Cystic Fibrosis Forum (EXP)

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  1. P

    Sports Organization Discriminating against my daughter w/CF

    If I took a 7 year old child outdoors and had her practice cheering for 3 hours with only one break, I would get a visit from the State Department of Childrens Services and I would be charged with CHILD ABUSE. This coach is ABUSING all of these children, not oly the CF child. <br /> <br />In my...
  2. P

    Sports Organization Discriminating against my daughter w/CF

    Let me jump in here again. If I had a 7 year old DD and I took her out on my front lawn and put her through 3 hours of cheerleading with only one break, I would expect a visit from the State Division of Child Services, investigating me for CHILD ABUSE. This coach is on a power trip and is...
  3. P

    Sports Organization Discriminating against my daughter w/CF

    Let me jump in here again. If I had a 7 year old DD and I took her out on my front lawn and put her through 3 hours of cheerleading with only one break, I would expect a visit from the State Division of Child Services, investigating me for CHILD ABUSE. This coach is on a power trip and is...
  4. P

    Sports Organization Discriminating against my daughter w/CF

    Let me jump in here again. If I had a 7 year old DD and I took her out on my front lawn and put her through 3 hours of cheerleading with only one break, I would expect a visit from the State Division of Child Services, investigating me for CHILD ABUSE. <br /> <br />This coach is on a power...
  5. P

    Sports Organization Discriminating against my daughter w/CF

    There are two separate issues here. First the desire of a mom and her DD to take part in any given activity and believe it or not I understand that. The second issue is a action calling upon the Americans with Disabilitys Act. While I am symphetic to the interest and the problems with...
  6. P

    Sports Organization Discriminating against my daughter w/CF

    There are two separate issues here. First the desire of a mom and her DD to take part in any given activity and believe it or not I understand that. The second issue is a action calling upon the Americans with Disabilitys Act. While I am symphetic to the interest and the problems with...
  7. P

    Sports Organization Discriminating against my daughter w/CF

    There are two separate issues here. First the desire of a mom and her DD to take part in any given activity and believe it or not I understand that. The second issue is a action calling upon the Americans with Disabilitys Act. While I am symphetic to the interest and the problems with...
  8. P

    Anyone in the NYC area interested in (and qualify for) the Vertex 770 Extended Access Program?

    Anyone in the NYC area interested in (and qualify for) the Vertex 770 Extended Access Program? Of course they have to make a profit! If I was a stockholder in Vertex, I would ecpect a return on my investment. Having said that, VX770 is only successful because of the physical location of the...
  9. P

    Anyone in the NYC area interested in (and qualify for) the Vertex 770 Extended Access Program?

    Anyone in the NYC area interested in (and qualify for) the Vertex 770 Extended Access Program? Of course they have to make a profit! If I was a stockholder in Vertex, I would ecpect a return on my investment. Having said that, VX770 is only successful because of the physical location of the...
  10. P

    Anyone in the NYC area interested in (and qualify for) the Vertex 770 Extended Access Program?

    Anyone in the NYC area interested in (and qualify for) the Vertex 770 Extended Access Program? Of course they have to make a profit! If I was a stockholder in Vertex, I would ecpect a return on my investment. Having said that, VX770 is only successful because of the physical location of the...
  11. P

    Green Sputum

    It could be several things, including something old or even a new infection growing. I have the e-mail addy of the NP at the CF Clinic. When I have questions like this I send an e-mail. Bill
  12. P

    Green Sputum

    It could be several things, including something old or even a new infection growing. I have the e-mail addy of the NP at the CF Clinic. When I have questions like this I send an e-mail. Bill
  13. P

    Green Sputum

    It could be several things, including something old or even a new infection growing. I have the e-mail addy of the NP at the CF Clinic. When I have questions like this I send an e-mail. <br /> <br />Bill
  14. P

    How to tell kids that mom has CF

    There has been a post on here recently titled CFers OVER 40 (or something close to that). Look in Forum/Adult, it will give you very important information. Bill
  15. P

    How to tell kids that mom has CF

    There has been a post on here recently titled CFers OVER 40 (or something close to that). Look in Forum/Adult, it will give you very important information. Bill
  16. P

    How to tell kids that mom has CF

    There has been a post on here recently titled CFers OVER 40 (or something close to that). Look in Forum/Adult, it will give you very important information. <br /> <br />Bill
  17. P

    How to tell kids that mom has CF

    It is also important to note that your sisters children are, at least, carriers of one CF mutation and could in fact have CF as well. Both of your parents were/are CF carriers therefore you could be a carrier or in fact have CF as well. I would strongly urge all of you (and any brothers and...
  18. P

    How to tell kids that mom has CF

    It is also important to note that your sisters children are, at least, carriers of one CF mutation and could in fact have CF as well. Both of your parents were/are CF carriers therefore you could be a carrier or in fact have CF as well. I would strongly urge all of you (and any brothers and...
  19. P

    How to tell kids that mom has CF

    It is also important to note that your sisters children are, at least, carriers of one CF mutation and could in fact have CF as well. Both of your parents were/are CF carriers therefore you could be a carrier or in fact have CF as well. <br /> <br />I would strongly urge all of you (and any...
  20. P

    Sports Organization Discriminating against my daughter w/CF

    Harriett: I stand corrected. It is great that you are here to keep me on the straight and narrow. Sometimes I have "senior moments" and reading page 2 of the ADA link that you provided, unfortunally, lead to one of those moments. Page 2 - Definitions reads as follows: DEFINITIONAL TERMS: For a...
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