What happened to the mannatech thread?

[Allie]

I don't have a reason to use the products. Why would use something so ridiculously overpriced, that has no bearing other than testimonial?

The reason I posted the suit was for this handy little tidbit:

<div class="FTQUOTE"><begin quote>Mannatech, several of its officers, and a chiropractor who was a major distributor are being sued by the mother of a child who died of Tay-Sachs disease whose photograph has been used to promote Mannatech products. According to the complaint:
1)Mannatech distributors circulated a nude picture of the child and claimed that he had benefited from their products.

2)The child actually died in 1997, shortly after using the products.

3)The marketing campaign persisted until 2004 despite requests by child's mother to stop it.


</end quote></div>


Try and tell me this isn't a corrupt campaign. It's sick that they would lie about something like that. Just to prey on people desperate for a cure, or for help. I didn't comment on the original thread because this arguement has gone around time and again.

I wish Michelle would comment on this thread, as she has a degree in this sort of thing and can tell you exactly WHY it doesn't work.

I do have a confession to make. I, desperately, bought some this stuff for my husband a few years ago. It was insanely expensive, and guess what it helped? NOTHING. So don't tell me I have no say in this, I hope I can keep people from forking over thier pocketbooks in desperation. I'm ashamed of myself, deeply, for ever even THINKING that sugar could help.

 

[jfarel]

Thanks for admitting you tried it (husband), but I stand by my statements. It hasn't helped me that much, but I'm not afraid to admit I've spent thousands on the product. When your not getting better sometimes you'll try just about anything. What's wrong with personal testimonials anyway? I know they aren't scientific, but if it helps people who cares? BTW, tons of people are sued, it doesn't mean they have a case. It's hard to enforce what everyone of the thousands of mannatech associates say in their pitch. There are unethical people everywhere in sales, not just mannatech.

 

[jfarel]

Thanks for admitting you tried it (husband), but I stand by my statements. It hasn't helped me that much, but I'm not afraid to admit I've spent thousands on the product. When your not getting better sometimes you'll try just about anything. What's wrong with personal testimonials anyway? I know they aren't scientific, but if it helps people who cares? BTW, tons of people are sued, it doesn't mean they have a case. It's hard to enforce what everyone of the thousands of mannatech associates say in their pitch. There are unethical people everywhere in sales, not just mannatech.

 

[jfarel]

Thanks for admitting you tried it (husband), but I stand by my statements. It hasn't helped me that much, but I'm not afraid to admit I've spent thousands on the product. When your not getting better sometimes you'll try just about anything. What's wrong with personal testimonials anyway? I know they aren't scientific, but if it helps people who cares? BTW, tons of people are sued, it doesn't mean they have a case. It's hard to enforce what everyone of the thousands of mannatech associates say in their pitch. There are unethical people everywhere in sales, not just mannatech.

 

[JazzysMom]

jfarel....is this the one you were speaking of? this is a link to a recent discusssion on it!


it was under nutrition/supplements

<a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=1&threadid=13853&highlight_key=y">http://forums.cysticfibrosis.c...=13853&highlight_key=y</a>

 

[JazzysMom]

jfarel....is this the one you were speaking of? this is a link to a recent discusssion on it!


it was under nutrition/supplements

<a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=1&threadid=13853&highlight_key=y">http://forums.cysticfibrosis.c...=13853&highlight_key=y</a>

 

[JazzysMom]

jfarel....is this the one you were speaking of? this is a link to a recent discusssion on it!


it was under nutrition/supplements

<a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=1&threadid=13853&highlight_key=y">http://forums.cysticfibrosis.c...=13853&highlight_key=y</a>

 

[Bob]

I posted the original Mannatech forum and can understand some of your attitudes. Something that may work for one person may not work for another, just because it was my first forum doesn't mean I wasnt't genuine. I have been reading forums for the last year and figured maybe I could help someone else feel better. I have tried Curcumin, Fish Oil and Orgeno Oil. How do you think I found out about all of these herbal treatments. FROM OTHER FORUMS POSTED BY OTHER PEOPLE>>>>

This past year I have been sick three times, March 06 I couldn't leave my bed for 4 days with the Flu and missed almost a month from work. In July I picked up some kind of lunf infection at my Aunt's cottage on a fishing trip. My lung function dropped from my normal 32% down to 22%. I almost collapse in an aisle at Home Depot because I couldn't breathe. In the first week of September the lung function came back again, three times I almost had to call for an ambulance to bring me Oxygen. I started Mannatech that same week, my cardio strength feels like it did 10 years when I was diagnosed at age 22.

