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kmaried

New member
Hi guys,

Just to offer a differing opinion -- my boss does not know I have CF. I too, am enrolled in a clinical trial that has me going to my CF doc every four weeks (the AI study). I occassionally have appts with the endocrinologist and rheumotologist too. So I definitely have the mystery appointments and mystery cough thing going on. I always figured that if I got sick enough to need more time or medical leave, I'll let my boss know.

When I leave for appts I either say that I have an appt, or even just take a half day... your boss doesn't need to know what it is for. I do this because I am pretty stubborn and independent and really like to make my own choices about how far I'm going to push myself or not push myself. I know discrimination is illegal, but it still happens. I don't want some great promotion coming up and my boss thinking, well she's been coughing an awful lot lately, I don't want to put any more pressure on her, and passing me up. He would be thinking he's doing me a favor and being compassionate, but I'd rather make my own decisions. Later on, I may have to change my approach if my health is starting to make me look like a poor worker, etc.

I'll give you a really good example. I just recently had the opportunity to go to Singapore and Australia for work. My boss is a BIG worrier. He was so nervous about bringing his antacid medication into the country of Singapore. Little did he know my suitcase was virtually a pharmacy. I was pretty nervous about it myself; but I really believe that if he knew all the circumstances, I would not have had the opportunity to go on that trip.

Of course, I'm not implying that this applies to all jobs, all bosses, and all situations... but that is where I am right now!

Best of Luck and Good Luck with the Clinical Trial -- They can really be great,
Kristin
 

kmaried

New member
Hi guys,

Just to offer a differing opinion -- my boss does not know I have CF. I too, am enrolled in a clinical trial that has me going to my CF doc every four weeks (the AI study). I occassionally have appts with the endocrinologist and rheumotologist too. So I definitely have the mystery appointments and mystery cough thing going on. I always figured that if I got sick enough to need more time or medical leave, I'll let my boss know.

When I leave for appts I either say that I have an appt, or even just take a half day... your boss doesn't need to know what it is for. I do this because I am pretty stubborn and independent and really like to make my own choices about how far I'm going to push myself or not push myself. I know discrimination is illegal, but it still happens. I don't want some great promotion coming up and my boss thinking, well she's been coughing an awful lot lately, I don't want to put any more pressure on her, and passing me up. He would be thinking he's doing me a favor and being compassionate, but I'd rather make my own decisions. Later on, I may have to change my approach if my health is starting to make me look like a poor worker, etc.

I'll give you a really good example. I just recently had the opportunity to go to Singapore and Australia for work. My boss is a BIG worrier. He was so nervous about bringing his antacid medication into the country of Singapore. Little did he know my suitcase was virtually a pharmacy. I was pretty nervous about it myself; but I really believe that if he knew all the circumstances, I would not have had the opportunity to go on that trip.

Of course, I'm not implying that this applies to all jobs, all bosses, and all situations... but that is where I am right now!

Best of Luck and Good Luck with the Clinical Trial -- They can really be great,
Kristin
 

kmaried

New member
Hi guys,

Just to offer a differing opinion -- my boss does not know I have CF. I too, am enrolled in a clinical trial that has me going to my CF doc every four weeks (the AI study). I occassionally have appts with the endocrinologist and rheumotologist too. So I definitely have the mystery appointments and mystery cough thing going on. I always figured that if I got sick enough to need more time or medical leave, I'll let my boss know.

When I leave for appts I either say that I have an appt, or even just take a half day... your boss doesn't need to know what it is for. I do this because I am pretty stubborn and independent and really like to make my own choices about how far I'm going to push myself or not push myself. I know discrimination is illegal, but it still happens. I don't want some great promotion coming up and my boss thinking, well she's been coughing an awful lot lately, I don't want to put any more pressure on her, and passing me up. He would be thinking he's doing me a favor and being compassionate, but I'd rather make my own decisions. Later on, I may have to change my approach if my health is starting to make me look like a poor worker, etc.

I'll give you a really good example. I just recently had the opportunity to go to Singapore and Australia for work. My boss is a BIG worrier. He was so nervous about bringing his antacid medication into the country of Singapore. Little did he know my suitcase was virtually a pharmacy. I was pretty nervous about it myself; but I really believe that if he knew all the circumstances, I would not have had the opportunity to go on that trip.

Of course, I'm not implying that this applies to all jobs, all bosses, and all situations... but that is where I am right now!

Best of Luck and Good Luck with the Clinical Trial -- They can really be great,
Kristin
 

kmaried

New member
Hi guys,

Just to offer a differing opinion -- my boss does not know I have CF. I too, am enrolled in a clinical trial that has me going to my CF doc every four weeks (the AI study). I occassionally have appts with the endocrinologist and rheumotologist too. So I definitely have the mystery appointments and mystery cough thing going on. I always figured that if I got sick enough to need more time or medical leave, I'll let my boss know.

