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Heather:
I began to become PI when I was in my late 20's but remember that I wasn't dx until I was 47. Up until I was 47, I had never been treated for mucus (much less CF). Had I been treated, the mucus would not have been free to flow and collect on my pancreas.
My feeling is that had I...
Heather:
I began to become PI when I was in my late 20's but remember that I wasn't dx until I was 47. Up until I was 47, I had never been treated for mucus (much less CF). Had I been treated, the mucus would not have been free to flow and collect on my pancreas.
My feeling is that had I...
Heather:
I began to become PI when I was in my late 20's but remember that I wasn't dx until I was 47. Up until I was 47, I had never been treated for mucus (much less CF). Had I been treated, the mucus would not have been free to flow and collect on my pancreas.
My feeling is that had I...
I have DF508 and V562I and the T5 variant. Part of the INTERPREATION of the FULL CF GENE SEQUENCE reads ad follows:
This analysis identified one copy of c. 1521_1523delCTT (p. F508del). a clinically significant sequence change, one copy of c. [1684G>A; c.3017C>A] (p. [V5621; A1006E]), and...
I have DF508 and V562I and the T5 variant. Part of the INTERPREATION of the FULL CF GENE SEQUENCE reads ad follows:
This analysis identified one copy of c. 1521_1523delCTT (p. F508del). a clinically significant sequence change, one copy of c. [1684G>A; c.3017C>A] (p. [V5621; A1006E]), and...
I have DF508 and V562I and the T5 variant. Part of the INTERPREATION of the FULL CF GENE SEQUENCE reads ad follows:
This analysis identified one copy of c. 1521_1523delCTT (p. F508del). a clinically significant sequence change, one copy of c. [1684G>A; c.3017C>A] (p. [V5621; A1006E]), and...
Your son certainly shows classic CF symptoms but waiting until March is too long. Call your local APPROVED CF CENTER, tell them your story and ask for an appointment. In the mean time that can arrange for a sweat test. Don't wait.
Bill
Your son certainly shows classic CF symptoms but waiting until March is too long. Call your local APPROVED CF CENTER, tell them your story and ask for an appointment. In the mean time that can arrange for a sweat test. Don't wait.
Bill
Your son certainly shows classic CF symptoms but waiting until March is too long. Call your local APPROVED CF CENTER, tell them your story and ask for an appointment. In the mean time that can arrange for a sweat test. Don't wait.
Bill
mea6195 and others:
I was born in January of 1940. At that time there were two names for CF, Celiac Syndrome (a disease of the pancrease) and in the late 1930's it was given the name Cystic Fibrosis. Cystic Fibrosis, at that time, was "caused by a deficiency of Vitamin A". There were NO...
mea6195 and others:
I was born in January of 1940. At that time there were two names for CF, Celiac Syndrome (a disease of the pancrease) and in the late 1930's it was given the name Cystic Fibrosis. Cystic Fibrosis, at that time, was "caused by a deficiency of Vitamin A". There were NO...
mea6195 and others:
I was born in January of 1940. At that time there were two names for CF, Celiac Syndrome (a disease of the pancrease) and in the late 1930's it was given the name Cystic Fibrosis. Cystic Fibrosis, at that time, was "caused by a deficiency of Vitamin A". There were NO...
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