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I would rccommend that you have your sister's CF Doctor do it for you and BF. Bill

In the late 80's they were testing for only 250 mutations. Now they test for more than 1500 mutations. Testing can be expensive. Bill

In the late 80's they were testing for only 250 mutations. Now they test for more than 1500 mutations. Testing can be expensive. Bill

I was dx at age 47. He is likely the most unhealthy now, that he will be for a very long time. He has gotten this far without treatment. He needs to follow the meds and treatments, religiously. When he gets out of the hospital, after his clean out, he will be feeling much better. He needs...

I was dx at age 47. He is likely the most unhealthy now, that he will be for a very long time. He has gotten this far without treatment. He needs to follow the meds and treatments, religiously. When he gets out of the hospital, after his clean out, he will be feeling much better. He needs...

Mine was high, with fatigue. The Doctor ignored it, I got a second and third opinion and changed Clinics. Bill

Mine was high, with fatigue. The Doctor ignored it, I got a second and third opinion and changed Clinics. Bill

I use CF Services for ALMOST EVERYTHING and have done so for several years. Some minor issues on occasion but not as bad as CVS. Bill

I use CF Services for ALMOST EVERYTHING and have done so for several years. Some minor issues on occasion but not as bad as CVS. Bill

Are you seeing a CF SPECIALIST at Children's Hospital? Bill

Anomie: Actual experience. A referal is required though if insurance is involved. Bill

Anomie: Actual experience. A referal is required though if insurance is involved. Bill

Is he seeing a CF SPECIALIST or just his pead? Who did the "gentic testing" and how many mutations did they test for? Do he take Mirilax? Bill

Anomie: Anyone can call an APPROVED CF CENTER, present their case and request an appointment. Bill

Anomie: Anyone can call an APPROVED CF CENTER, present their case and request an appointment. Bill

MommaKas OK. At minimum your younger daughter is a likely a CF Carrier (50% chance) with one Delta F 508 mutation. She is showing classic signs of CF. I want someone to explain to me ANY POSSIBLE reason that she should NOT BE TESTED. You and your husband are both AT LEAST Carriers of the Delta...

MommaKas OK. At minimum your younger daughter is a likely a CF Carrier (50% chance) with one Delta F 508 mutation. She is showing classic signs of CF. I want someone to explain to me ANY POSSIBLE reason that she should NOT BE TESTED. You and your husband are both AT LEAST Carriers of the Delta...

I don't know how long she will live I'm 72 and still doing ok. There is a thread on here in FORUMS/ADULT titled CFers over 50. I would suggest that you and your daughter read through it. Your daughter needs to have a FULL CF SEQUENCING at an APPROVER CF CLINIC. There are more than 1500...

I don't know how long she will live I'm 72 and still doing ok. There is a thread on here in FORUMS/ADULT titled CFers over 50. I would suggest that you and your daughter read through it. Your daughter needs to have a FULL CF SEQUENCING at an APPROVER CF CLINIC. There are more than 1500...

Good job Anomie. Bill