Cystic Fibrosis Forum (EXP)

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  1. P

    Does this sound like CF

    It is one thing for the hospital to be accredited, it is another thing for the Doctor that you see there to necessarly understand CF. Ask to see a CF SPECIALIST. Bill
  2. P

    Does this sound like CF

    It is one thing for the hospital to be accredited, it is another thing for the Doctor that you see there to necessarly understand CF. Ask to see a CF SPECIALIST. Bill
  3. P

    Anyone from the Boston area...question for you

    Caitlin: When you go to MGH ask Anita. Seriously, she knows everything. Bill
  4. P

    Anyone from the Boston area...question for you

    Caitlin: When you go to MGH ask Anita. Seriously, she knows everything. Bill
  5. P

    Blood in stools?

    Was blood red or black? Bill
  6. P

    Blood in stools?

    Was blood red or black? Bill
  7. P

    Vest

    Vera: Based upon my experience, I would strongly recommend a vest. I would contact the various vest manuacturers to see if they would give you a break on the price or contact the Cystic Fibrosis Foundation. Either would be worth a try. Bill
  8. P

    Vest

    Vera: Based upon my experience, I would strongly recommend a vest. I would contact the various vest manuacturers to see if they would give you a break on the price or contact the Cystic Fibrosis Foundation. Either would be worth a try. Bill
  9. P

    Need support in pancreatic problems

    I was dx at age 47 after 10 years of severe pancretitis, that included over 70 hospalizations. If I were you, I would visit the US and see an Adult CF Gastro Specialist. In the mean time, if it is possible, I would begin taking pancreatitic enzymes with meals. Please feel free to send a...
  10. P

    Need support in pancreatic problems

    I was dx at age 47 after 10 years of severe pancretitis, that included over 70 hospalizations. If I were you, I would visit the US and see an Adult CF Gastro Specialist. In the mean time, if it is possible, I would begin taking pancreatitic enzymes with meals. Please feel free to send a...
  11. P

    Any Ideas?

    You can get Cayston if your Doctor will request it on an emergency basis. Have him call the CF Pharmacy. Bill
  12. P

    Any Ideas?

    You can get Cayston if your Doctor will request it on an emergency basis. Have him call the CF Pharmacy. Bill
  13. P

    Pfts's and weight changes

    If you want to "hold onto him" you, and he, had better find time and desire to do treatments. Bill
  14. P

    Pfts's and weight changes

    If you want to "hold onto him" you, and he, had better find time and desire to do treatments. Bill
  15. P

    Whats the best brand of Nebulizer???

    OK but understand that you are talking about the COMPRESSOR, the nebulizer is the part that you put in your mouth. Bill
  16. P

    Whats the best brand of Nebulizer???

    OK but understand that you are talking about the COMPRESSOR, the nebulizer is the part that you put in your mouth. Bill
  17. P

    Low iron levels

    Ask his CF Doctor about SOURCE CF Multivitamins. Bill
  18. P

    Low iron levels

    Ask his CF Doctor about SOURCE CF Multivitamins. Bill
  19. P

    Concerned mother of a 1 year old boy; help with insight?!

    Evansmum: First congratulations on completing nursing school. Someone in your class finished first and someone finished last. When I need a nurse, I want that person who finished at the top of his/her class. Most Doctors don't know ANYTHING about CF. It is clear that your Doctor is one of...
  20. P

    Concerned mother of a 1 year old boy; help with insight?!

    Evansmum: First congratulations on completing nursing school. Someone in your class finished first and someone finished last. When I need a nurse, I want that person who finished at the top of his/her class. Most Doctors don't know ANYTHING about CF. It is clear that your Doctor is one of...
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