why is my son exhausted all the time?

[Skye]

Sinus problems may sound kind of simple but they can be a drag. Makes you feel crummy with a headache. When I was a child, the biggest thing that got to me and made me sit out even when I was having a ball was a tummy ache. CF tummy aches are not your average ache. They are unbearable at times. They also can make you not want to eat a thing even if you have a great appetite at other times. I can remember going swimming and then just having to stop my favorite summer activity because my tummy hurt so bad. For me, it was not enough enzymes. Hope some of the suggestions help.

Karen

 

[Skye]

Sinus problems may sound kind of simple but they can be a drag. Makes you feel crummy with a headache. When I was a child, the biggest thing that got to me and made me sit out even when I was having a ball was a tummy ache. CF tummy aches are not your average ache. They are unbearable at times. They also can make you not want to eat a thing even if you have a great appetite at other times. I can remember going swimming and then just having to stop my favorite summer activity because my tummy hurt so bad. For me, it was not enough enzymes. Hope some of the suggestions help.

Karen

 

[Skye]

Sinus problems may sound kind of simple but they can be a drag. Makes you feel crummy with a headache. When I was a child, the biggest thing that got to me and made me sit out even when I was having a ball was a tummy ache. CF tummy aches are not your average ache. They are unbearable at times. They also can make you not want to eat a thing even if you have a great appetite at other times. I can remember going swimming and then just having to stop my favorite summer activity because my tummy hurt so bad. For me, it was not enough enzymes. Hope some of the suggestions help.

Karen

 

[Skye]

Sinus problems may sound kind of simple but they can be a drag. Makes you feel crummy with a headache. When I was a child, the biggest thing that got to me and made me sit out even when I was having a ball was a tummy ache. CF tummy aches are not your average ache. They are unbearable at times. They also can make you not want to eat a thing even if you have a great appetite at other times. I can remember going swimming and then just having to stop my favorite summer activity because my tummy hurt so bad. For me, it was not enough enzymes. Hope some of the suggestions help.

Karen

 

[Skye]

Sinus problems may sound kind of simple but they can be a drag. Makes you feel crummy with a headache. When I was a child, the biggest thing that got to me and made me sit out even when I was having a ball was a tummy ache. CF tummy aches are not your average ache. They are unbearable at times. They also can make you not want to eat a thing even if you have a great appetite at other times. I can remember going swimming and then just having to stop my favorite summer activity because my tummy hurt so bad. For me, it was not enough enzymes. Hope some of the suggestions help.

Karen

 

[gr33nie]

Thank you for all of the replies. That's given me a lot to think about.

to answer a couple of questions. His 02 was 98 when they measured it a week ago a the peds. office. I'm not sure if I could get him to exert himself with the 02 monitor on as he hates all of that equipment and often cries etc. when we try to get measurements but that is a really good idea.

A few people brought up cfrd and I will look into that further. Is that something that could be seen from a regular blood panel?

He does mostly mouth breathe because of his sinuses and I'm hopeful that removing his adenoids will help with that.

So far, nothing has been done about his liver. I'm going to call the CF nurse on Mon. and see if they can do an ultrasound while he's sedated for the adenoid. He is not on any medication for it though.

I 'think' that his enzymes are good right now. He's been pooping twice a day and they have been pretty formed although very smelly. I'm going to watch that though as he might need a boost on those.

The other thing that I'm going to try is putting him to bed an hour earlier and see if more night time sleep will help him during the day.

Thanks so much for the great ideas.

Sarah

 

[gr33nie]

Thank you for all of the replies. That's given me a lot to think about.

to answer a couple of questions. His 02 was 98 when they measured it a week ago a the peds. office. I'm not sure if I could get him to exert himself with the 02 monitor on as he hates all of that equipment and often cries etc. when we try to get measurements but that is a really good idea.

A few people brought up cfrd and I will look into that further. Is that something that could be seen from a regular blood panel?

He does mostly mouth breathe because of his sinuses and I'm hopeful that removing his adenoids will help with that.

So far, nothing has been done about his liver. I'm going to call the CF nurse on Mon. and see if they can do an ultrasound while he's sedated for the adenoid. He is not on any medication for it though.

I 'think' that his enzymes are good right now. He's been pooping twice a day and they have been pretty formed although very smelly. I'm going to watch that though as he might need a boost on those.

