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I just watched the Republican debate. All of the canidates want to deregulate everything, including clean air. Contact a Democrat, running for Congress in your district and tell him/her your story. Let them make this school a campain issue without naming you.
Bill
L997F is a major contributor to CF related pancreatitis. Having been there and having lost the production of my pancreatic enzymes, I would strongly suggest that not take this lightly.
He had better "look into the reality of CF" and keep looking into it.
Bill
L997F is a major contributor to CF related pancreatitis. Having been there and having lost the production of my pancreatic enzymes, I would strongly suggest that not take this lightly.
He had better "look into the reality of CF" and keep looking into it.
Bill
CrisDopher: "THE GENE" was identified in 1989, two years after I was dx. Being and old man, I have senior moments so perhaps my first screening was done slightly after 1993 (and who said that my screen was not done as a test). I had a FULL SEQUENCING done in 2011 and at that time I was advised...
CrisDopher: "THE GENE" was identified in 1989, two years after I was dx. Being and old man, I have senior moments so perhaps my first screening was done slightly after 1993 (and who said that my screen was not done as a test). I had a FULL SEQUENCING done in 2011 and at that time I was advised...
Clearly your Doctor is not a CF Specialist and the info that he/she is giving you is VERY out of date. There are almost 1900 known mutations and they can all be tested. In 1963 I was tested and the range was only 250 mutations. I was recently retested and the range is now close to 1900.
You...
Clearly your Doctor is not a CF Specialist and the info that he/she is giving you is VERY out of date. There are almost 1900 known mutations and they can all be tested. In 1963 I was tested and the range was only 250 mutations. I was recently retested and the range is now close to 1900.
You...
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