Cystic Fibrosis Forum (EXP)

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  1. P

    Suspected CF-looking for information

    Not quite square one. You have eliminated one of the worst possible outcomes. Good luck, Bill
  2. P

    Suspected CF-looking for information

    Not quite square one. You have eliminated one of the worst possible outcomes. Good luck, Bill
  3. P

    Suspected CF-looking for information

    Not quite square one. You have eliminated one of the worst possible outcomes. <br /> <br />Good luck, <br />Bill
  4. P

    R117h 7T, intermediate sweat test result

    Copper: There is a thread here under FORUM/ADULT, CFers over 40. I would suggest that you and your wife take a few minutes and read all of the postings there. Bill
  5. P

    R117h 7T, intermediate sweat test result

    Copper: There is a thread here under FORUM/ADULT, CFers over 40. I would suggest that you and your wife take a few minutes and read all of the postings there. Bill
  6. P

    R117h 7T, intermediate sweat test result

    Copper: <br /> <br />There is a thread here under FORUM/ADULT, CFers over 40. I would suggest that you and your wife take a few minutes and read all of the postings there. <br /> <br />Bill
  7. P

    R117h 7T, intermediate sweat test result

    Copper: I hope that your son is being seen at an approved CF Center, believe me it is extremely important. Definitly have a FULL CF SEQUENCING done. There are almost 1900 mutations and the full screen is the only way to be sure. You didn't mention any other children but remember both you...
  8. P

    R117h 7T, intermediate sweat test result

    Copper: I hope that your son is being seen at an approved CF Center, believe me it is extremely important. Definitly have a FULL CF SEQUENCING done. There are almost 1900 mutations and the full screen is the only way to be sure. You didn't mention any other children but remember both you...
  9. P

    R117h 7T, intermediate sweat test result

    Copper: <br /> <br />I hope that your son is being seen at an approved CF Center, believe me it is extremely important. <br /> <br />Definitly have a FULL CF SEQUENCING done. There are almost 1900 mutations and the full screen is the only way to be sure. You didn't mention any other...
  10. P

    clinic team

    WOW! At Massachusetts General Hospital they have great Social Workers. Even do phone or e-mail follow up. Bill
  11. P

    clinic team

    WOW! At Massachusetts General Hospital they have great Social Workers. Even do phone or e-mail follow up. Bill
  12. P

    clinic team

    WOW! At Massachusetts General Hospital they have great Social Workers. Even do phone or e-mail follow up. <br /> <br />Bill
  13. P

    CF effects all aspects of your life?

    Given that IGNORANCE is not knowing or not understanding, your friend is simply ingnorant of CF. You could direct them to some valid information or just smile and say "sure". I'm almost twice your age, and still pretty healthy, but CF is a constant part of my entire life. Like your friend...
  14. P

    CF effects all aspects of your life?

    Given that IGNORANCE is not knowing or not understanding, your friend is simply ingnorant of CF. You could direct them to some valid information or just smile and say "sure". I'm almost twice your age, and still pretty healthy, but CF is a constant part of my entire life. Like your friend...
  15. P

    CF effects all aspects of your life?

    Given that IGNORANCE is not knowing or not understanding, your friend is simply ingnorant of CF. You could direct them to some valid information or just smile and say "sure". <br /> <br />I'm almost twice your age, and still pretty healthy, but CF is a constant part of my entire life. Like...
  16. P

    Gastroparesis

    You didn't mention enzymes. Is your son taking enzymes to assist in his digestion of the food he eats? Is his GI a CF doctor as well? Bill
  17. P

    Gastroparesis

    You didn't mention enzymes. Is your son taking enzymes to assist in his digestion of the food he eats? Is his GI a CF doctor as well? Bill
  18. P

    Gastroparesis

    You didn't mention enzymes. Is your son taking enzymes to assist in his digestion of the food he eats? Is his GI a CF doctor as well? <br /> <br />Bill
  19. P

    Sports Organization Discriminating against my daughter w/CF

    If I took a 7 year old child outdoors and had her practice cheering for 3 hours with only one break, I would get a visit from the State Department of Childrens Services and I would be charged with CHILD ABUSE. This coach is ABUSING all of these children, not oly the CF child. In my state it is...
  20. P

    Sports Organization Discriminating against my daughter w/CF

    If I took a 7 year old child outdoors and had her practice cheering for 3 hours with only one break, I would get a visit from the State Department of Childrens Services and I would be charged with CHILD ABUSE. This coach is ABUSING all of these children, not oly the CF child. In my state it is...
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