part, I went to an allergist (found out I am allergic to mold and feathers- and I was sleeping with a goosedown blanket), and got a good ENT who has actually seen cf noses, instead of the doctor I had previously whom I didn't like a bit, and who seemed clueless.

The last time I had a sinus infection that wouldn't go away, My new ENT prescribed me an inhaled antibiotic (if you want the name, I will look it up- don't remember right now-smelled like cat pee minus the ammonia- yeesh) and inhaled pulmicort, via an Aeroneb Go Ultrasonic nasal neb, and that did wonders.

The pharmacist I spoke to about those meds said that some people even use the nasal pulmicort for allergies. I don't know if that has helped you at all, but I thought I would throw it out there just in case. I was, years ago, scheduled for sinus surgery, that I cancelled, and this year, my new ENT pronounced my sinuses a "0" <img src="i/expressions/face-icon-small-smile.gif" border="0"> .
 

AnD

New member
I can't really help with the bleeding issue, but I have had chronic sinus infections for years until I changed a few things (I also don't have sinus polyps for the most part- just occasionally a small one that goes away with a spray).

I started taking singulair, and that took care of the chronic part, I went to an allergist (found out I am allergic to mold and feathers- and I was sleeping with a goosedown blanket), and got a good ENT who has actually seen cf noses, instead of the doctor I had previously whom I didn't like a bit, and who seemed clueless.

The last time I had a sinus infection that wouldn't go away, My new ENT prescribed me an inhaled antibiotic (if you want the name, I will look it up- don't remember right now-smelled like cat pee minus the ammonia- yeesh) and inhaled pulmicort, via an Aeroneb Go Ultrasonic nasal neb, and that did wonders.

The pharmacist I spoke to about those meds said that some people even use the nasal pulmicort for allergies. I don't know if that has helped you at all, but I thought I would throw it out there just in case. I was, years ago, scheduled for sinus surgery, that I cancelled, and this year, my new ENT pronounced my sinuses a "0" <img src="i/expressions/face-icon-small-smile.gif" border="0"> .
 

AnD

New member
I can't really help with the bleeding issue, but I have had chronic sinus infections for years until I changed a few things (I also don't have sinus polyps for the most part- just occasionally a small one that goes away with a spray).

I started taking singulair, and that took care of the chronic part, I went to an allergist (found out I am allergic to mold and feathers- and I was sleeping with a goosedown blanket), and got a good ENT who has actually seen cf noses, instead of the doctor I had previously whom I didn't like a bit, and who seemed clueless.

The last time I had a sinus infection that wouldn't go away, My new ENT prescribed me an inhaled antibiotic (if you want the name, I will look it up- don't remember right now-smelled like cat pee minus the ammonia- yeesh) and inhaled pulmicort, via an Aeroneb Go Ultrasonic nasal neb, and that did wonders.

The pharmacist I spoke to about those meds said that some people even use the nasal pulmicort for allergies. I don't know if that has helped you at all, but I thought I would throw it out there just in case. I was, years ago, scheduled for sinus surgery, that I cancelled, and this year, my new ENT pronounced my sinuses a "0" <img src="i/expressions/face-icon-small-smile.gif" border="0"> .
 

AnD

New member
I can't really help with the bleeding issue, but I have had chronic sinus infections for years until I changed a few things (I also don't have sinus polyps for the most part- just occasionally a small one that goes away with a spray).

I started taking singulair, and that took care of the chronic part, I went to an allergist (found out I am allergic to mold and feathers- and I was sleeping with a goosedown blanket), and got a good ENT who has actually seen cf noses, instead of the doctor I had previously whom I didn't like a bit, and who seemed clueless.

The last time I had a sinus infection that wouldn't go away, My new ENT prescribed me an inhaled antibiotic (if you want the name, I will look it up- don't remember right now-smelled like cat pee minus the ammonia- yeesh) and inhaled pulmicort, via an Aeroneb Go Ultrasonic nasal neb, and that did wonders.

The pharmacist I spoke to about those meds said that some people even use the nasal pulmicort for allergies. I don't know if that has helped you at all, but I thought I would throw it out there just in case. I was, years ago, scheduled for sinus surgery, that I cancelled, and this year, my new ENT pronounced my sinuses a "0" <img src="i/expressions/face-icon-small-smile.gif" border="0"> .
 
Top