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I was dx at age 47. You need to go to an APPROVED CF CLINIC and get a FULL CF SEQUENCING. Untreated CF will result in continuing permanant lung damage. Bill

Katie: I'm sure that you like your Doctor alot but CF is not your everyday disease and it is unlikely that he/she is capable of making the diagnosis. If your son has CF and it remains undiagnosed and untreated, he can have ongoing and irreversable lung damage. At age 47 I had two "borderline"...

Katie: I'm sure that you like your Doctor alot but CF is not your everyday disease and it is unlikely that he/she is capable of making the diagnosis. If your son has CF and it remains undiagnosed and untreated, he can have ongoing and irreversable lung damage. At age 47 I had two "borderline"...

We all need to remember that we are end users of a product that is not on the market yet. We, or at least most of us, are not stockholders in Vertex. As such we are not entitled to propritery company information. Even as stockholders we would only receive information at the Annual...

We all need to remember that we are end users of a product that is not on the market yet. We, or at least most of us, are not stockholders in Vertex. As such we are not entitled to propritery company information. Even as stockholders we would only receive information at the Annual...

One suggestion. Contact the Division of Insurance for the Stare of RI. Tell them what you have writted above. Good luck, Bill

I'm approved and waiting but no expected shipping date yet. Bill

I'm approved and waiting but no expected shipping date yet. Bill

Welcome aboard Marine. I was dx at age 47 and that dx probally saved my life. I'm heakther now than I was then. Bill

Welcome aboard Marine. I was dx at age 47 and that dx probally saved my life. I'm heakther now than I was then. Bill

John Shannon: There is a treead in FORUM/ADULT labeled CFers over 40. Take a few minutes and read through it. I was dx at age 47. One guy out here was dx at age 70. Bill

John Shannon: There is a treead in FORUM/ADULT labeled CFers over 40. Take a few minutes and read through it. I was dx at age 47. One guy out here was dx at age 70. Bill

Lakegirl: You are a very special person. I'm really impressed. Bill

Lakegirl: You are a very special person. I'm really impressed. Bill

I neb sitting and with the vest. For me, I inhale as deep as I can, much like PFT's. Then I hold my breath as long a I can. I sit in an "office" chair and watch TV. Hope that helps. Bill

I neb sitting and with the vest. For me, I inhale as deep as I can, much like PFT's. Then I hold my breath as long a I can. I sit in an "office" chair and watch TV. Hope that helps. Bill

Anomie: I agree with you, but now I'm going to watch you get all the "incoming". Bill

Anomie: I agree with you, but now I'm going to watch you get all the "incoming". Bill

I'm waiting for my first shipmenr of Cayston. Thanks for the warning! Bill

I'm waiting for my first shipmenr of Cayston. Thanks for the warning! Bill