The other thing that I'm going to try is putting him to bed an hour earlier and see if more night time sleep will help him during the day.

Thanks so much for the great ideas.

Sarah

 

[gr33nie]

Thank you for all of the replies. That's given me a lot to think about.

to answer a couple of questions. His 02 was 98 when they measured it a week ago a the peds. office. I'm not sure if I could get him to exert himself with the 02 monitor on as he hates all of that equipment and often cries etc. when we try to get measurements but that is a really good idea.

A few people brought up cfrd and I will look into that further. Is that something that could be seen from a regular blood panel?

He does mostly mouth breathe because of his sinuses and I'm hopeful that removing his adenoids will help with that.

So far, nothing has been done about his liver. I'm going to call the CF nurse on Mon. and see if they can do an ultrasound while he's sedated for the adenoid. He is not on any medication for it though.

I 'think' that his enzymes are good right now. He's been pooping twice a day and they have been pretty formed although very smelly. I'm going to watch that though as he might need a boost on those.

The other thing that I'm going to try is putting him to bed an hour earlier and see if more night time sleep will help him during the day.

Thanks so much for the great ideas.

Sarah

 

[gr33nie]

Thank you for all of the replies. That's given me a lot to think about.

to answer a couple of questions. His 02 was 98 when they measured it a week ago a the peds. office. I'm not sure if I could get him to exert himself with the 02 monitor on as he hates all of that equipment and often cries etc. when we try to get measurements but that is a really good idea.

A few people brought up cfrd and I will look into that further. Is that something that could be seen from a regular blood panel?

He does mostly mouth breathe because of his sinuses and I'm hopeful that removing his adenoids will help with that.

So far, nothing has been done about his liver. I'm going to call the CF nurse on Mon. and see if they can do an ultrasound while he's sedated for the adenoid. He is not on any medication for it though.

I 'think' that his enzymes are good right now. He's been pooping twice a day and they have been pretty formed although very smelly. I'm going to watch that though as he might need a boost on those.

The other thing that I'm going to try is putting him to bed an hour earlier and see if more night time sleep will help him during the day.

Thanks so much for the great ideas.

Sarah

 

[gr33nie]

Thank you for all of the replies. That's given me a lot to think about.

to answer a couple of questions. His 02 was 98 when they measured it a week ago a the peds. office. I'm not sure if I could get him to exert himself with the 02 monitor on as he hates all of that equipment and often cries etc. when we try to get measurements but that is a really good idea.

A few people brought up cfrd and I will look into that further. Is that something that could be seen from a regular blood panel?

He does mostly mouth breathe because of his sinuses and I'm hopeful that removing his adenoids will help with that.

So far, nothing has been done about his liver. I'm going to call the CF nurse on Mon. and see if they can do an ultrasound while he's sedated for the adenoid. He is not on any medication for it though.

I 'think' that his enzymes are good right now. He's been pooping twice a day and they have been pretty formed although very smelly. I'm going to watch that though as he might need a boost on those.

The other thing that I'm going to try is putting him to bed an hour earlier and see if more night time sleep will help him during the day.

Thanks so much for the great ideas.

Sarah

 

[Foody]

our son has had more sinus stuff going on this year and we started with NeilMed's pediatric nasal rinse system. it hasn't been easy to get another thing into the routine but it does help. it turns out he was allergic to our new kitty too, so we had him treated for it.

food allergy pops into my mind. hidden food allergy can really take a toll on the body and sends the immune response into hyper-overdrive making you tired. you can get him tested through bloodwork or something called NAET which is the system we used to eliminate our son's dairy/seasonal allergy. Here is a collection of some resources <a target=_blank class=ftalternatingbarlinklarge href="http://www.cfnutrition4life.com/cfnu/articles.php?cat_id=2
">http://www.cfnutrition4life.co...articles.php?cat_id=2
</a>
in our experience and after reading, we found too much reliance on milk and liquids in the diet can curb appetite and make it difficult to get other high calorie/nutrient rich foods into them. I would try only offering milk/smoothies after a meal or as a major part of a snack. toddlers are tough and what is normal eating distractions for their age often freaks us out to no end as parents of cfers. i try to find his favorites and add veggies in the form of purees whereever I can (ie pureed peas/spinach to meatloaf or meatballs). also I use coconut milk and oils alot to add calories. ground nuts (if not allergic) and pureed beans can be hidden in alot stuff too and adds calories and protein which the body can use alot.

some supplements which reduce inflammation could be added and a daily probiotic might help with digestion. we use DHA, tumeric, GSH, extra C, taurine, and chelated magnesium to help. we have been happy with the results.

