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Mywombmates: I had two borderline sweat tests prior to my dx. Since then my dx has been confirmed by nasal, rectal biopsy and by a FULL CF SEQUENCING. Sweats tests are a good screening test, nothing more. A limited CF sequencing is better but still a screening. You should have your children...

KWCF50: God bless you. I hope everyone here reads your words of wisdom. Bill

Liza: Aside from "Romneycare or Obanacare" the Insurance Companies are not operating in the best interest of the American Public. I believe that the Supreme Court will throw Obamacare out in its entirety. Then we go back to these companies being "virtually" unregulated. Bill

Incomudrox: Don't hold back. Tell us what you really think about Romney & Santorun. Bill

Beowulf: In the US, today, tomorrow and for the past 20 years, INSURANCE COMPANIES determine which, if any drugs its subscribers will be allowed to receive. I need to select my insurance company based upon the list of drugs that they would pay for. Enzymes are a perfect example. There are...

She should be tested TODAY. This world is full of Doctors who don't have a clue about CF. I'm 72 and I was dx at age 47. There has NOT been anyone in my family DX before or after me. Bring your daughter to an APPROVED CF CENTER as soon as possible. Your Doctor IS NOT QUALIFED to dx CF, and...

She should be tested TODAY. This world is full of Doctors who don't have a clue about CF. I'm 72 and I was dx at age 47. There has NOT been anyone in my family DX before or after me. Bring your daughter to an APPROVED CF CENTER as soon as possible. Your Doctor IS NOT QUALIFED to dx CF, and...

Daily dose of MIRALAX. I take it with orange juice.

Daily dose of MIRALAX. I take it with orange juice.

Another thought, without Obamacare, when your DD has her 18th birthday, she will no longer be on your "family" health plan. That with her PRE-EXISTING CONDITION will make her uninsurable. I have Medicare and with the exception of the size of the "donut hole" my medical coverage is intact. I...

Beccamom: Just wait unitl hubby loses his job, and health insurance. Then try to get insurance with DD's "PRE-EXISTING CONDITION". Been there done that. Bill

There are great CF Clinics in Canada. Where do you live?

There are great CF Clinics in Canada. Where do you live?

Keven: You need a FULL CF SEQUENCING (over 1500 mutations) Northwestern Memorial Hospital Bill

Keven: You need a FULL CF SEQUENCING (over 1500 mutations) Northwestern Memorial Hospital Bill

There is a thread here, FORUM/ADULT - CFers over 50. You guys are younger but it is still a good read. Bill

There is a thread here, FORUM/ADULT - CFers over 50. You guys are younger but it is still a good read. Bill

TELL the Doctor that you want a FULL CYSTIC FIBROSIS SEQUENCING done. UK or US it is the same test. Bill

TELL the Doctor that you want a FULL CYSTIC FIBROSIS SEQUENCING done. UK or US it is the same test. Bill

I was dx at age 47. You need to go to an APPROVED CF CLINIC and get a FULL CF SEQUENCING. Untreated CF will result in continuing permanant lung damage. Bill