Cystic Fibrosis Forum (EXP)

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  1. P

    How do we CFers die?

    My wife says I'm still scarcastic and angry. Lucie, I appreciate your kind words. I seem to get in trouble, out here, alot. Bill
  2. P

    newborn daughter just diagnosed

    I am sorry to hear that your daughter (Darling Daughter = DD) was dx with CF but glad that she was dx at such an early age. There is a thread here (see FORUM/ADULT), called cfers over 40. Take a few minutes with your husband and read through it. I won't lie to you, this is not a good dx but...
  3. P

    newborn daughter just diagnosed

    I am sorry to hear that your daughter (Darling Daughter = DD) was dx with CF but glad that she was dx at such an early age. There is a thread here (see FORUM/ADULT), called cfers over 40. Take a few minutes with your husband and read through it. I won't lie to you, this is not a good dx but...
  4. P

    newborn daughter just diagnosed

    I am sorry to hear that your daughter (Darling Daughter = DD) was dx with CF but glad that she was dx at such an early age. There is a thread here (see FORUM/ADULT), called cfers over 40. Take a few minutes with your husband and read through it. I won't lie to you, this is not a good dx but...
  5. P

    How do we CFers die?

    mea6195: There is a thread PFT's AFTER TRANSPLANT. You should read through it. Bill
  6. P

    How do we CFers die?

    mea6195: There is a thread PFT's AFTER TRANSPLANT. You should read through it. Bill
  7. P

    How do we CFers die?

    mea6195: There is a thread PFT's AFTER TRANSPLANT. You should read through it. Bill
  8. P

    How do we CFers die?

    <P>I could have been diagnosed prior to my being 47 (1987) but the SWEAT TEST wasn't invented until 1950. The GENE wasn't discovered until 1989. When I was diagnosed (in 1987) it was a major breakthrough. My life expecdency at that time was 18. Up until that time I showed all of the "classic"...
  9. P

    How do we CFers die?

    <P>I could have been diagnosed prior to my being 47 (1987) but the SWEAT TEST wasn't invented until 1950. The GENE wasn't discovered until 1989. When I was diagnosed (in 1987) it was a major breakthrough. My life expecdency at that time was 18. Up until that time I showed all of the "classic"...
  10. P

    How do we CFers die?

    <P>I could have been diagnosed prior to my being 47 (1987) but the SWEAT TEST wasn't invented until 1950. The GENE wasn't discovered until 1989. When I was diagnosed (in 1987) it was a major breakthrough. My life expecdency at that time was 18. Up until that time I showed all of the "classic"...
  11. P

    Atypical CF

    There is a paper published in the JOURNAL OF THE ROYAL SOCIETY OF MEDICINE Supplomont No. 43 Volume 96 2002. This is available via Google and is titled Atypical Cystic Fibrosis-diagnostic and management delemmas. I would suggest that you download this paper, become familar with it and give a...
  12. P

    Atypical CF

    There is a paper published in the JOURNAL OF THE ROYAL SOCIETY OF MEDICINE Supplomont No. 43 Volume 96 2002. This is available via Google and is titled Atypical Cystic Fibrosis-diagnostic and management delemmas. I would suggest that you download this paper, become familar with it and give a...
  13. P

    Atypical CF

    There is a paper published in the JOURNAL OF THE ROYAL SOCIETY OF MEDICINE Supplomont No. 43 Volume 96 2002. This is available via Google and is titled Atypical Cystic Fibrosis-diagnostic and management delemmas. I would suggest that you download this paper, become familar with it and give a...
  14. P

    Prescription Assistance Programs

    Yes you can still get your Source CF Vitamins from CF Services. Bill
  15. P

    Prescription Assistance Programs

    Yes you can still get your Source CF Vitamins from CF Services. Bill
  16. P

    Prescription Assistance Programs

    Yes you can still get your Source CF Vitamins from CF Services. Bill
  17. P

    Lung Function

    My last FEV1 was 66% (I run between 65-75%). As I understand the reading, 100% is the expected performance of a woman your age/height and weight who is in "perfect health". My Doctor says that my 65% is good so it seems that you are doing good also. I hope that this helps. You can google...
  18. P

    Lung Function

    My last FEV1 was 66% (I run between 65-75%). As I understand the reading, 100% is the expected performance of a woman your age/height and weight who is in "perfect health". My Doctor says that my 65% is good so it seems that you are doing good also. I hope that this helps. You can google...
  19. P

    Lung Function

    My last FEV1 was 66% (I run between 65-75%). As I understand the reading, 100% is the expected performance of a woman your age/height and weight who is in "perfect health". My Doctor says that my 65% is good so it seems that you are doing good also. I hope that this helps. You can google...
  20. P

    Not diagnosed or been to the doctor, just need advice

    I was dx at age 47 so 20 is not old to be dx. You have enough symptoms to justify further screening. You need to contact an APPROVED CF CENTER (not your local Doctor). At the top/right of this page you will see "Find a CF Center". The Doctors there will walk you through everything that you...
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