 

[Foody]

our son has had more sinus stuff going on this year and we started with NeilMed's pediatric nasal rinse system. it hasn't been easy to get another thing into the routine but it does help. it turns out he was allergic to our new kitty too, so we had him treated for it.

food allergy pops into my mind. hidden food allergy can really take a toll on the body and sends the immune response into hyper-overdrive making you tired. you can get him tested through bloodwork or something called NAET which is the system we used to eliminate our son's dairy/seasonal allergy. Here is a collection of some resources <a target=_blank class=ftalternatingbarlinklarge href="http://www.cfnutrition4life.com/cfnu/articles.php?cat_id=2
">http://www.cfnutrition4life.co...articles.php?cat_id=2
</a>
in our experience and after reading, we found too much reliance on milk and liquids in the diet can curb appetite and make it difficult to get other high calorie/nutrient rich foods into them. I would try only offering milk/smoothies after a meal or as a major part of a snack. toddlers are tough and what is normal eating distractions for their age often freaks us out to no end as parents of cfers. i try to find his favorites and add veggies in the form of purees whereever I can (ie pureed peas/spinach to meatloaf or meatballs). also I use coconut milk and oils alot to add calories. ground nuts (if not allergic) and pureed beans can be hidden in alot stuff too and adds calories and protein which the body can use alot.

some supplements which reduce inflammation could be added and a daily probiotic might help with digestion. we use DHA, tumeric, GSH, extra C, taurine, and chelated magnesium to help. we have been happy with the results.

 

[Foody]

our son has had more sinus stuff going on this year and we started with NeilMed's pediatric nasal rinse system. it hasn't been easy to get another thing into the routine but it does help. it turns out he was allergic to our new kitty too, so we had him treated for it.

food allergy pops into my mind. hidden food allergy can really take a toll on the body and sends the immune response into hyper-overdrive making you tired. you can get him tested through bloodwork or something called NAET which is the system we used to eliminate our son's dairy/seasonal allergy. Here is a collection of some resources <a target=_blank class=ftalternatingbarlinklarge href="http://www.cfnutrition4life.com/cfnu/articles.php?cat_id=2
">http://www.cfnutrition4life.co...articles.php?cat_id=2
</a>
in our experience and after reading, we found too much reliance on milk and liquids in the diet can curb appetite and make it difficult to get other high calorie/nutrient rich foods into them. I would try only offering milk/smoothies after a meal or as a major part of a snack. toddlers are tough and what is normal eating distractions for their age often freaks us out to no end as parents of cfers. i try to find his favorites and add veggies in the form of purees whereever I can (ie pureed peas/spinach to meatloaf or meatballs). also I use coconut milk and oils alot to add calories. ground nuts (if not allergic) and pureed beans can be hidden in alot stuff too and adds calories and protein which the body can use alot.

some supplements which reduce inflammation could be added and a daily probiotic might help with digestion. we use DHA, tumeric, GSH, extra C, taurine, and chelated magnesium to help. we have been happy with the results.

 

[Foody]

our son has had more sinus stuff going on this year and we started with NeilMed's pediatric nasal rinse system. it hasn't been easy to get another thing into the routine but it does help. it turns out he was allergic to our new kitty too, so we had him treated for it.

food allergy pops into my mind. hidden food allergy can really take a toll on the body and sends the immune response into hyper-overdrive making you tired. you can get him tested through bloodwork or something called NAET which is the system we used to eliminate our son's dairy/seasonal allergy. Here is a collection of some resources <a target=_blank class=ftalternatingbarlinklarge href="http://www.cfnutrition4life.com/cfnu/articles.php?cat_id=2
">http://www.cfnutrition4life.co...articles.php?cat_id=2
</a>
in our experience and after reading, we found too much reliance on milk and liquids in the diet can curb appetite and make it difficult to get other high calorie/nutrient rich foods into them. I would try only offering milk/smoothies after a meal or as a major part of a snack. toddlers are tough and what is normal eating distractions for their age often freaks us out to no end as parents of cfers. i try to find his favorites and add veggies in the form of purees whereever I can (ie pureed peas/spinach to meatloaf or meatballs). also I use coconut milk and oils alot to add calories. ground nuts (if not allergic) and pureed beans can be hidden in alot stuff too and adds calories and protein which the body can use alot.

some supplements which reduce inflammation could be added and a daily probiotic might help with digestion. we use DHA, tumeric, GSH, extra C, taurine, and chelated magnesium to help. we have been happy with the results.

