Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. P

    CFers over 40

    Excellent Brad! My goal is getting past today. Bill
  2. P

    CFers over 40

    Excellent Brad! My goal is getting past today. <br /> <br />Bill
  3. P

    Feeling bad more times than good

    No I don't eat cheerios! I obviously misinterperted your post. I was attempting to give advise but was WRONG. IT HAPPENS. I'll try to see it never happens with you again. Bill
  4. P

    Feeling bad more times than good

    No I don't eat cheerios! I obviously misinterperted your post. I was attempting to give advise but was WRONG. IT HAPPENS. I'll try to see it never happens with you again. Bill
  5. P

    Feeling bad more times than good

    No I don't eat cheerios! I obviously misinterperted your post. I was attempting to give advise but was WRONG. <br /> <br />IT HAPPENS. I'll try to see it never happens with you again. <br /> <br />Bill <br /> <br />
  6. P

    Feeling bad more times than good

    Jennifer: Your not going to get words of encouragement from me. 5 days a week in the gym and neighborhood walking, in my mind is too much. Not much wonder you feel tired. Cut back an the gym and enjoy supper. You need to talk to the PT at the CF Clinic and get onto a "reasonable" program...
  7. P

    Feeling bad more times than good

    Jennifer: Your not going to get words of encouragement from me. 5 days a week in the gym and neighborhood walking, in my mind is too much. Not much wonder you feel tired. Cut back an the gym and enjoy supper. You need to talk to the PT at the CF Clinic and get onto a "reasonable" program...
  8. P

    Feeling bad more times than good

    Jennifer: <br /> <br />Your not going to get words of encouragement from me. 5 days a week in the gym and neighborhood walking, in my mind is too much. Not much wonder you feel tired. Cut back an the gym and enjoy supper. <br /> <br />You need to talk to the PT at the CF Clinic and get onto a...
  9. P

    Salty skin, no other noteable symptoms

    Concur: Eric is 100% correct. Follow his advise. Bill
  10. P

    Salty skin, no other noteable symptoms

    Concur: Eric is 100% correct. Follow his advise. Bill
  11. P

    Salty skin, no other noteable symptoms

    Concur: <br /> <br />Eric is 100% correct. Follow his advise. <br /> <br />Bill
  12. P

    Vertex 770 question

    Every CF patient has 2 mutations. DDF508 (Double Delta F508) means that you have recieved a D F508 mutation from each of your parents. You would not have another mutation. I'm testing my memory here so bear with me. About 10% of the CF population has DDF508. Another 75% has a single D F508...
  13. P

    Vertex 770 question

    Every CF patient has 2 mutations. DDF508 (Double Delta F508) means that you have recieved a D F508 mutation from each of your parents. You would not have another mutation. I'm testing my memory here so bear with me. About 10% of the CF population has DDF508. Another 75% has a single D F508...
  14. P

    Vertex 770 question

    Every CF patient has 2 mutations. DDF508 (Double Delta F508) means that you have recieved a D F508 mutation from each of your parents. You would not have another mutation. <br /> <br />I'm testing my memory here so bear with me. About 10% of the CF population has DDF508. Another 75% has a...
  15. P

    Vertex drugs show promise with DF508

    If you go to CFF.ORG you will get alot of info on the Vertex experimental drugs. Basically VX 770 only deals with G551D because that mutation sits on top of the cell and 770 can easily get to it to activate it. VX 866 (or whatever) hopefully will move D F508 up to the top of the cell...
  16. P

    Vertex drugs show promise with DF508

    If you go to CFF.ORG you will get alot of info on the Vertex experimental drugs. Basically VX 770 only deals with G551D because that mutation sits on top of the cell and 770 can easily get to it to activate it. VX 866 (or whatever) hopefully will move D F508 up to the top of the cell...
  17. P

    Vertex drugs show promise with DF508

    If you go to CFF.ORG you will get alot of info on the Vertex experimental drugs. <br /> <br />Basically VX 770 only deals with G551D because that mutation sits on top of the cell and 770 can easily get to it to activate it. <br /> <br />VX 866 (or whatever) hopefully will move D F508 up to the...
  18. P

    Salty skin, no other noteable symptoms

    Concur: CF is not a lung disease. CF affects many organs and only a few. Have a sweat test done. Bill
  19. P

    Salty skin, no other noteable symptoms

    Concur: CF is not a lung disease. CF affects many organs and only a few. Have a sweat test done. Bill
  20. P

    Salty skin, no other noteable symptoms

    Concur: <BR><BR>CF is not a lung disease. CF affects many organs and only a few. Have a sweat test done. <BR><BR>Bill
Top