When I leave for appts I either say that I have an appt, or even just take a half day... your boss doesn't need to know what it is for. I do this because I am pretty stubborn and independent and really like to make my own choices about how far I'm going to push myself or not push myself. I know discrimination is illegal, but it still happens. I don't want some great promotion coming up and my boss thinking, well she's been coughing an awful lot lately, I don't want to put any more pressure on her, and passing me up. He would be thinking he's doing me a favor and being compassionate, but I'd rather make my own decisions. Later on, I may have to change my approach if my health is starting to make me look like a poor worker, etc.

I'll give you a really good example. I just recently had the opportunity to go to Singapore and Australia for work. My boss is a BIG worrier. He was so nervous about bringing his antacid medication into the country of Singapore. Little did he know my suitcase was virtually a pharmacy. I was pretty nervous about it myself; but I really believe that if he knew all the circumstances, I would not have had the opportunity to go on that trip.

Of course, I'm not implying that this applies to all jobs, all bosses, and all situations... but that is where I am right now!

Best of Luck and Good Luck with the Clinical Trial -- They can really be great,
Kristin
 

kmaried

New member
Hi guys,

Just to offer a differing opinion -- my boss does not know I have CF. I too, am enrolled in a clinical trial that has me going to my CF doc every four weeks (the AI study). I occassionally have appts with the endocrinologist and rheumotologist too. So I definitely have the mystery appointments and mystery cough thing going on. I always figured that if I got sick enough to need more time or medical leave, I'll let my boss know.

When I leave for appts I either say that I have an appt, or even just take a half day... your boss doesn't need to know what it is for. I do this because I am pretty stubborn and independent and really like to make my own choices about how far I'm going to push myself or not push myself. I know discrimination is illegal, but it still happens. I don't want some great promotion coming up and my boss thinking, well she's been coughing an awful lot lately, I don't want to put any more pressure on her, and passing me up. He would be thinking he's doing me a favor and being compassionate, but I'd rather make my own decisions. Later on, I may have to change my approach if my health is starting to make me look like a poor worker, etc.

I'll give you a really good example. I just recently had the opportunity to go to Singapore and Australia for work. My boss is a BIG worrier. He was so nervous about bringing his antacid medication into the country of Singapore. Little did he know my suitcase was virtually a pharmacy. I was pretty nervous about it myself; but I really believe that if he knew all the circumstances, I would not have had the opportunity to go on that trip.

Of course, I'm not implying that this applies to all jobs, all bosses, and all situations... but that is where I am right now!

Best of Luck and Good Luck with the Clinical Trial -- They can really be great,
Kristin
 
S

SeeEff

Guest
I keep my bosses on a 'need to know' basis or 'don't ask, don't tell' policy. If the situation calls for it, I tell. If it doesn't, I don't <img src="i/expressions/face-icon-small-smile.gif" border="0">
Good luck <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
S

SeeEff

Guest
I keep my bosses on a 'need to know' basis or 'don't ask, don't tell' policy. If the situation calls for it, I tell. If it doesn't, I don't <img src="i/expressions/face-icon-small-smile.gif" border="0">
Good luck <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
S

SeeEff

Guest
I keep my bosses on a 'need to know' basis or 'don't ask, don't tell' policy. If the situation calls for it, I tell. If it doesn't, I don't <img src="i/expressions/face-icon-small-smile.gif" border="0">
Good luck <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
S

SeeEff

Guest
I keep my bosses on a 'need to know' basis or 'don't ask, don't tell' policy. If the situation calls for it, I tell. If it doesn't, I don't <img src="i/expressions/face-icon-small-smile.gif" border="0">
Good luck <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
S

SeeEff

Guest
I keep my bosses on a 'need to know' basis or 'don't ask, don't tell' policy. If the situation calls for it, I tell. If it doesn't, I don't <img src="i/expressions/face-icon-small-smile.gif" border="0">
Good luck <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
W

welshwitch

Guest
Hey y'all,

thanks for the positive advice. I went ahead and told my boss today about my CF(after agonizing about it for TOO LONG!) and she was very understanding and cool with it. Unfortunately she had that sad look in her face like, "Poor you, that is so heartbreaking" --the look I HATE! but I was clear with her that I don't want to be treated any differently and that it's nothing I want to affect my ability to work very hard.

I don't think I would have ever said anything if it weren't for these damn sinuses and the possibility of sinus surgery...so maybe it is a blessing in disguise!

life is uncertain.......


--welshwitch, f/27/cf
 
W

welshwitch

Guest
Hey y'all,

thanks for the positive advice. I went ahead and told my boss today about my CF(after agonizing about it for TOO LONG!) and she was very understanding and cool with it. Unfortunately she had that sad look in her face like, "Poor you, that is so heartbreaking" --the look I HATE! but I was clear with her that I don't want to be treated any differently and that it's nothing I want to affect my ability to work very hard.

I don't think I would have ever said anything if it weren't for these damn sinuses and the possibility of sinus surgery...so maybe it is a blessing in disguise!

life is uncertain.......


