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YES!!! Call the CF CLINIC and talk to the Doctor on call.

GOD BLESS YOU, ROY. Keep up all of your great work.

GOD BLESS YOU, ROY. Keep up all of your great work.

Suni: I hope that someone her can help you. Bill

Suni: I hope that someone her can help you. Bill

I recently changed CF Centers because of differing views as to how I needed to be treated. I'm in Mass and very lucky in that there are 4 CF Centers within an hours drive from my home. I don't know how easy you can change Centers but it is obvious that you must change. Too often Doctors just...

I recently changed CF Centers because of differing views as to how I needed to be treated. I'm in Mass and very lucky in that there are 4 CF Centers within an hours drive from my home. I don't know how easy you can change Centers but it is obvious that you must change. Too often Doctors just...

I wanted to comment on enzymes also, you may not be properly digesting the fats that you are eating. This is something that can be tested, talk to your CF Doctor. Bill

I wanted to comment on enzymes also, you may not be properly digesting the fats that you are eating. This is something that can be tested, talk to your CF Doctor. Bill

It il literally true, my uncle was killed by a bus. Bill

It il literally true, my uncle was killed by a bus. Bill

OK let me take a different approach here. I will be 72 in January and I have CF. One thing that I'm sure of is that I AM GOING TO DIE SOMETIME. My dad died of "lung disease" (probably CF). My mom died of cancer. My brother died of cancer. My sister died of cancer. One uncle was killed by...

OK let me take a different approach here. I will be 72 in January and I have CF. One thing that I'm sure of is that I AM GOING TO DIE SOMETIME. My dad died of "lung disease" (probably CF). My mom died of cancer. My brother died of cancer. My sister died of cancer. One uncle was killed by...

First understand that CF is NOT a death sentence. There is a thread here - Forum/Adult called CFers over 40. Read through it. I'm sure that CFF told you about the new drug VX770, this will lead to a "cure" very soon. Good luck, Bill

First understand that CF is NOT a death sentence. There is a thread here - Forum/Adult called CFers over 40. Read through it. I'm sure that CFF told you about the new drug VX770, this will lead to a "cure" very soon. Good luck, Bill

Happy Birthday Joni, 60 is big for anyone but bigger for us. Bill

Happy Birthday Joni, 60 is big for anyone but bigger for us. Bill

You are on track to kill yourself. Get onto the treatment plan that you have and live with it until you get a better plan. Nobody out here likes the path that we have been given and I don't expect you to like your path either but it is your path. If you can afford it go to an civilian...

You are on track to kill yourself. Get onto the treatment plan that you have and live with it until you get a better plan. Nobody out here likes the path that we have been given and I don't expect you to like your path either but it is your path. If you can afford it go to an civilian...

I was dx in 1987 and the gene was identifyed in 1989. When I was first tested, in 1995, there were 250 known (identified) mutations. Today there are almost 1900 known mutations. Tomorrow there may be more. I'm guessing that there were mutations found between 2008 and today. Sinus issues, acid...