Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. P

    Clear Lungs, Fatty Liver

    Try to find a drug, any drug, without warnings "written on it". Bill
  2. P

    share your information about pancreatic enzymes

    I have to take half of my enzymes (10 Creon 24) at the beginning of my meal and the balance upon completion. When I was younger and still had some pancreatitic function, I could skip my enzymes occasionally for one meal. Now, I have to take enzymes with as little as one cookie. The answer to...
  3. P

    enzyme test

    Tom is 100% correct, as far as he went. If you in fact have CF, you are playing with your lifespan. You need to go to an APPROVED CF CENTER and see a CF SPECIALIST. Good luck, Bill
  4. P

    share your information about pancreatic enzymes

    Did you read the literature that comes with every container?
  5. P

    share your information about pancreatic enzymes

    Why are you UNHAPPY with your CF Doctor's instructions? Bill
  6. P

    stockpiling for civil unrest?

    This AM I started digging a hole in my back yard. I'm putting in a 6 room bomb shelter.
  7. P

    CFTR diagnosis Vs CF diagnosis

    As hard as this to say, TOM IS RIGHT. You need to a CF Specialist at an approved CF Center. Just kidding Tom. Bill
  8. P

    Newbie here feeling very alone & depressed with CF

    Danielle: Before you do anything I would ask you to GOOGLE Steven D. Freedman, MD, PhD. He is the countries leading expert on Adult CF/ Pancreatitis. I had over 70 hospitalizations over 10 years before I was dx with CF. Feel free to send me a Private Message. Bill
  9. P

    CFTR diagnosis Vs CF diagnosis

    You need to see a CF SPECIALIST at an APPROVED CF CENTER. The average pediatrician is NOT QUALIFIED to comment on CF much less DX it. Bill
  10. P

    Pancreatic Sufficient for how long?

    My first pancreatitis attack was at age 27. PI started a very slow road from there. I think that I was 80% PI by age 40. Bill
  11. P

    "Mandatory" glucose tolerance testing?

    Cyril: I understand your problem. It is not easy going through life without the ability to communicate your thoughts without reverting to swearing. I don't know how old you are, but it is not too late to take a remedial english course at a Community College. Bill
  12. P

    At what point should I bring him to the ER?

    If you decide to go to the ER, only go to the ER where your CF Clinic is located. Bill
  13. P

    stockpiling for civil unrest?

    They want to shoot you!!!
  14. P

    stockpiling for civil unrest?

    Your jokeing, right? Bill
  15. P

    Coughing more than usual

    Ragweed is very high now and it has the effect of increase the amount of coughing that I do so much that some days I don't need to vest. I'm in Massachusetts. Bill
  16. P

    Hemoptysis - four year old

    I know. The first time it happened to me, I was scared SH__. Bill
  17. P

    Hemoptysis - four year old

    kitomd21: You can relax. A small amount of blood, as you describe, is very normal. It becomes an issue when the volumn is about a half a cupful. Bill
  18. P

    Bowel Question...

    JSterlingH: An increase in enzymes may be in order. Bill
  19. P

    Bowel Question...

    Aboveallislove: Great job answering this question. Bill
  20. P

    "Mandatory" glucose tolerance testing?

    Sara: You may not believe this but my history of having invasive and painful tests done is pretty extensive. Before I was dx, at age 47, and had about 70 hospitalizations in 10 years, my life was miserable and painful. It is'nt much better now. Your life, with CF, will continue to be filled...
Top