 

[Foody]

our son has had more sinus stuff going on this year and we started with NeilMed's pediatric nasal rinse system. it hasn't been easy to get another thing into the routine but it does help. it turns out he was allergic to our new kitty too, so we had him treated for it.

food allergy pops into my mind. hidden food allergy can really take a toll on the body and sends the immune response into hyper-overdrive making you tired. you can get him tested through bloodwork or something called NAET which is the system we used to eliminate our son's dairy/seasonal allergy. Here is a collection of some resources <a target=_blank class=ftalternatingbarlinklarge href="http://www.cfnutrition4life.com/cfnu/articles.php?cat_id=2
">http://www.cfnutrition4life.co...articles.php?cat_id=2
</a>
in our experience and after reading, we found too much reliance on milk and liquids in the diet can curb appetite and make it difficult to get other high calorie/nutrient rich foods into them. I would try only offering milk/smoothies after a meal or as a major part of a snack. toddlers are tough and what is normal eating distractions for their age often freaks us out to no end as parents of cfers. i try to find his favorites and add veggies in the form of purees whereever I can (ie pureed peas/spinach to meatloaf or meatballs). also I use coconut milk and oils alot to add calories. ground nuts (if not allergic) and pureed beans can be hidden in alot stuff too and adds calories and protein which the body can use alot.

some supplements which reduce inflammation could be added and a daily probiotic might help with digestion. we use DHA, tumeric, GSH, extra C, taurine, and chelated magnesium to help. we have been happy with the results.

 

[Scarlett81]

another possibility-alot of kids can have allergies to dairy and you mentioned he is on a milk diet. perhaps consider allergy testing. many cfers get allergy testing at some point anyway, and many people w respiratory problems are sensitive to dairy.

as a kid pretty much no matter how sick i was i had energy to play. whether on ivs, or w a sinus infection, or having no appetite and low on cals. most kids can play through it all. if he is this tired i'd look to the o2 sats.
good luck.

 

[Scarlett81]

another possibility-alot of kids can have allergies to dairy and you mentioned he is on a milk diet. perhaps consider allergy testing. many cfers get allergy testing at some point anyway, and many people w respiratory problems are sensitive to dairy.

as a kid pretty much no matter how sick i was i had energy to play. whether on ivs, or w a sinus infection, or having no appetite and low on cals. most kids can play through it all. if he is this tired i'd look to the o2 sats.
good luck.

 

[Scarlett81]

another possibility-alot of kids can have allergies to dairy and you mentioned he is on a milk diet. perhaps consider allergy testing. many cfers get allergy testing at some point anyway, and many people w respiratory problems are sensitive to dairy.

as a kid pretty much no matter how sick i was i had energy to play. whether on ivs, or w a sinus infection, or having no appetite and low on cals. most kids can play through it all. if he is this tired i'd look to the o2 sats.
good luck.

 

[Scarlett81]

another possibility-alot of kids can have allergies to dairy and you mentioned he is on a milk diet. perhaps consider allergy testing. many cfers get allergy testing at some point anyway, and many people w respiratory problems are sensitive to dairy.

as a kid pretty much no matter how sick i was i had energy to play. whether on ivs, or w a sinus infection, or having no appetite and low on cals. most kids can play through it all. if he is this tired i'd look to the o2 sats.
good luck.

 

[Scarlett81]

another possibility-alot of kids can have allergies to dairy and you mentioned he is on a milk diet. perhaps consider allergy testing. many cfers get allergy testing at some point anyway, and many people w respiratory problems are sensitive to dairy.

as a kid pretty much no matter how sick i was i had energy to play. whether on ivs, or w a sinus infection, or having no appetite and low on cals. most kids can play through it all. if he is this tired i'd look to the o2 sats.
good luck.