Cystic Fibrosis Forum (EXP)

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  1. P

    Neuropathy from CF?

    I am convinced that my father had CF. He also suffered from a nuropathy, it was called Sharco, Marie. Tooth. Named after three doctors who identified that disease. Bill
  2. P

    Neuropathy from CF?

    I am convinced that my father had CF. He also suffered from a nuropathy, it was called Sharco, Marie. Tooth. Named after three doctors who identified that disease. Bill
  3. P

    Neuropathy from CF?

    I am convinced that my father had CF. He also suffered from a nuropathy, it was called Sharco, Marie. Tooth. Named after three doctors who identified that disease. <br /> <br />Bill
  4. P

    VX770

    The D508 drug (VX866) has just completed the second phase of a three phase trial. Hopefully it will be available for submission to the FDA by next summer. When approved VX866 will be used in conjunction with VX770 to benefit those of us with DF508. Bill
  5. P

    VX770

    The D508 drug (VX866) has just completed the second phase of a three phase trial. Hopefully it will be available for submission to the FDA by next summer. When approved VX866 will be used in conjunction with VX770 to benefit those of us with DF508. Bill
  6. P

    VX770

    The D508 drug (VX866) has just completed the second phase of a three phase trial. Hopefully it will be available for submission to the FDA by next summer. <br /> <br />When approved VX866 will be used in conjunction with VX770 to benefit those of us with DF508. <br /> <br />Bill
  7. P

    VX -770 for Australians

    Contact your CF Center and if that dosen't work, I would contact Vertex directly. I know that in the US, some drugs have been used in emergency situations prior to final FDA approval. Bill
  8. P

    VX -770 for Australians

    Contact your CF Center and if that dosen't work, I would contact Vertex directly. I know that in the US, some drugs have been used in emergency situations prior to final FDA approval. Bill
  9. P

    VX -770 for Australians

    Contact your CF Center and if that dosen't work, I would contact Vertex directly. I know that in the US, some drugs have been used in emergency situations prior to final FDA approval. <br /> <br />Bill
  10. P

    Vx-770 and Disability Review

    I don't know if this answers your question but I'll try. 770 is to CF as Insilin is to Diabetis. (I need a spell checker here). It is not a cure but rather a drug that "improves" your condition.
  11. P

    Vx-770 and Disability Review

    I don't know if this answers your question but I'll try. 770 is to CF as Insilin is to Diabetis. (I need a spell checker here). It is not a cure but rather a drug that "improves" your condition.
  12. P

    Vx-770 and Disability Review

    I don't know if this answers your question but I'll try. <br /> <br />770 is to CF as Insilin is to Diabetis. (I need a spell checker here). It is not a cure but rather a drug that "improves" your condition.
  13. P

    throwing up everything from coughing...what to do?

    You NEED to call your CF Doctor ASAP. Bill
  14. P

    throwing up everything from coughing...what to do?

    You NEED to call your CF Doctor ASAP. Bill
  15. P

    throwing up everything from coughing...what to do?

    You NEED to call your CF Doctor ASAP. <br /> <br />Bill
  16. P

    Hyperinflation on chest xray

    Liza: What is a "local CF Doctor"? Bill
  17. P

    Hyperinflation on chest xray

    Liza: What is a "local CF Doctor"? Bill
  18. P

    Hyperinflation on chest xray

    Liza: <br /> <br />What is a "local CF Doctor"? <br /> <br />Bill
  19. P

    CFers over 40

    Excellent Brad! My goal is getting past today. Bill
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