Cystic Fibrosis Forum (EXP)

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  1. P

    Happy with myself

    Great Sara!!
  2. P

    Happy with myself

    Great Sara!!
  3. P

    School rampant with strep throat

    If they could keep the kids out of school, your problem would be solved. Bill
  4. P

    School rampant with strep throat

    If they could keep the kids out of school, your problem would be solved. Bill
  5. P

    What is the best way for a non-CFer to react to you and/or CF?

    We need to remember that 30,000 people in the US have CF. Given the total population, 30,000 is pretty miniscule. Other than through here and attending CF events, I have NEVER met anyone who has CF. That begs the question, If I didn't have CF, how much would I know about it? Answer. NOTHING...
  6. P

    What is the best way for a non-CFer to react to you and/or CF?

    We need to remember that 30,000 people in the US have CF. Given the total population, 30,000 is pretty miniscule. Other than through here and attending CF events, I have NEVER met anyone who has CF. That begs the question, If I didn't have CF, how much would I know about it? Answer. NOTHING...
  7. P

    nightly night sweats -- is this normal?

    Night sweats is a symptom of MAC. Tell your Doctor about it. Bill
  8. P

    nightly night sweats -- is this normal?

    Night sweats is a symptom of MAC. Tell your Doctor about it. Bill
  9. P

    School rampant with strep throat

    I would check with the School Bus company to see how often that they sterilize the buses. Perhaps they could begin a program so only healthy kids ride the bus. Bill
  10. P

    School rampant with strep throat

    I would check with the School Bus company to see how often that they sterilize the buses. Perhaps they could begin a program so only healthy kids ride the bus. Bill
  11. P

    What is the best way for a non-CFer to react to you and/or CF?

    We as a group are very oversensitive. If someone told you that you look good, you would say thank you. We, somehow, take offence. Personally, I only become agravated when talking to (ignorant) Doctors, or other medical professionals, who should know better. For example, I've been asked by a...
  12. P

    What is the best way for a non-CFer to react to you and/or CF?

    We as a group are very oversensitive. If someone told you that you look good, you would say thank you. We, somehow, take offence. Personally, I only become agravated when talking to (ignorant) Doctors, or other medical professionals, who should know better. For example, I've been asked by a...
  13. P

    Sterilizer

    Contact CF Services and tell them that it has a crack. Bill
  14. P

    Sterilizer

    Contact CF Services and tell them that it has a crack. Bill
  15. P

    65 Redroses documentary

    It really is excellent. A wonderful woman from an equally wonderful family.
  16. P

    65 Redroses documentary

    It really is excellent. A wonderful woman from an equally wonderful family.
  17. P

    CRMS baby: probabilities that it will become CF?

    Havoc is correct, either you have CF or you don't, you CAN NOT develope it. Having said that, your child has one KNOWN mutation. Known is the key word here. When I was first tested, in the early 1990's, there were only 250 KNOWN mutations. Today that number is between 1800 and 1900 and...
  18. P

    CRMS baby: probabilities that it will become CF?

    Havoc is correct, either you have CF or you don't, you CAN NOT develope it. Having said that, your child has one KNOWN mutation. Known is the key word here. When I was first tested, in the early 1990's, there were only 250 KNOWN mutations. Today that number is between 1800 and 1900 and...
  19. P

    Anyone from the Boston area...question for you

    Yea, I'm still on the newsletter mailing list. Bill
  20. P

    Anyone from the Boston area...question for you

    Yea, I'm still on the newsletter mailing list. Bill
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