Cystic Fibrosis Forum (EXP)

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  1. P

    Pseudomonas Eradication in Newly Diagnosed Patient

    You might ask the Doctor if he/she thinks that in the "off TOBI" months 7% Sailine might be beneficial. She will feel better than she has, for a very long time now that she has been dx and is getting treatment. Bill
  2. P

    Pseudomonas Eradication in Newly Diagnosed Patient

    You might ask the Doctor if he/she thinks that in the "off TOBI" months 7% Sailine might be beneficial. She will feel better than she has, for a very long time now that she has been dx and is getting treatment. Bill
  3. P

    B cepacia symptoms

    Several of us have had "LATE DX", one women out here was dx at age 70 and I know of another dx at age 74. H's dad should have a FULL CF SEQUENCING DONE. Bill
  4. P

    B cepacia symptoms

    Several of us have had "LATE DX", one women out here was dx at age 70 and I know of another dx at age 74. H's dad should have a FULL CF SEQUENCING DONE. Bill
  5. P

    What's your lung function and what can you do with it?

    FEV1 = 75%. I was going to run the Boston Marathon yesterday but it was just too hot. 94F in some places. Bill
  6. P

    What's your lung function and what can you do with it?

    FEV1 = 75%. I was going to run the Boston Marathon yesterday but it was just too hot. 94F in some places. Bill
  7. P

    DF508 and 711+1G>T

    Nikole: I couldn't find it either. In short there are alot of us over 50 here and in my adult clinic there are 3 over 70. Is she being seen, at present, at an APPROVED CF CLINIC by an CF SPECIALIST. If not, then she should be. I would think that a slight increase in her enzymes may help...
  8. P

    DF508 and 711+1G>T

    Nikole: I couldn't find it either. In short there are alot of us over 50 here and in my adult clinic there are 3 over 70. Is she being seen, at present, at an APPROVED CF CLINIC by an CF SPECIALIST. If not, then she should be. I would think that a slight increase in her enzymes may help...
  9. P

    DF508 and 711+1G>T

    While I had minor symptoms since birth, I didn't show severe symytoms until high school. There is an older thread here, CFERS OVER 50, you will find it in FORUM/ADULT. It would be worth your time to read through it. Bill
  10. P

    DF508 and 711+1G>T

    While I had minor symptoms since birth, I didn't show severe symytoms until high school. There is an older thread here, CFERS OVER 50, you will find it in FORUM/ADULT. It would be worth your time to read through it. Bill
  11. P

    Do I Apply

    The Social Worker who works with your CF Clinic will be able to help or get you connected. Bill
  12. P

    Good bye, my love

    I wish that there words that could comfort your loss, my heart goes out to you. Bill
  13. P

    Good bye, my love

    I wish that there words that could comfort your loss, my heart goes out to you. Bill
  14. P

    Worrisome topic - Large Corporations are self insuring

    Universal health care - with a mandate. Dr Roe, I LOVE YOU. Bill
  15. P

    Worrisome topic - Large Corporations are self insuring

    Universal health care - with a mandate. Dr Roe, I LOVE YOU. Bill
  16. P

    Coughing judgment at the gym (or any public space)

    First as a Salesman and later when I owned my company and even in my years in a service club, I had the problem of coughing in public. I found that most people, even before they knew I had CF, were initally concerned about my health. As a rule, the first time I would cough, I would explain...
  17. P

    Coughing judgment at the gym (or any public space)

    First as a Salesman and later when I owned my company and even in my years in a service club, I had the problem of coughing in public. I found that most people, even before they knew I had CF, were initally concerned about my health. As a rule, the first time I would cough, I would explain...
  18. P

    Alternatives for treating Pseudo in my littlest one!

    Brian: If you don't think that the Doctor is doing the BEST for your kids, GET ANOTHER DOCTOR. Bill
  19. P

    Alternatives for treating Pseudo in my littlest one!

    Brian: If you don't think that the Doctor is doing the BEST for your kids, GET ANOTHER DOCTOR. Bill
  20. P

    Help with Gene Testing

    I would rccommend that you have your sister's CF Doctor do it for you and BF. Bill
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