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I was dx in 1987 and the gene was identifyed in 1989. When I was first tested, in 1995, there were 250 known (identified) mutations. Today there are almost 1900 known mutations. Tomorrow there may be more. I'm guessing that there were mutations found between 2008 and today. Sinus issues, acid...

It is not suppose to hurt, call the CF Center today and talk to whover is on call. Bill

It is not suppose to hurt, call the CF Center today and talk to whover is on call. Bill

What would be the downside of discussing this with your Doctor? You may get some really good advice or maybe the people here are smarter than your Doctor. Just wondering. Bill

What would be the downside of discussing this with your Doctor? You may get some really good advice or maybe the people here are smarter than your Doctor. Just wondering. Bill

Being dx at age 8 dosen't mean that son has a "mild case", it only means that nobody dxed him in the first 8 years. Another thing, with all respect to your primary physician, given his age, I would be suprised if he knew much more about CF than the name. Good luck, Bill

Being dx at age 8 dosen't mean that son has a "mild case", it only means that nobody dxed him in the first 8 years. Another thing, with all respect to your primary physician, given his age, I would be suprised if he knew much more about CF than the name. Good luck, Bill

You may not like this but notwithstanding any other situations with the school and teachers (504, emails) your daughter is old enough to take some responsibility for her education. She can ask the other kids for assistance (what was covered in math over the last 2 weeks) and she can question...

You may not like this but notwithstanding any other situations with the school and teachers (504, emails) your daughter is old enough to take some responsibility for her education. She can ask the other kids for assistance (what was covered in math over the last 2 weeks) and she can question...

I put mine in the dishwasher.

I put mine in the dishwasher.

Are you NOT seeing a CF Doctor? Which Children's Hospital are you going to? Bill

Are you NOT seeing a CF Doctor? Which Children's Hospital are you going to? Bill

ABSOLUTLY. I had a ton of pancreatitis attacks before I was dx. Get him to a CF Center ASAP. Pancreatits is one of the leading symptoms of CF. Bill

ABSOLUTLY. I had a ton of pancreatitis attacks before I was dx. Get him to a CF Center ASAP. Pancreatits is one of the leading symptoms of CF. Bill

Do you think that it might be a good idea to ask her Doctor that question?

Do you think that it might be a good idea to ask her Doctor that question?

You didn't say where he is being seen. I would hope that he is being seen at an APPROVED CF CLINIC. You also didn't mention any mutations. Has he had a FULL CF SEQUENCE done? I more than meet any and all criteria for a dx of CF, and have been dx at three CF CENTERS. I am still told by...

You didn't say where he is being seen. I would hope that he is being seen at an APPROVED CF CLINIC. You also didn't mention any mutations. Has he had a FULL CF SEQUENCE done? I more than meet any and all criteria for a dx of CF, and have been dx at three CF CENTERS. I am still told by...

OK first slow down. You don't ever know for sure that DS has CF. At this point in time too many people know your private business as it is. Second CF is not a death sentence and there is no "imminent death". I understand that you and your wife are scared but don't let that control your...