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He only sees patients on Fridays and does CF research on the other 4 days. If anyone can help your son Steve can. Bill

I don't know where you live but I want you to Google Steven D. Freedman, MD, PhD. He is located in Boston and as other people will tell you with their following posts, He is the TOP CF GI DOCTOT IN THE WORLD. You need to see him ASAP. Bill

Easy, easy easy. I have CFRD and it is not a big deal. A fasting blood test is usually sufficent. PM me. Bill

Have him read the posts here. He really must go to an APPROVED CF CENTER and see a CF SPECIALIST. The world is full of doctors who CAN NOT SPELL CYSTIC FIBROSIS much less dx it. Bill

Are you going to an Approved CF Center and are you seeing a CF Specialist? Bill

I thought my signature was on my post. I want your husband to know who is yelling at him. Bill

OMG. He is an idiot and tell him I said so. If he continues on the path he is on, he too will pass away with CF. If he will go to a CF Center and see a CF Specialist, he can be treated. There are alot of us on here who are over 50 and even into out 60's and 70's. He has lung damage...

My suggestion would be to review your enzyme intake. Enzymes help in the digestion of fats and high fat absorption equals weight gain. Bill

Do you drink and/or exercise more when you are home? Bill

When I talk to my PCP or my Dermatologst or other specialists they all talk about a "cure". When we get into detail, they are talking about the new drugs from Vertax. They, like the rest of us, read the newspapers. Enzo, you may be correct in seeing a "cure" in your future. If I were you, I...

They start by taking yout height and weight. This along with your age is factored into the "PFT Machine". The machine then calabrates the strength of your lung output. This is compared against the "standard/average" for someone your age, height and weight without CF. 100% would mean that you...

Enzo: I'm 72 and there are 3 others at the CF Clinic that I attend who are over 70. Last year when I was in the hospital, one of the nurses told me that there had been a patient there (for non CF issues) who had CF and was in his 90's. If you check the Annual Report from CFF, they list...

Let me see if I get this right. First you let your child "play" with 2 other cf patients then you bitch because an intern in the ER dosen't gown up. Then you tell us that you have "done extensive research". Perfect!!! Keep up the good work.

Coughing up "mothfulls" of blood is not always that serious BUT IT CAN BE VERY SERIOUS AND SHOULD BE CHECKED BY A DOCTOR.

Sorry Tom, My question wasn't meant to open any wounds. Please forgive me. Bill

OK Tom, what if all things above remain the same and the patient is 10 years old? Does Mom have no say? Bill

In the case, son was opposed to any (all) life saving procedures. Are you now saying that Mom can decide some of the time and son decides on the balance of the time? Then by who's morals, son or mom? Bill

Which Mother of a 17yo, who supports his position in this case, because he is old enough to make this life determining decision, would allow him to spend the weekend in a motel with his girlfriend. Just asking. Bill

Thankfully, I never got a F in Grad School or a D or C. I appreciate your academic background but I could only comment on the facts as presented. It would be fun to hear her Profs final verdict. Bill

Whenever I was required to deal with case studies, we were always required to deal with the facts as presented. It would be fun to bring in other thoughts but those would not be part of the case as presented. As presented, Mom wants to keep him alive, try to get a Judge to overturn that...