Cystic Fibrosis Forum (EXP)

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  1. P

    Adults diagnosed in their 50's?

    I "worked" until I was 68 but was self-employed.
  2. P

    Question about mutation 3154T>G

    Did you GOOGLE it? Bill
  3. P

    Question about mutation 3154T>G

    Did you GOOGLE it? Bill
  4. P

    Swallowed mucus causing pancreatitis?

    The bacteria that you swallow will follow the same route as the food that you eat and does not go into the pancreasis. Bacteria, however does find its way into the blood stream and will find its way into all of your organs. Contact your CF Doctor and be treated for your pancreatitis ASAP...
  5. P

    Swallowed mucus causing pancreatitis?

    The bacteria that you swallow will follow the same route as the food that you eat and does not go into the pancreasis. Bacteria, however does find its way into the blood stream and will find its way into all of your organs. Contact your CF Doctor and be treated for your pancreatitis ASAP...
  6. P

    Hypertonic Saline

    We need to understand that coughing is a tool that we use (even if we don't want to use it) to clean our lungs. The bacteria in our lungs does permanent damage and reduces lung function and it is necessary to remove it. The purpose of coughing is to loosen and remove this bacteria. Coughing...
  7. P

    Hypertonic Saline

    We need to understand that coughing is a tool that we use (even if we don't want to use it) to clean our lungs. The bacteria in our lungs does permanent damage and reduces lung function and it is necessary to remove it. The purpose of coughing is to loosen and remove this bacteria. Coughing...
  8. P

    Death in family

    I am sorry for your loss as well. Having said that, there is no good reason for you to put your health at risk. I remember reading a book by a Doctor. He had a young patient who died and when he called the family he only told them to come to the hospital, not that there son had died. In...
  9. P

    Death in family

    I am sorry for your loss as well. Having said that, there is no good reason for you to put your health at risk. I remember reading a book by a Doctor. He had a young patient who died and when he called the family he only told them to come to the hospital, not that there son had died. In...
  10. P

    Hypertonic Saline

    Anomie: Yes I have grown pseudomonas, aspergillus that I control with HTS.I also grow MAC,flora and mold. Did you think that because I'm 72 I have some mild form of CF that does not include these bacteria?Bill
  11. P

    Hypertonic Saline

    Anomie: Yes I have grown pseudomonas, aspergillus that I control with HTS.I also grow MAC,flora and mold. Did you think that because I'm 72 I have some mild form of CF that does not include these bacteria?Bill
  12. P

    Recurrent chest infections and poor weight gain in 1 yr old

    I think that you have more than sufficent reason to change Doctors. What is more inportant is that you contact the closest APPROVED CF CENTER. Even if your childdoes not have CF but ESPECIALLY if she does, all of these lung infections are doing PERMANENT damage to her lungs. Most local Doctors...
  13. P

    Recurrent chest infections and poor weight gain in 1 yr old

    I think that you have more than sufficent reason to change Doctors. What is more inportant is that you contact the closest APPROVED CF CENTER. Even if your childdoes not have CF but ESPECIALLY if she does, all of these lung infections are doing PERMANENT damage to her lungs. Most local Doctors...
  14. P

    Adults diagnosed in their 50's?

    Bea: I was dx at age 47 and I will turn 72 this month. I read that you went to a CF Clinic for dx and treatments. The best advice that I can give to anyone out here, especially the newly dx, is to stay EXTREMELY close to the CF Center. Local Doctors, in general, have no clue about CF. We...
  15. P

    Adults diagnosed in their 50's?

    Bea: I was dx at age 47 and I will turn 72 this month. I read that you went to a CF Clinic for dx and treatments. The best advice that I can give to anyone out here, especially the newly dx, is to stay EXTREMELY close to the CF Center. Local Doctors, in general, have no clue about CF. We...
  16. P

    Mutation N1303K

    woodswoman you might try increasing your enzymes Bill
  17. P

    Mutation N1303K

    woodswoman you might try increasing your enzymes Bill
  18. P

    Unknown Genes

    Hi Woodswoman: I was dx at age 47. I am healthier now than before dx. My friends know I have CF but very few have a clue as to what CF really is. I'm glad u were dx, I'm sure that you will get better treatment now. Bill
  19. P

    Unknown Genes

    Hi Woodswoman: I was dx at age 47. I am healthier now than before dx. My friends know I have CF but very few have a clue as to what CF really is. I'm glad u were dx, I'm sure that you will get better treatment now. Bill
  20. P

    Question for the older cfers

    Hi: I recently changed CF centers. At the new center I am one of four CFers over 70. It it theorized that we four have less lung damage than most of the CF population because we have an natural immunity to those bacteria that cause the damage. The center now has funding to further examine and...
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