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"Stinky" can be a function of bacterial overgrowth. Again, this should be discussed with the CF Specialist at an approved CF Center. Bill

Yes!!!!!!!!

Thanks Love: If you open a CREON capsule, every little ball is the same size and same color BECAUSE they are all the same. They are the same in size, color and content. No little ball is different than any other ball. Bill

Is there a way that you can keep your son from school when he is coughing. We all know that CF is not contagious but we all spread the same germs that you are so concerned about. When your son coughs, he spreads them also. Will you be sending son to school when he has a "non allergy cough...

NO! NO! NO! Read my post above. Each little piece, inside a capsule, contains a % of each Lipase, Protease and Amylase. These three make up the ENZYME. You, or anyone else, cannot separate these three.

CREON (pancrelipase) is made up of a formulation of Lipase, Protease and Amylase. Each capsule contains pancrelipase in enteric spheres. So the answer is no. They are combined in the manufacturing process and then formed into spheres. Bill

Google Steven D Freedman, MD, PhD. He is the countries leading CF/GI Specialist. Bill

I would try calling first, if necessary drive the 2 hours. You have know idea how much or how little the local CF Doctor knows about CF. Bill

I'm 73 and there are 3 people, as patients, at my CF Clinic over 70. There is a hugh number of people on here, over 50. Bill

You can take him to the ER at your CF Center. His records are there and the ER Doctor can call his CF Doctor. Bill

Tom: There was a post "Alone & Afraid" I believe. A dad in Japan. They cant get vests in Japan. Take a moment and read through it. Bill

Carol: I had a very long conversation with my CD Doctor about the advavtages and disadvantages of tune ups and the drugs required for MAC. He talked about unintended damages from larges doses of antibiotics. Therefore, not to be used as on a risk benefit basis. I wish I could be more...

Lizlas: My CF Doctor explained it to me in serious detail. You should ask your CF Doctor. Bill

lilmac1177: I have had untreated MAC for more than 10 years. Treatment will last as least 9 months. The effects of the treatment is brutal in your everyday life, not something that you don't want to go through unless really necessary. The second thing is that the treatment, while making you...

There are CF Centers in Vancouver and in Victoria. Google CF Canada. I was asking about stomach pain, to question if enzymes may be appropiate. Keep in touch with us. Bill

I'm glad that your son went to see Dr. Freedman. If anyone can help Jordan Dr Freedman is the person.

First let me suggest that your Doctors contact the Cystic Fibrosis Foundation in the US for assistance in dealing with CF. Their web site is cff.org. Coughing is your daughters best friend. That will help her in keeping her lungs clean. A small amount of blood (less than a cupful) is...

I may be repeating what your CF Doctor told you. There are more than 1800 known mutations that, in pairs (2) will cause CF. The screening at the hospital is usually testing for the most common mutations, about 250. Delta F508 is the most common mutation found in CF patients. There are more...

I have gone through the treatment for MAC. It is not easy and you will hate every minute. Remember the treatment is a life saving experience. WHEN IT IS OVER you will be glad that you did it. Bill

Steve: I'm so very happy to have you posting here. Bill