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I wash my nebs in the dishwasher. Bill

Excellent, Jenn

Kayla: You are an IDIOT. I'm 72 and I was dx at age 47. One man out here was dx at age 70. Bill

Dream: Why do you think that it so "ridiculous"? Bill

I did not have any hearing or vision problems, although I was tested for both, every two weeks. I had joint pain, muscle aches and a tiredness much like you would have with the flu. No skin problems at all. Bill

albino15: Love your post. I'm curious tho. Where did he have the sweat test done, CF Clinic or local hospital. How did they determine that he is a carrier? One mutation? Where was he screened and for how many mutations were included in the screening? I don't want to be misinformed or be using...

If I were Madeline's Doctor and I had told her to NOT get a tat. If she showed up in my office with one, I would TELL her to get another Doctor and I would tell you that you are an IDIOT. Who in hell do you thing that you are fooling. Certainly not her Medical Team. You are fooling with her...

Maybe you could find some middle ground here. Could you go into the Peace Corps. but not go to a third world country? It seems to me, that the Peace Corps is represented in most countries in the world. Bill

In business, before a decision is made, a RISK/BENEFIT analysis is run. The results point out how the scale leans. Which is stronger, RISK or BENEFIT. Bill

DO NOT have your local Doctor do a sweat test. Go to an APPROVED CF CLINIC and see a CF SPECIALIST. YES I believe that you do have CF Bill

I will not attempt to play Doctor here but I will talk more to you after your appointment. I will tell you that there are over 1800 known mutations. Given that a CF patient needs 2 mutations (1800X1800) there are over 3.2 million possible combinations. Delta F508 is the most common. Lets say...

OK can I assume that the Doctor that you are seeing is a CF Specialist? Massachusetts General Hospital is an Approved CF Center. They have a staff in excess of 2000 Doctors. Only 6 of those are CF Specialists. What did your Doctor tell you about her mutations? Bill

I'm not at all sure what it is that you are asking? Did you meet with a CF Specialist at an APPROVED CF CENTER? If not how did you get these results and what test was performed. What is your daughters age? Bill

We know that this kid is a carrier because his parents say that is so. Do we have any idea how many mutations that he has been tested for? I would guess that he was tested at birth for say 250 mutations. I didn't hear his parents presenting any case as to him having a full screening. Frankly...

00transam: I really wish more people like you, over 35, would post here. These teens need to hear and understand out stories. Bill

I lost 4 inches in my gut and about 10 pounds. Mucus functions as a glue and with food sticks to the intestines, in my case the colon. Stool then builds up upon itself, eventually creating a blockage. I now use Miralax, one capful in juice once a day (I was told that I could use it 3 times a...

Google Steven D. Freedman, MD, PhD. He is the leading CF/gastro Doctor in the US. Bill

Call the Social Worker at your CF Hospital. He/She either will help you or put you in touch with a person on staff who will.

Have your CF Doctor consult with him at the info on GOOGLE.

SJO: It is reasonable for a Mom to protect her child in the family enviroment. The problem occures when we venture out into the real world. The population of the United States is in excess of 311.6 million people. The CF population in the US is about 30,000 people (you can do the math)...