I know the suffering some of you may have gone through. Still think I am trying to sell.

Bob 32 w/cf, Twin brother of Dave 32 w/cf

Dave has alo posted forums but I am not sure what his username is

 

[Bob]

I posted the original Mannatech forum and can understand some of your attitudes. Something that may work for one person may not work for another, just because it was my first forum doesn't mean I wasnt't genuine. I have been reading forums for the last year and figured maybe I could help someone else feel better. I have tried Curcumin, Fish Oil and Orgeno Oil. How do you think I found out about all of these herbal treatments. FROM OTHER FORUMS POSTED BY OTHER PEOPLE>>>>

This past year I have been sick three times, March 06 I couldn't leave my bed for 4 days with the Flu and missed almost a month from work. In July I picked up some kind of lunf infection at my Aunt's cottage on a fishing trip. My lung function dropped from my normal 32% down to 22%. I almost collapse in an aisle at Home Depot because I couldn't breathe. In the first week of September the lung function came back again, three times I almost had to call for an ambulance to bring me Oxygen. I started Mannatech that same week, my cardio strength feels like it did 10 years when I was diagnosed at age 22.

I know the suffering some of you may have gone through. Still think I am trying to sell.

Bob 32 w/cf, Twin brother of Dave 32 w/cf

Dave has alo posted forums but I am not sure what his username is

 

[Bob]

I posted the original Mannatech forum and can understand some of your attitudes. Something that may work for one person may not work for another, just because it was my first forum doesn't mean I wasnt't genuine. I have been reading forums for the last year and figured maybe I could help someone else feel better. I have tried Curcumin, Fish Oil and Orgeno Oil. How do you think I found out about all of these herbal treatments. FROM OTHER FORUMS POSTED BY OTHER PEOPLE>>>>

This past year I have been sick three times, March 06 I couldn't leave my bed for 4 days with the Flu and missed almost a month from work. In July I picked up some kind of lunf infection at my Aunt's cottage on a fishing trip. My lung function dropped from my normal 32% down to 22%. I almost collapse in an aisle at Home Depot because I couldn't breathe. In the first week of September the lung function came back again, three times I almost had to call for an ambulance to bring me Oxygen. I started Mannatech that same week, my cardio strength feels like it did 10 years when I was diagnosed at age 22.

I know the suffering some of you may have gone through. Still think I am trying to sell.

Bob 32 w/cf, Twin brother of Dave 32 w/cf

Dave has alo posted forums but I am not sure what his username is

 

[Prussian]

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[Prussian]

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[Prussian]

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[sue35]

Ok apparently people know exactly what is a scam and what isn't (although how you can tell for sure I don't know) but I was almost collapsing from lack of oxygen two years ago and also could not leave my bed even to go to the bathroom and I was not prescribed oxygen. So maybe before we tell people to go to hell we should make 100% sure that this person isn't lying

 

[sue35]

Ok apparently people know exactly what is a scam and what isn't (although how you can tell for sure I don't know) but I was almost collapsing from lack of oxygen two years ago and also could not leave my bed even to go to the bathroom and I was not prescribed oxygen. So maybe before we tell people to go to hell we should make 100% sure that this person isn't lying

 

[sue35]

Ok apparently people know exactly what is a scam and what isn't (although how you can tell for sure I don't know) but I was almost collapsing from lack of oxygen two years ago and also could not leave my bed even to go to the bathroom and I was not prescribed oxygen. So maybe before we tell people to go to hell we should make 100% sure that this person isn't lying

 

[miesl]

Here's what I think:

1. MLM stinks of scam. If your products are so freakin' awesome, you don't need an MLM scheme to sell them.

2. Give me a double blind, placebo controlled study. Then we'll talk.

3. What was it I wanted again? I want a well designed study. I want double blind. I want to know what the placebo effect is. I want to read about the experimental conditions. I want to see it in a respectable peer-reviewed journal (AJM). Surely, if it is the breakthrough it is claimed to be, this shouldn't be a problem. Without these things, all there is are case studies, which are confounded by x and y other variables. If I were to confound an experiment with excess variables when I was working in the lab, guess how much those results would be worth... Nothing. Without statistics, it's all speculation.

