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I have a 11 year old without CF..We've always been pretty open about CF. Maggie needs certain things nebs, VEST extra rest, extra calories, sometimes it feels like extra EVERYTHING to keep her healthy. FOr my non CF child, I do not want him to feel neglected. It's hard because CF is so time...

After reading a post by Lisa about a CF child licking an exam table; it reminded me a funny, gross, and embarrassing story for my daughter. I may have to delete this story at some point but anyway here goes;.. When my daughter was around 3 or 4 years old we went for a walk outside with her...

Maggie has come down with a cold 2 days ago; a pretty good one... Stuffy nose/ tired rundown...Started to feel a little better..did a half day at school... and was playing in the snow.. wrestling with her brother,,now she's coughing feels wheezy., I listened to her lungs and heard a few squeaks...

Soo, Maggie has been having alot of upset tummys the past month; nausea, reflux. No vomiting. She has been growing like crazy; so I thought maybe her enzymes needed to be upped or something. At her Cf appointment we met with the nutritionist, and she asked if Maggie drank alot of juice and...

maggie has been complaining alot about feeling nauseaus. She has had no vomiting. She is not sick; no medication changes. Her wieght is good. in fact, she was I think around 60 pounds . She has not been sick lately, knock wood. But she complains of feeling nauseaus especially when doing...

Just looking for a little parenting advice. You all are so great at dealing with life's challenges so I am looking for help with a difficult subject. My FIL is very ill; he has cancer and will be going home soon with hospice care..My husband is at the hospital right now; the doctors say maybe...

just got off the phone with the school nurse. Maggie was at lunch at school and apparently did not have her lunch enzymes packed in her lunch box(my fault)..I instead had sent 3 packages of "snack enzymes" and none for lunch..Took a few minutes for me to figure it out; got on the phone with...

maggie broke out in a few welts/hives on her hands and feet last night; at first I thought they were bug bites but we were not outside at all yesterday.. They were so itchy she was crying(unusual for her). We had a ton of company over this weekend racking my brain about something new she may...

Just wondering if any of you have vacationed or movd to a area from sea level to a high altitude and how it may have affected your CF. Did you have a hard time breathing? Headaches? We are thinking of taking a vacation in Colorado to ski in February where the altitude is much higher...My...

So Maggie takes Pancreacarb MS 16 and MS 8... She takes the MS 8 usually just for a little extra for lunch and dinner..So instead of paying the copay for the MS8..which ends up being $40 a month I called our local pharmacy and I can get empty capsules for $4.00 for 100 capsules..If I open up a...

I was looking for a little input about Maggie. She's been doing ok; sick alot with regular kid stuff this spring but nothing crazy. She did culture H.flu recently; new for her. She cultures MRSA off/on and staph but not for a long time. Her culture in June came back clear; basically normal...

I got a message from my daughter's ped's office that her throat culture showed Haemophilus species...no sensitivies yet; the PA(the one who know zilch about CF) freaks me out by leaving a message on my answering machine at 4:45 pm on a Friday of a holiday weekend that I need to call the office...

So I feel like a black cloud is following me around and just downpouring...My dog got into the garbage last week and apparently ate an ear of corn..Which is very dangerous for dogs...Can cause a bowel obstruction from the corn cob.. Had to bring the dog in for x-rays; fortuntately the dog threw...

I feel like I've been in a fairly good place with dealing with having a child with CF..She's in public kindergarten; missed some school but not an unusual amount..Maggie's weight had dropped recently but she's getting back on an eating spree and picked up her weight again. This morning she told...

well today is the 3rd time in one week we've gone to the pediatrician; this time for my son. Fever, chills, headache, sore throat I was certain he had strep throat(tends to get it frequently)...The rapid strep came negative...which is good and bad. If it's a yucky virus(which I suppose it is)...

Maggie woke up last night screaming her right ear hurt her; screaming in pain. She has had a slight runny nose for at least 2 weeks, no significant cough..Course she always gets sick on the weekend. Anyway, not sure if her pediatrician office open this am. Her temp was also 101 last night...

So, I'm going into Maggie's class to talk about what I do for work...I am a nurse. It's not CF related at all, but what should I say to the kindergarten crowd.... I have coloring books and crayons for the kids from the hospital about going to the hospital. I will bring in my stethescope and...

Wondering if you have ever tried to add whole milk powder to your child's whole milk for added calories? I have used cream in the past to Maggie's milk but she really likes it without cream. Any thought? I found it online; figure Maggie will need the extra calories once she's done with yet...

Maggie has been off her anti for 9 days and now I think she picked up something else. Arg. last night she was coughing a bit during treatments, even since she finished her Zyvox she's had a little throat clearing thing when doing treatments or singing. But she woke with a fever 101 or more...

Just thinking about my grocery trip this morning. I think of myself as a fit person; I go running; just wonder what the gorcery clerks think of me....Our grocery staples(we cannot live without in our house for Maggie) Rold Gold Pretzel sticks, A1 steak sauce, Lime green tostitos, Oreo(double...