Cystic Fibrosis Forum (EXP)

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  1. P

    Not diagnosed or been to the doctor, just need advice

    I was dx at age 47 so 20 is not old to be dx. You have enough symptoms to justify further screening. You need to contact an APPROVED CF CENTER (not your local Doctor). At the top/right of this page you will see "Find a CF Center". The Doctors there will walk you through everything that you...
  2. P

    Not diagnosed or been to the doctor, just need advice

    I was dx at age 47 so 20 is not old to be dx. You have enough symptoms to justify further screening. You need to contact an APPROVED CF CENTER (not your local Doctor). At the top/right of this page you will see "Find a CF Center". The Doctors there will walk you through everything that you...
  3. P

    PICC Line

    Yea, give her CF Doctor a call.
  4. P

    PICC Line

    Yea, give her CF Doctor a call.
  5. P

    PICC Line

    Yea, give her CF Doctor a call.
  6. P

    creon help

    <P>I had to determine the correct amount of Creon to take without taking too much. This was done under the watchful eye of a Gastro CF Researcher. I started off at a level below what I believed I needed and watched for the signs that I wasn't taking enough (gas, stomach discomfort and stool). I...
  7. P

    creon help

    <P>I had to determine the correct amount of Creon to take without taking too much. This was done under the watchful eye of a Gastro CF Researcher. I started off at a level below what I believed I needed and watched for the signs that I wasn't taking enough (gas, stomach discomfort and stool). I...
  8. P

    creon help

    <P>I had to determine the correct amount of Creon to take without taking too much. This was done under the watchful eye of a Gastro CF Researcher. I started off at a level below what I believed I needed and watched for the signs that I wasn't taking enough (gas, stomach discomfort and stool). I...
  9. P

    Sweat Test Required?

    Got it. Good luck. Bill
  10. P

    Sweat Test Required?

    Got it. Good luck. Bill
  11. P

    Sweat Test Required?

    Got it. Good luck. Bill
  12. P

    Sweat Test Required?

    I feel like I'm beating a dead horse here but I'll try again. Go to an APPROVED CF CLINIC and see a REAL CF DOCTOR (not a GP or anyone else). Bill
  13. P

    Sweat Test Required?

    I feel like I'm beating a dead horse here but I'll try again. Go to an APPROVED CF CLINIC and see a REAL CF DOCTOR (not a GP or anyone else). Bill
  14. P

    Sweat Test Required?

    I feel like I'm beating a dead horse here but I'll try again. Go to an APPROVED CF CLINIC and see a REAL CF DOCTOR (not a GP or anyone else). Bill
  15. P

    creon help

    Just follow your Doctors instructions. If you have questions call the Doctor. Bill
  16. P

    creon help

    Just follow your Doctors instructions. If you have questions call the Doctor. Bill
  17. P

    creon help

    Just follow your Doctors instructions. If you have questions call the Doctor. Bill
  18. P

    Sweat Test Required?

    <P>OK, I will ask you. What possible reason would you have for not having a sweat test or CF Sequencing done? In business we use what is called a cost/benefit analysis. How muchdamage couldyou inflict on this child if he/shehas CF and you ignore it.</P> <P></P> <P>Call your local CF Center (not...
  19. P

    Sweat Test Required?

    <P>OK, I will ask you. What possible reason would you have for not having a sweat test or CF Sequencing done? In business we use what is called a cost/benefit analysis. How muchdamage couldyou inflict on this child if he/shehas CF and you ignore it.</P> <P></P> <P>Call your local CF Center (not...
  20. P

    Sweat Test Required?

    <P>OK, I will ask you. What possible reason would you have for not having a sweat test or CF Sequencing done? In business we use what is called a cost/benefit analysis. How muchdamage couldyou inflict on this child if he/shehas CF and you ignore it.</P> <P></P> <P>Call your local CF Center (not...
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