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OK first slow down. You don't ever know for sure that DS has CF. At this point in time too many people know your private business as it is. Second CF is not a death sentence and there is no "imminent death". I understand that you and your wife are scared but don't let that control your...

Where is your son being seen?

Where is your son being seen?

Yup I'm 71 72 in January. I'm still doing pretty good. My lung function is pretty good but my pancrease is fried.

Yup I'm 71 72 in January. I'm still doing pretty good. My lung function is pretty good but my pancrease is fried.

I'm in Eastern MA

I'm in Eastern MA

Additional mutations have been discovered in the past nine years. I would do another Full CF Sequencing just to be on the safe side. Bill

Additional mutations have been discovered in the past nine years. I would do another Full CF Sequencing just to be on the safe side. Bill

Good for you Christine.

Good for you Christine.

I am very sorry for your loss. I hope that we will find a cure to this disease soon so we will see an end to losing good people, such as your son. Bill

I am very sorry for your loss. I hope that we will find a cure to this disease soon so we will see an end to losing good people, such as your son. Bill

I am very sorry for your loss. I hope that we will find a cure to this disease soon so we will see an end to losing good people, such as your son. Bill

Joseph: Should you decide to contact any CF Doctor at any APPROVED CF CENTER, that will complete your research very quickly. There is a list of approved centers available by clicking on at the top right of this page. Good luck, Bill

Joseph: Should you decide to contact any CF Doctor at any APPROVED CF CENTER, that will complete your research very quickly. There is a list of approved centers available by clicking on at the top right of this page. Good luck, Bill

Joseph: Should you decide to contact any CF Doctor at any APPROVED CF CENTER, that will complete your research very quickly. There is a list of approved centers available by clicking on at the top right of this page. Good luck, Bill

I get almost all of my Rx, including CF Source, from CF Services. I think that they are great. Bill

I get almost all of my Rx, including CF Source, from CF Services. I think that they are great. Bill

I get almost all of my Rx, including CF Source, from CF Services. I think that they are great. Bill