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laciand gabsmum: It also means that your son, while not being dx with CF, has a minimum chance of 50% for being a CF CARRIER. Bill

laciand gabsmum: It also means that your son, while not being dx with CF, has a minimum chance of 50% for being a CF CARRIER. Bill

TerriC: I think that you misunderstood my post. She knows that her DD is Double Delta F508. She dosen't know what having 1 or 2 mutations means. Her child, like all CF Patients, deserves to get the best care available. That care is at an APPROVED CF CENTER by an CF SPECIALIST. Bill

TerriC: I think that you misunderstood my post. She knows that her DD is Double Delta F508. She dosen't know what having 1 or 2 mutations means. Her child, like all CF Patients, deserves to get the best care available. That care is at an APPROVED CF CENTER by an CF SPECIALIST. Bill

For your daughter to have been dx 6 years ago and for you to not have a TOTAL understanding of 2 mutations is a concern. I suspect that your daughter is NOT being treated by a CF SPECIALIST at a APPROVED CF CENTER. It is EXTREMELY important that your DD se a Specialist an that you take...

For your daughter to have been dx 6 years ago and for you to not have a TOTAL understanding of 2 mutations is a concern. I suspect that your daughter is NOT being treated by a CF SPECIALIST at a APPROVED CF CENTER. It is EXTREMELY important that your DD se a Specialist an that you take...

I use 7% sailine and it controls the mucus and allows to expell most of it as I vest and neb. Bill

I use 7% sailine and it controls the mucus and allows to expell most of it as I vest and neb. Bill

Caitlin: It soulds like you should increase your Creon or split it to half before and half after meals. I'm lactose intolerant. Hard cheese is lactose free, I use cheddar. Try to stay away from american. CVS has a pill called DAIRY RELIEF, fairly inexpensive if you buy the bottle of 120...

Caitlin: It soulds like you should increase your Creon or split it to half before and half after meals. I'm lactose intolerant. Hard cheese is lactose free, I use cheddar. Try to stay away from american. CVS has a pill called DAIRY RELIEF, fairly inexpensive if you buy the bottle of 120...

If that combination "corrects" a mutation and that mutation begins to work correctly, it will remove mucus as it would in any CARRIER. Basically it will "turn" a CF patient into a CARRIER. Bill

If that combination "corrects" a mutation and that mutation begins to work correctly, it will remove mucus as it would in any CARRIER. Basically it will "turn" a CF patient into a CARRIER. Bill

Affected means influnced or acted upon. People with CF are not INFLUENCED BY CF, nor does CF ACT UPON US.

Affected means influnced or acted upon. People with CF are not INFLUENCED BY CF, nor does CF ACT UPON US.

Unlike the posts above, I didn't read anything that said that you are taking enzymes now. You need to be on a digestive enzyme like Creon, Zenpep etc. This will help you digest your food, allow you to put weight on and reduce number of BMs. About your Doctor, you need to be seen at an...

Unlike the posts above, I didn't read anything that said that you are taking enzymes now. You need to be on a digestive enzyme like Creon, Zenpep etc. This will help you digest your food, allow you to put weight on and reduce number of BMs. About your Doctor, you need to be seen at an...

Colleen: There are so many levels of genetic testing. When I first had Genetic Testing, there was 250 known mutations, today there are more than 1800. He needs to be tested for the FULL CF SEQUENCING. I go to the Adult Clinic at Children's Hospital of Boston. All of the Doctors there are...

Colleen: There are so many levels of genetic testing. When I first had Genetic Testing, there was 250 known mutations, today there are more than 1800. He needs to be tested for the FULL CF SEQUENCING. I go to the Adult Clinic at Children's Hospital of Boston. All of the Doctors there are...

He NEEDS to be seen at an APPROVED CF CENTER by an CF SPECIALIST. He NEEDS to have a FULL CF SEQUENCING done. I'm not joking when I say his life is in the balance. Bill

He NEEDS to be seen at an APPROVED CF CENTER by an CF SPECIALIST. He NEEDS to have a FULL CF SEQUENCING done. I'm not joking when I say his life is in the balance. Bill