4. <a target=_blank class=ftalternatingbarlinklarge href="http://www.ds-health.com/ambr.htm">Ambrotose and Down Syndrome</a> A nice article by an MD. A lot of the content is not DS specific, but more an anaylsis of ambrotose.

5. <a target=_blank class=ftalternatingbarlinklarge href="http://www.innvista.com/HEALTH/nutrition/essensug/default.htm">Essential Sugars</a> A website that does promote the use of Essential Sugars - and provides information on how to get them through diet instead of expensive supplements.

6. The previous website links to <a target=_blank class=ftalternatingbarlinklarge href="http://www.burnoutsolutions.com.au/glyconutrients.htm">Glyconutrients</a> -a recipe to make a blend of all the "essentials" yourself - without costing a ton. It also mentions that yes, we can in fact make all of these sugars from glucose.

 

[miesl]

Here's what I think:

1. MLM stinks of scam. If your products are so freakin' awesome, you don't need an MLM scheme to sell them.

2. Give me a double blind, placebo controlled study. Then we'll talk.

3. What was it I wanted again? I want a well designed study. I want double blind. I want to know what the placebo effect is. I want to read about the experimental conditions. I want to see it in a respectable peer-reviewed journal (AJM). Surely, if it is the breakthrough it is claimed to be, this shouldn't be a problem. Without these things, all there is are case studies, which are confounded by x and y other variables. If I were to confound an experiment with excess variables when I was working in the lab, guess how much those results would be worth... Nothing. Without statistics, it's all speculation.

4. <a target=_blank class=ftalternatingbarlinklarge href="http://www.ds-health.com/ambr.htm">Ambrotose and Down Syndrome</a> A nice article by an MD. A lot of the content is not DS specific, but more an anaylsis of ambrotose.

5. <a target=_blank class=ftalternatingbarlinklarge href="http://www.innvista.com/HEALTH/nutrition/essensug/default.htm">Essential Sugars</a> A website that does promote the use of Essential Sugars - and provides information on how to get them through diet instead of expensive supplements.

6. The previous website links to <a target=_blank class=ftalternatingbarlinklarge href="http://www.burnoutsolutions.com.au/glyconutrients.htm">Glyconutrients</a> -a recipe to make a blend of all the "essentials" yourself - without costing a ton. It also mentions that yes, we can in fact make all of these sugars from glucose.

 

[miesl]

Here's what I think:

1. MLM stinks of scam. If your products are so freakin' awesome, you don't need an MLM scheme to sell them.

2. Give me a double blind, placebo controlled study. Then we'll talk.

3. What was it I wanted again? I want a well designed study. I want double blind. I want to know what the placebo effect is. I want to read about the experimental conditions. I want to see it in a respectable peer-reviewed journal (AJM). Surely, if it is the breakthrough it is claimed to be, this shouldn't be a problem. Without these things, all there is are case studies, which are confounded by x and y other variables. If I were to confound an experiment with excess variables when I was working in the lab, guess how much those results would be worth... Nothing. Without statistics, it's all speculation.

4. <a target=_blank class=ftalternatingbarlinklarge href="http://www.ds-health.com/ambr.htm">Ambrotose and Down Syndrome</a> A nice article by an MD. A lot of the content is not DS specific, but more an anaylsis of ambrotose.

5. <a target=_blank class=ftalternatingbarlinklarge href="http://www.innvista.com/HEALTH/nutrition/essensug/default.htm">Essential Sugars</a> A website that does promote the use of Essential Sugars - and provides information on how to get them through diet instead of expensive supplements.

6. The previous website links to <a target=_blank class=ftalternatingbarlinklarge href="http://www.burnoutsolutions.com.au/glyconutrients.htm">Glyconutrients</a> -a recipe to make a blend of all the "essentials" yourself - without costing a ton. It also mentions that yes, we can in fact make all of these sugars from glucose.

 

[dasjsmum]

I think Mannatech does do some good for many people...you have to be on it for at least six months to allow the glyconutrients to be effective at a cellular level...IF they are effective. Many people seem to swear by them, however I would like to see a trial for it as well. What really irks me about Mannatech is the PRICE!! It's supposed to be a Christian organisation providing help for people with physical illness...that being the case, why dont they live up to the name they have appropriated 'Manna' (which fell from heaven for free), and make it available at more realistic prices!!