--welshwitch, f/27/cf
 
W

welshwitch

Guest
Hey y'all,

thanks for the positive advice. I went ahead and told my boss today about my CF(after agonizing about it for TOO LONG!) and she was very understanding and cool with it. Unfortunately she had that sad look in her face like, "Poor you, that is so heartbreaking" --the look I HATE! but I was clear with her that I don't want to be treated any differently and that it's nothing I want to affect my ability to work very hard.

I don't think I would have ever said anything if it weren't for these damn sinuses and the possibility of sinus surgery...so maybe it is a blessing in disguise!

life is uncertain.......


--welshwitch, f/27/cf
 
W

welshwitch

Guest
Hey y'all,

thanks for the positive advice. I went ahead and told my boss today about my CF(after agonizing about it for TOO LONG!) and she was very understanding and cool with it. Unfortunately she had that sad look in her face like, "Poor you, that is so heartbreaking" --the look I HATE! but I was clear with her that I don't want to be treated any differently and that it's nothing I want to affect my ability to work very hard.

I don't think I would have ever said anything if it weren't for these damn sinuses and the possibility of sinus surgery...so maybe it is a blessing in disguise!

life is uncertain.......


--welshwitch, f/27/cf
 
W

welshwitch

Guest
Hey y'all,

thanks for the positive advice. I went ahead and told my boss today about my CF(after agonizing about it for TOO LONG!) and she was very understanding and cool with it. Unfortunately she had that sad look in her face like, "Poor you, that is so heartbreaking" --the look I HATE! but I was clear with her that I don't want to be treated any differently and that it's nothing I want to affect my ability to work very hard.

I don't think I would have ever said anything if it weren't for these damn sinuses and the possibility of sinus surgery...so maybe it is a blessing in disguise!

life is uncertain.......


--welshwitch, f/27/cf
 

ALecointre

New member
I always let my bosses know that I have CF. But then again I am on IV anti's once or twice a year and I don't want to show up with my port activated (my port is in my arm not chest) and have them be totally surprised.

I feel like I would rather have them know as soon as possible in case something happens instead of springing on them later and getting fired.

Yes it is illegal to fire someone because they have CF. But it has happened to me before. They just never said they fired me for having CF they gave some other lame reason. And it's not always easy to prove that's why you were fired. Which makes it hard to sue them.

But I also know lots of other CFers who disagree with me and don't let thier bosses know unless they absolutely need to.

So to each thier own.
 

ALecointre

New member
I always let my bosses know that I have CF. But then again I am on IV anti's once or twice a year and I don't want to show up with my port activated (my port is in my arm not chest) and have them be totally surprised.

I feel like I would rather have them know as soon as possible in case something happens instead of springing on them later and getting fired.

Yes it is illegal to fire someone because they have CF. But it has happened to me before. They just never said they fired me for having CF they gave some other lame reason. And it's not always easy to prove that's why you were fired. Which makes it hard to sue them.

But I also know lots of other CFers who disagree with me and don't let thier bosses know unless they absolutely need to.

So to each thier own.
 

ALecointre

New member
I always let my bosses know that I have CF. But then again I am on IV anti's once or twice a year and I don't want to show up with my port activated (my port is in my arm not chest) and have them be totally surprised.

I feel like I would rather have them know as soon as possible in case something happens instead of springing on them later and getting fired.

Yes it is illegal to fire someone because they have CF. But it has happened to me before. They just never said they fired me for having CF they gave some other lame reason. And it's not always easy to prove that's why you were fired. Which makes it hard to sue them.

But I also know lots of other CFers who disagree with me and don't let thier bosses know unless they absolutely need to.

So to each thier own.
 

ALecointre

New member
I always let my bosses know that I have CF. But then again I am on IV anti's once or twice a year and I don't want to show up with my port activated (my port is in my arm not chest) and have them be totally surprised.

I feel like I would rather have them know as soon as possible in case something happens instead of springing on them later and getting fired.

Yes it is illegal to fire someone because they have CF. But it has happened to me before. They just never said they fired me for having CF they gave some other lame reason. And it's not always easy to prove that's why you were fired. Which makes it hard to sue them.

But I also know lots of other CFers who disagree with me and don't let thier bosses know unless they absolutely need to.

So to each thier own.
 

ALecointre

New member
I always let my bosses know that I have CF. But then again I am on IV anti's once or twice a year and I don't want to show up with my port activated (my port is in my arm not chest) and have them be totally surprised.

I feel like I would rather have them know as soon as possible in case something happens instead of springing on them later and getting fired.

Yes it is illegal to fire someone because they have CF. But it has happened to me before. They just never said they fired me for having CF they gave some other lame reason. And it's not always easy to prove that's why you were fired. Which makes it hard to sue them.

But I also know lots of other CFers who disagree with me and don't let thier bosses know unless they absolutely need to.

So to each thier own.
 
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