Amanda, after reading your post, I went to the caringbridge and read her journal too. Had to keep the box of kleenex close. What a journey this family has been on--and now they are just living one day at a time--as they say "waiting for Kaylee to get her wings.." While we are having our petty arguments here, a family is watching every breath their daughter makes--cherishing every last smile...going to Dollywood. They are living life out loud, for as long as they can. We need to keep this family in our prayers.