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Noel Reading your post, I have one thought. You should post more often. Bill

There are approximatly 1800 known mutations and it takes 2 mutations to have CF. If we multiply 1800 X 1800 we find that there are 3,240,000 possible combinations of mutations. Allowing for common combinations, say that the field was only 10% of possible known mutations, there would still be...

Boston Children's Hospital. Both for children and for adults. Bill

Sorry Love: This is the woman who started out by stating that she was 99% positive that her child got two mutations from her husband and none from her. She is guessing and she should stop it and listen to the CF SPECIALIST. By now you know nothing is beneath me, if I can help educate somebody...

WOW. It took 16 weeks for me to get the results of my FULL CF SEQUENCING in order to identify my second mutation and you were able to "figure it out. I'm really inpressed. My CF Clinic could benefit from your ability. Bill

Stop playing with her diet. Go to your CF Center and meet with the CF Dietiatian and get her on a diet that would most benefit her. Including 2 CF Source every day. Bill

It sounds like he is being treated by a local Doctor. He needs to be seen at a CF Clinic by a CF Specialist.

Mom: CF is a disease that must be treated by a CF Doctor. Follow your Doctors instructions regarding meds and treatments. Do your child a favor and forget "tricks of the trade." CF is not a runny nose. Bill

You should begin treating him as any "healthy" 24 year old male. He is an adult and as such he is making choices for himself. Stop treating him as a sick child and force him to grow up. Bill

She may not want to take online classes but she is 19 and she should know, we need to do what works. It took me 12 years to get a BS. Online classes were not available then. Bill

To reply to your question, I (we) would need to know more about you. How much education have you had? What skills do you feel that you have? What kind of work do you want (and do not) want to do. Are you willing to acquire additional education? Bill

I would call, FAX or email Fox and bring him up to speed. Bill

Julie: Is Ari back to pain and/or loose stools? Bill

Yea Julie, try Dr #1 again. Sit tight, relax. Bill

Tom: You are practicing medicine again!!! Bill

Mucus mixes with stool and becomes an adhesive and sticks to the walls of the colon. This reduces the circumference of the colon and makes moving stool more difficult. Daily dose of Miralax will be your best friend. Bill

TarHeel: Actually it is part of the COBRA Law. The hospital is required to stabilize you. They can bill you, however it is better than dying at home, in this case alone. Bill

In the United States, if you go to the ER and you CANNOT AFFORD THE MEDICAL CARE, it will be paid for you. Find the nearest CF Center and go to the ER at that hospital. Bill

I was diagnosed at age 47 and there is NOBODY on either side of my family who had CF. I too did my family tree. I found a number of infant deaths, dating back to the early 1000's AD. CF or other causes we will never know. FACT: Given all of the above info, I HAVE CF. I have had sweat...

Coughing up small quantities of blood is very normal. If the quantity, on any one episode, gets to a cupful he should go to the ER at the nearest CF Center. Bill