Cystic Fibrosis Forum (EXP)

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  1. P

    Question for the older cfers

    Hi: I recently changed CF centers. At the new center I am one of four CFers over 70. It it theorized that we four have less lung damage than most of the CF population because we have an natural immunity to those bacteria that cause the damage. The center now has funding to further examine and...
  2. P

    do you ever get better on your own?

    You are close to or 18. You are old enough to make (and suffer from) your own mistakes. The bacteria in your lungs ARE causing irreversable damage to your lungs. Not my opinion, a fact. If you continue not listening to your Dr, in a few years you will need a transplant (if you can get one) or be...
  3. P

    do you ever get better on your own?

    You are close to or 18. You are old enough to make (and suffer from) your own mistakes. The bacteria in your lungs ARE causing irreversable damage to your lungs. Not my opinion, a fact. If you continue not listening to your Dr, in a few years you will need a transplant (if you can get one) or be...
  4. P

    VX-770 and Gating Mutations

    Has Kalydeco really been realeased (to the public)?
  5. P

    VX-770 and Gating Mutations

    Has Kalydeco really been realeased (to the public)?
  6. P

    Does Cf and Food Alleries go together?

    WOW. I need to choose my word so much more carefully. I said there is a corrolation between CF and Lactose Intollerence. I did not mean a "direct corrolation". A greater percentage of the population with CF are lactose intollerant than of the non CF population. Not everyone with CF is...
  7. P

    Does Cf and Food Alleries go together?

    WOW. I need to choose my word so much more carefully. I said there is a corrolation between CF and Lactose Intollerence. I did not mean a "direct corrolation". A greater percentage of the population with CF are lactose intollerant than of the non CF population. Not everyone with CF is...
  8. P

    In ER...admitting to PICU

    I'm praying for him and for you and the rest of your family. Nobody wants to be where you are today. God bless all of you.
  9. P

    In ER...admitting to PICU

    I'm praying for him and for you and the rest of your family. Nobody wants to be where you are today. God bless all of you.
  10. P

    Does Cf and Food Alleries go together?

    Lactose Intolorance has a direct corollation to CF. Bill
  11. P

    Does Cf and Food Alleries go together?

    Lactose Intolorance has a direct corollation to CF. Bill
  12. P

    Pregnant wife, baby ddf508

    First, DO NOT depent on non CF specialists (Doctors) to give you the proper information regarding the health of the baby. Contact your nearest APPROVED CF CENTER and get them in the loop ASAP.
  13. P

    Pregnant wife, baby ddf508

    First, DO NOT depent on non CF specialists (Doctors) to give you the proper information regarding the health of the baby. Contact your nearest APPROVED CF CENTER and get them in the loop ASAP.
  14. P

    Hypertonic Saline

    I'm allergic to Toby and Pulmizime so sailine is my salvation. If you are like me the sailine will clean the mucus from your lungs and then, over time, begin to work down into the small airways. You will eventually see the mucus change from a glob (lungs) to sinue (small airways). Don't be...
  15. P

    Hypertonic Saline

    I'm allergic to Toby and Pulmizime so sailine is my salvation. If you are like me the sailine will clean the mucus from your lungs and then, over time, begin to work down into the small airways. You will eventually see the mucus change from a glob (lungs) to sinue (small airways). Don't be...
  16. P

    I'm In Shock

    God bless a Doctor who knows her limits. I was dx at age 47. Good luck, Bill
  17. P

    I'm In Shock

    God bless a Doctor who knows her limits. I was dx at age 47. Good luck, Bill
  18. P

    Adjusting to a new life

    Caryn: Congratulations and best wishes on your transplant. I know that things will work out for you. Bill
  19. P

    Adjusting to a new life

    Caryn: Congratulations and best wishes on your transplant. I know that things will work out for you. Bill
  20. P

    Schools with bad air quality

    I just watched the Republican debate. All of the canidates want to deregulate everything, including clean air. Contact a Democrat, running for Congress in your district and tell him/her your story. Let them make this school a campain issue without naming you. Bill
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